Test results help

Hey medical nerd. Your post is a bit hard to follow so let’s start over. Your ANA is 1:40. What was your double stranded dna? It was positive, and it so what value? Finally, what do you mean your c peptide was positive? If the values are super low they can indicate type 1 diabetes. What was your value?

1:40 ana is not very high at all and most people w infections often have low positives. If your dsDNA is positive that *could* indicate something autoimmune.

I would see Dr K in Orange, CT. He will know if it’s lyme or something rheumatological. He will be better than any rheumatologist you’re gonna see

i also have ANA low positives test results
and sometimes dsDNA low positive also

as dcd says this is pretty normal when you have infections like Lyme and co-infections

from my own experience - I don't think there are any rheumatologists that are very useful for chronic Lyme - perhaps it's different if you are in the USA - but typically i find they are all of the camp of " if you have joint pain and swollen joints - its an auto-immune disease".
and most are in denial of chronic infection. if you think about it, their profession pretty much depends on this outlook.

i have met one head of a UK hospital specializing in rheumatic diseases who was big enough to admit that they did not know much about Lyme and suggested private testing as a way forward, and even they dodged prescribing antibiotics when it came back positive.

purpura or smaller petechiae can be many things - bart, babs, viruses - not very specific, unfortunately.

i don't read about low Alkaline phosphatase here very often - typically it seems more often to be a bit high with lyme and co-infections - but recently it came up under pyroluria - but that in itself is a bit of a rabbit hole.

dcd2103 said...
Hey medical nerd. Your post is a bit hard to follow so let’s start over. Your ANA is 1:40. What was your double stranded dna? It was positive, and it so what value? Finally, what do you mean your c peptide was positive? If the values are super low they can indicate type 1 diabetes. What was your value?

1:40 ana is not very high at all and most people w infections often have low positives. If your dsDNA is positive that *could* indicate something autoimmune.

I would see Dr K in Orange, CT. He will know if it’s lyme or something rheumatological. He will be better than any rheumatologist you’re gonna see

sry ill clarify as I'm a bit confused myself lol so my ana panel is 1:40 low I'll show test results below

ANA PATTERN Nuclear, Dense Fine Speckled A NL1
Dense fine speckled pattern is seen in normal
individuals and rarely associated with systemic lupus
erythematosis (SLE), Sjogren's syndrome and systemic
sclerosis.
DNA (DS) ANTIBODY 5 H (IU/mL) NL1
- IU/mL Interpretation
- < or = 4 Negative
- 5-9 Indeterminate
- > or = 10 Positive
-
F SM ANTIBODY <1.0 NEG <1.0 NEG (AI) NL1
F SM/RNP ANTIBODY <1.0 NEG <1.0 NEG (AI) NL1
F RNP ANTIBODY <1.0 NEG <1.0 NEG (AI) NL1
F CHROMATIN (NUCLEOSOMAL) ANTIBODY <1.0 NEG <1.0 NEG (AI)
C-REACTIVE PROTEIN 1.2 <8.0 (mg/L)
ALKALINE PHOSPHATASE 22 L 31-125 (U/L

dcd2103 said...
Hey medical nerd. Your post is a bit hard to follow so let’s start over. Your ANA is 1:40. What was your double stranded dna? It was positive, and it so what value? Finally, what do you mean your c peptide was positive? If the values are super low they can indicate type 1 diabetes. What was your value?

1:40 ana is not very high at all and most people w infections often have low positives. If your dsDNA is positive that *could* indicate something autoimmune.

I would see Dr K in Orange, CT. He will know if it’s lyme or something rheumatological. He will be better than any rheumatologist you’re gonna see

thanks for referral for dr.k I'll look Into it asap. I saw a dr. L in old lyme ct he was positive I didn't have lyme despite my very positive tests plus late stage symptoms saying there was no such thing as late stage or I would have exruciating RA and sent me on my way happily after bragging about how he was one of the 1st docs to ever work on lyme disease research smh

These values aren’t necessarily indicative of lupus or Sjogrens, unless you had the symptoms. The Ana is very low and dsDNA is indeterminate. Remember, an antibody doesn’t equal disease. An autoimmune disease process is much more than an antibody. People can walk around their whole life times with an antibody but not develop the disease. The process takes mobilization of the whole immune system, the antibody is just one marker. It’s best to go by symptoms, and use the markers as confirmation. If you were getting lupus rashes or had dry eyes and Sjogrens neuropathy, then it may be more indicative. This isn’t to say that one of these diseases couldn’t develop later, however.

Bottom line is these types of low-positive markers are often seen in infections. They can, however, also be seen in non-specific post-infectious autoimmune processes like I have, or like covid long-haulers experience. Teasing out the difference takes experience and can be a trial and error process. There’s no one better than Dr K at that

Would second RWs comments. C4/c3 is helpful in diagnosing lupus, and the avise is a great test.

What was your c-peptide level? That is potentially important

Oh, hm, that changes things then. EDS is highly correlated w autoimmunity, for reasons they don’t understand. Butterfly rash is an important clue too.

You def need to see a dr who understand this stuff. Not to bear a dead horse but I can’t emphasize it enough, Dr K is your man

There is a connection between CIRS and Ehlers-Danlos.

See here starting at 01:09:20 towards the bottom https://www.moldillnessmadesimple.com/mast-cells-and-mold-illness-with-dr-jill-carnahan/

Some really good stuff here in this article by Michael McEvoy, who is mentioned in the first link as the expert
https://metabolichealing.com/hyper-joint-mobility-eds-collagen-histamine-cirs-implications/