Hi. I was hoping to find advice about
Lyme and Lyme doctors in Mississippi. I have had no luck with finding anyone to help me. There are only two doctors that have good reviews dealing with Lyme and they are both several hours away.
I have been sick for quite some time and have literally been tested for everything. I have a lot of weird symptoms and lab findings, but no diagnosis and I just keep getting referred to different doctors. So far, I have been told I have/am insulin resistant, POTS, abnormal lipid panel, neuropathy, elevated CRP, mercury was found, glossitis, burning mouth/geographic tongue, carotidynia. The list goes on and on. I am being treated for acid reflux (max dose of meds and still have symptoms). I am having agonizing stomach pains here recently and have an upper and lower scheduled for next week. Chron's is suspected due to rectal bleeding and constant diarrhea, nausea that comes and goes. My platelet clotting time is a little out of normal range, I am slow to heal if I get a cut or something. I have petechiae or something that looks like it all over. I have swollen lymph nodes. Thyroid nodules and throat pain. Ear pain. Muscle twitching and spams, lately I have had a lot of twitching around my right eye and lips and even my tongue. I have never ending joint pain and sometimes muscle pain. Muscle weakness. I have had my gallbladder removed and get cavities no matter what I do. (I have had to have 3 root canals!) ((I had to have my first root canal with I was about
15.)) I get episodes of extreme itchiness, like almost a bite or stinging sensation. I have light sensitivity always, but sometimes its so bad sunglasses don't help. I have had extreme neck pain for years and years resulting in X-rays and mir's and no one can find anything wrong. I have tingling/numbness in my fingers. I had an ultrasound on swollen lymph nodes under my arm and the technician asked me if I ever had cat scratch fever or rmsf. Lately I have started having pressure in my head and no one can tell me why. I have had tremors where it felt like my body was vibrating...telling anyone this will get you some crazy looks! I was referred to a neurologist and he saw the twitching and agreed to do a full work up...he found nothing. I was finally tested for Lyme by LabCorp and it was negative. I was referred to an ENT for thyroid nodules and throat pain...he was the one who said I had Carotidynia, geographic tongue, and glossitis all benign conditions according to him. When pressed to find out if these conditions could all be related and telling him I was in pain he snapped and told me I was being demanding and he thought it best to end our patient/physician relationship. He was very rude and said he believed everything I had going on was due to anxiety. He was an absolute jerk but moving on....now I have been told to see an infectious disease doctor but I don't know where to start. The one I was referred to has one review online and it is regarding Lyme and how he didn't believe Lyme was in MS. On the questionaire for Lyme I scored 109! I hope I explained what I have going on well and didn't ramble too much. It's just a lot.
OH! I almost forgot, my NP wanted me to try a detox (pack of 8 pills) and I didn't make it to the second pack. My lymph nodes swelled all over my body and I felt sore and couldn't move, I developed a crazy rash/blister looking spot and two more large red bumps on my neck and hand. I also have a cyst that literally comes and goes in the same spot on my arm. Please tell me I am not going crazy. Has anyone else experienced these things and had a negative test result. (Ignex is a little out of my price range at the moment, but hope to get that done soon.)
Any advice or help of any kind would be much appreciated!
Post Edited (adbms) : 2/4/2021 10:02:15 AM (GMT-7)