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Posted 3/31/2021 1:21 PM (GMT 0)
Can someone send me a list?


I just read that 2016 WaPo article saying not all llmd are the same. How can you tell?

Thank you!!!
Posted 3/31/2021 1:24 PM (GMT 0)
I live in nyc and there are no good ones in the city itself. Frid is the only one and i've heard she's turned to being all about the $$$$$. She does do immunotherapy tho like IVIG and exosomes which is good.

Raxlen used to be here but moved to NJ. Haven't heard much about him.

If you're willing to travel to CT. Dr Katz in Orange, CT is THE BEST.
Posted 3/31/2021 2:10 PM (GMT 0)
Thanks—

I’m pretty surprised that there isn’t anyone in NYC.

I’m pretty sure I caught Lyme in my local park.
Posted 3/31/2021 2:12 PM (GMT 0)
Dr Horowitz is upstate and he's one of the best, but huge waitlist
Posted 3/31/2021 2:30 PM (GMT 0)
I did read Dr. Horowitz’s book.

He seems very reasoned.

This is that WaPo article:
https://www.washingtonpost.com/national/health-science/it-was-one-little-bite-why-couldnt-i-recover/2016/04/01/27d3f2aa-e554-11e5-bc08-3e03a5b41910_story.html

It struck me that the Dr. #2 she lists gives a similar protocol to one of Dr. Horowitz’s — but I guess it is more about gradually adjusting the dosage and supplements to be tolerable.
Posted 3/31/2021 4:25 PM (GMT 0)
here is the original:

https://www.researchgate.net/publication/289495392_bitten_a_patient_with_tickborne_disease_struggles_to_find_the_right_provider

Who is Dr 3? If it were Jemsek wouldn't she be able to name him? It says "The names of the physicians mentioned in this article were withheld to protect their privacy."
Posted 3/31/2021 4:28 PM (GMT 0)
Also, I believe this is the pricey 50K Lyme treatment center where all the celebrities go on Long Island after they get Lyme in the Hamptons:

https://nycim.com
Posted 3/31/2021 5:23 PM (GMT 0)
It doesn’t sound like DrJ to me
Posted 3/31/2021 9:13 PM (GMT 0)
So... who IS a good nyc metro llmd....

Jemsek is the $50k one (!) — anyone who is not quite that high?
Posted 3/31/2021 11:59 PM (GMT 0)

ArrUpstate said...
So... who IS a good nyc metro llmd....

Jemsek is the $50k one (!) — anyone who is not quite that high?

I see Dr J and he doesn’t cost that much - not even close .

I’m thinking maybe that is the cost for IV abx if insurance doesn’t cover?
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