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Lyme Disease
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Posted 11/16/2020 7:36 PM (GMT 0)
I want to make sure I'm doing everything possible to try to get better. I'm cleaning up my diet, trying to get better/more sleep, and working with a good LLMD.

Primary Symptoms:

Bottom of foot pain when bearing weight (since 8/2019)
Upper Back Pain (since 1/2020)
Leg fatigue (since 10/2019)
Circulation issues (it appears I have an enlarged great saphenous vein)

Currently Taking:

Clarithromycin, 2x per day
Keflex, 2x per day
DHEA, 1x per day
Oregano Oil, 2x per day
Grapefruit Seed Extract, 2x per day
Activated Charcoal (2 every AM)
AR Encap (4, 2x per day)
MAG SRT (2, 2x per day)

Have Taken:

Doxycycline (4/2020 - 9/2020)
Cefuroxime (4/2020 - 9/2020)
Mepron (Pulsed 4/2020 - 9/2020)
Tinidazole (Pulsed 4/2020 - 9/2020)
Rifampin (6/2020 - 9/2020)

Is there anything else missing that any of you may recommend?
Posted 11/16/2020 9:39 PM (GMT 0)
hi,
it sounds like you are moving in a good direction to support your overall health.
Lyme is a whole-body problem ( maybe a whole body and mind problem in fact ) and as such needs a comprehensive approach
i find focussing on the following can have a hugely positive effect on your ability to move forward
-sleep
-diet
-exercise
-stress management

regarding the antimicrobials
you do not mention if you have confirmed lyme or co-infection diagnosis - but your symptoms seem to suggest Bartonella ( foot pain, fatigue and circulation issues )
most leading LLMD's treat Bartonella with 2 or 3 antibiotic combinations
typically Doxycycline(or other tetracycline), Rifampicin (or rifabutin) and Clarithromycin ( or Azithromycin - but often Clarithromycin preferered)
i do not know much about Keflex for Lyme or Bart - hopefully, it is proven effective for both Bart and Lyme and known partner well with Clarithromycin for Bart

oregano oil has some demonstrated ability to kill Bartonella persister cells so that seems like a helpful addition

ref supplements

i currently take a number of supplements and have tried dozens of them over the years, but cannot honestly say any have made a very big difference for me. i now take them as a kind of insurance rather than expect them to make a significant difference to my outcomes.
my main ones now are
vitamins A, B complex, C, D, E.
minerals, magnesium, zinc, selenium
others - Co Q10, Omega 3's

the only area I personally have found very helpful that you do not seem to have in the current protocol is herbs to support the immune system.
for me, this has been the thing that has helped the most so far - more even than antibiotics.
i take a combination of all the herbs in Stephen Buhner's latest lyme book - particularly the ones focussed on lowering cytokines and modulating the immune system.
i was stuck for years in a bad way until I started this aproach.
it has taken a while to gradually add each herb - but progress has been gradual and continuous so far.
Posted 11/16/2020 10:54 PM (GMT 0)

Garzie said...
hi,
it sounds like you are moving in a good direction to support your overall health.
Lyme is a whole-body problem ( maybe a whole body and mind problem in fact ) and as such needs a comprehensive approach
i find focussing on the following can have a hugely positive effect on your ability to move forward
-sleep
-diet
-exercise
-stress management

regarding the antimicrobials
you do not mention if you have confirmed lyme or co-infection diagnosis - but your symptoms seem to suggest Bartonella ( foot pain, fatigue and circulation issues )
most leading LLMD's treat Bartonella with 2 or 3 antibiotic combinations
typically Doxycycline(or other tetracycline), Rifampicin (or rifabutin) and Clarithromycin ( or Azithromycin - but often Clarithromycin preferered)
i do not know much about Keflex for Lyme or Bart - hopefully, it is proven effective for both Bart and Lyme and known partner well with Clarithromycin for Bart

oregano oil has some demonstrated ability to kill Bartonella persister cells so that seems like a helpful addition

ref supplements

i currently take a number of supplements and have tried dozens of them over the years, but cannot honestly say any have made a very big difference for me. i now take them as a kind of insurance rather than expect them to make a significant difference to my outcomes.
my main ones now are
vitamins A, B complex, C, D, E.
minerals, magnesium, zinc, selenium
others - Co Q10, Omega 3's

the only area I personally have found very helpful that you do not seem to have in the current protocol is herbs to support the immune system.
for me, this has been the thing that has helped the most so far - more even than antibiotics.
i take a combination of all the herbs in Stephen Buhner's latest lyme book - particularly the ones focussed on lowering cytokines and modulating the immune system.
i was stuck for years in a bad way until I started this aproach.
it has taken a while to gradually add each herb - but progress has been gradual and continuous so far.

Thank you for your reply!

I have a clinical diagnosis of Lyme/Bart, and it seems Bart is my main issue (my LLMD doesn't think my Lyme ia active)
Posted 11/17/2020 3:56 AM (GMT 0)
“ Clarithromycin, 2x per day
Keflex, 2x per day
DHEA, 1x per day
Oregano Oil, 2x per day
Grapefruit Seed Extract, 2x per day
Activated Charcoal (2 every AM)
AR Encap (4, 2x per day)
MAG SRT (2, 2x per day)

Have Taken:

Doxycycline (4/2020 - 9/2020)
Cefuroxime (4/2020 - 9/2020)
Mepron (Pulsed 4/2020 - 9/2020)
Tinidazole (Pulsed 4/2020 - 9/2020)
Rifampin (6/2020 - 9/2020)

Is there anything else missing that any of you may recommend?“

You were only on Rifampin for three months?

If you’re treating bart - I would expect to see Rifampin or Rifabutin in your protocol.
Posted 12/31/2020 6:10 AM (GMT 0)
Ginger can help circulation, recommended in Stephen Buhner Lyme protocol .
Posted 12/31/2020 2:38 PM (GMT 0)
horse chestnut for leg circulation also one should be on a minimum of 1OO billion probiotic daily while on abx
Posted 3/13/2021 6:28 AM (GMT 0)
Hi UAZip05,

Your symptoms sound almost exactly like mine! I was diagnosed with Bartonella and took a combo of 3 antibiotics at a time for a little over a year. My Bart numbers improved dramatically but I still have pain symptoms in feet, knees, upper back, and I know I have poor circulation. I am starting AR Encap tomorrow and really hoping it helps with the pain. Do you think this supplement helped you?
Because I have such similar symptoms to yours, I would love to know what worked the best for you and if anything has helped you decrease the pain.

I'm currently treating all naturally after finishing antibiotics, including taking herbals (i.e. A-Bart and Hottunyia(, homeopathic DesBio Bartonella series, various supplements, vitamins, and binders (Activated charcoal, liposomal glutathione, etc) to treat mold in gut.
Posted 3/13/2021 1:29 PM (GMT 0)
KatirKOcean2021,

Hi, and welcome to the forum! Just wanted to say in case you don’t know that symptoms from bartonella and mold overlap so much it can be hard to distinguish them apart.

I also get foot pain, leg weakness, and back pain. What helped me the most was getting out of mold exposure, taking Nystatin and Fluconazole and TUDCA Plus. I am now having these symptoms again really bad, because of mold exposure again.

Have you done ERMI tests to determine whether or not you are in a safe environment now? Have you taken any prescription antifungals?
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