Round 2 Disulfiram Issues

Well, I had posted a while ago in the original DSF topic about my plans for a second round of DSF after going five months without any Lyme Rx or Herbal protocols. Around February I started to feel my old Lyme sx start to return so my LLMD and I decided to retry DSF again. I started a little more aggressive than last time with 125mg for a few days, then 125mg twice a day for a week or so before getting back to 375mg.

I started to see some of my returning sx diminish a bit.... then on April 18 I had a second syncope blackout. This time while at a Sunday breakfast at my favorite local diner. I was carried out on a gurney for a sleepover at my local hospital with no heart attack symptoms detected again. This was very similar to another episode last June when I had ramped up to 500mg DSF.

I brought up the DSF common connection to both blackouts to my PCP, LLMD and Cardiologist. I had research that DSF side effects could cause people with heart disease to faint, but that was if alcohol was taken while on the drug. So, absent of any drinking, DSF alone should not have caused the episode. My LLMD passed the decision on to my cardio if I should continue with DSF. My cardio now thinks that it's Lyme Cardisis that may have caused both episodes, and wants me on a 24 hr event monitor for a month, then check the results, and do an Echocardigram.

Based on the Lyme Cardisis possibility my LLMD wants me back on IV Rocephin. But that's a big commitment and I couldn't work, and would be physically limited for a good duration. I want to wait for 30 days to better decide on IV, and in the meantime I'll be on Bicillin IM shots. I had the heart monitor started today, and the Bicillin is in the fridge waiting for first shot this weekend.

All this was on top of a separate issue starting with a UTI treated by my PCP, that turned into a collapsed bladder caused by a prostate condition now under investigation by a urologist. Not a good past 30 days I must say.

Post Edited (tickbite666) : 5/14/2021 6:55:44 AM (GMT-6)

tickbite666,

I am so sorry you have been going through a rough time. I can only imagine how disappointed you must have felt when symptoms started coming back. Praying all will go well and you will get a good report back from the cardiologist. I hope the bicillin will help without any side effects or herxing..

Did you treat bartonella, too, or only Lyme?

Wow!! So sorry. I don’t know what to say. Reading your post about carditis and then UTI and bladder and prostate made me wonder if it’s bart rather than Lyme acting up. Bartonella can also cause carditis. It’s not just Lyme. Search pubmed for “bartonella carditis.” There’s more in veterinary literature than human. Not enough research has been done on bart in humans. I believe Buhner said in his bartonella book that any heart valve issue - think bartonella. He said it affects the entire vascular system.

WBF, I had also considered Bart first when I started with the bladder problems and brought it up with my LLMD as well. My cardiologist said my heart muscle was strong, and thinks its an electric signal issue.

I'll bring up bart again in a few weeks, but for now its 3 more weeks of Bicillin IM shots, and schedule my prostate procedure with another sleepover at my local hospital. With all this crap happening all together I was struggling to decide what to treat first. It was tough to try to fix the plumbing if the roof was about to collapse first.

Girlie, yes I did post my treatment list a while back, but now it's a lot longer. I try to take these setbacks in stride the best I can. Good luck with your next call with Dr J.

later

Thanks RC,

I won't have much more to add either, except for the sore glute I've had all day from the shot. Let's see if Bicillin pisses off some of the bugs in the mean time.

Good night all

tickbite666,

“It was tough to try to fix the plumbing if the roof was about to collapse first.”

- LOL!! That’s great you can still have a sharp-witted sense of humor about all this.

bumping up to provide updates later tonight

tickbite - sorry that you are still dealing with lyme and bart after extensive treatment.


Re: prostate. Have you thought about going to the Prostrate cancer forum...for advise there?
Wouldn't want you to miss something.

Please keep us posted tickbite, so sorry to hear all of this is happening to you.