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Lyme and breastfeeding

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Posted 1/10/2021 12:48 PM (GMT 0)
Hi it's me again! :D
My story (short):
I'm 23yo my son is 14 months old
Bull's eye rush in August last year, get amoxicillin for 21 days got a lot of symptoms mostly neurological. Symptoms are mild and they come and go. New ones appearing. Current symptoms: buzzing and pain in hand and feet, some muscle spasms, some brain fog, blurry vision sometimes and tinnitus. So, if you had lyme while breastfeeding or you know any LLMD who treat while breastfeeding could you please share your experience or send me an email? We are still in the weaning process and it's really stressful for both of us. Depressing for me because I always wanted to breastfeed him as long as he wanted to and I don't know what to do! Thank you ♡♡♡
Posted 1/10/2021 3:21 PM (GMT 0)
Sorry I don't have any experience with this.. I just looked a bit through 'Healing Lyme 2nd ed.' and did not see any mention of breastfeeding in the book (only pregnancy). You've probably already seen this from the website:

http://buhnerhealinglyme.com/transmission/breastfeeding/

Someone in the comment section mentioned that cordyceps may reduce milk production (I could not confirm this).

I read through your other posts (your English is great).. a couple of questions:

Would you still describe your symptoms as mild?

After amoxicillin, did you have a break before moving on to herbs? If not, you may want to take a few weeks off to get a 'baseline' (to see where you're at).

If you decide to continue with herbs, you may want to do so with a focus on herbs that modulate the immune system rather than the stimulatory ones. I would try removing cat's claw because it can be stimulatory. I would add Chinese skullcap (scutellaria baicalensis) and red sage (salvia miltorrhiza). You may also consider ashwagandha (withania somnifera).

Question for anyone who knows:

Is the immune system generally upregulated while breastfeeding?
Posted 1/10/2021 3:48 PM (GMT 0)
"Depressing for me because I always wanted to breastfeed him as long as he wanted to and I don't know what to do!"

Must be very difficult for you both. I'm no expert (only a man whose wife breastfeed his two daughters), but I think continuing to breastfeed as you had planned sounds like the better option. My basic feeling is that you are already in this together and you both need to minimize stress as much as you can. I also suspect that your breast milk benefits the baby's health more than it might hinder it.

Edit: Interested in hearing other opinions on this.. no longer comfortable being the first to respond smile

Post Edited (potsnpans) : 1/10/2021 9:08:33 AM (GMT-7)

Posted 1/10/2021 6:28 PM (GMT 0)
I would say my symptoms are mild... I'm a stay at home mom. I do all by myself, I walk like 5km daily carrying my baby everywhere. I sleep at nights (sometimes I wake up seeing some red and black dots but this only happens at night) I think that I over think a lot because most of the time I'm alone. When new symptoms pop up I start to over think a lot and get depressed (thinking that the treatment isn't working or something) but the symptoms aren't that bad, they are just new and scary. Well... after being on amoxicillin for 21 days I had a 3 months break. At that time I remember that my most annoying symptoms were: Numbness in different parts of my body, mostly in legs/feet, muscle spasm, feet pain, hand pain, brain fog, headache with burning sensation in my head. All of that symptoms were almost resolved. I still deal with numbness when I'm seating or lie in bed. I did an EMG and it showed that the nerves were damaged. But I think that since I'm on buhner protocol and some supplements things are getting better.
Posted 1/10/2021 6:40 PM (GMT 0)
I have no information regarding breastfeeding. I just wanted to offer some encouragement.

“ I think that I over think a lot because most of the time I'm alone. ”

“ When new symptoms pop up I start to over think a lot and get depressed (thinking that the treatment isn't working or something) but the symptoms aren't that bad, they are just new and scary.”

You’re not over-thinking. Mild symptoms can be very subtle but shouldn’t be ignored, IMO. Symptoms that come and go shouldn’t be ignored, either, IMO. That’s pretty much how chronic Lyme develops into a disabling illness. I suffered with come and go symptoms for years until a respiratory infection threw me off the cliff. That was almost 5 years ago, and I am still trying to get out of the pit.
Posted 1/10/2021 7:07 PM (GMT 0)
Thank you for answering! How can you tell if it's early lyme or chronic lyme? I still can't understand that... that's what depress me too that I don't know if I'm doing the right treatment.
Posted 1/11/2021 2:46 AM (GMT 0)
If you had a bullseye in August, it sounds like early Lyme to me. The questionable issue from what I recall from your other posts was the possibility that you may have had bartonella before now.

I know it’s scary, but there’s no need to feel depressed about the uncertainty. Truly, there’s no absolute right or wrong treatment. The fact that you did do and are doing something is important. You’re not failing. You’re working your way and feeling your way through this, and you’re not alone.

Perhaps even more important than treating the infections, is staying positive, calm, and hopeful for that sweet baby!☺️ Love yourself, treat yourself well, and nurture your body, soul, and spirit so that positive emotions emanate from you to your little one.
Posted 1/11/2021 8:32 PM (GMT 0)
Thank you so much!! I really try to focus on the positive things that I have in life. My baby is a blessing and I'm so thankful to be his mom. He gives me strength. ♡♡♡ Btw... just received my western blot test and every band was negative. Not a single positive :/ not sure what that means. Also really high CD3-CD16/56+CD57+ (should be between 2 and 57 mine are 125) guess because of some herbs like cat's claw. Thank you again. I'm so glad I found this forum 💖💖💖
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