These forums are my home

I do check out the forum daily - or almost daily but this is the only forum I’m a member of.

Like many others, I first found this forum because I was scared and desperate for answers and ideas, after being failed by literally dozens of doctors. I think it makes sense to check often when we feel like we're not on the right path yet or need reassurance. Very few people can comprehend what we're dealing with who have not been through it.

A friend just texted to ask how I am, and I just stared at the text. The truth is: I'm in pain from another biliary tract blockage, but too immunocompromised to risk going for medical care, I have a sharp pain in my nose that I have not experienced before, my throat is sore from the dry air in my house this time of year but I can't use a humidifier because I fear mold growth, I have seasonal depression for the first time because this has been such a garbage year, getting out of bed and being cheerful for my kid are real struggles every day, my ovary hurts, my intestines are gurgling, I am slightly nauseated, and my partner seems to be developing a debilitating autoimmune disorder. But my text response is: "Just chugging along! How about you?" My point is that it's nice to have connections with people who understand.

I read here every day, but plan to reduce that soon. It's not good for the limbic system to read that much about illness. But I must say that it's very nice to be somewhere where people can understand the things we have been going through.

I guess me looking for answers made me become a little obsessed with searching for answers on this forums more or less lol I'm only a member of these forums and they saved my life kind of. Everyone Is so helpful and nice and understanding on here like it gives me hope. Mold cause ocd tendencies?? I've been exposed to mold past few weeks all over again I got better now this again. I feel like only the ppl on these forums understand us not even our own friends fam etc. And it's a great relief. I'll forever appreciate these forums and all the ppl on here .

saraeli said...
Like many others, I first found this forum because I was scared and desperate for answers and ideas, after being failed by literally dozens of doctors. I think it makes sense to check often when we feel like we're not on the right path yet or need reassurance. Very few people can comprehend what we're dealing with who have not been through it.

A friend just texted to ask how I am, and I just stared at the text. The truth is: I'm in pain from another biliary tract blockage, but too immunocompromised to risk going for medical care, I have a sharp pain in my nose that I have not experienced before, my throat is sore from the dry air in my house this time of year but I can't use a humidifier because I fear mold growth, I have seasonal depression for the first time because this has been such a garbage year, getting out of bed and being cheerful for my kid are real struggles every day, my ovary hurts, my intestines are gurgling, I am slightly nauseated, and my partner seems to be developing a debilitating autoimmune disorder. But my text response is: "Just chugging along! How about you?" My point is that it's nice to have connections with people who understand.

Yes this. ^^^^^

I do the same - do they really want to hear about my symptoms ?