My next appt with DrJ

Let us know what he says when you talk to him.

Alxander said...
Hi Girlie,

You could ask my mail for the clinic recommendation for the vaccine.
It was confirmed 2 weeks ago from a phone apt with K.F that the clinic still do not recommend the patient to get the vaccine and if you are to get it anyways, to get it on a OFF week, and to have abx the week after.

Please let us know what dr J himself tells you.

Interesting!

When I first discussed this with dr J - he wasn’t in favour of the vax - one reason was because there were no longitudinal studies to show the vax is safe.
And at that time he thought there was acceptable treatment(s)

Alxander - so I’m assuming them recommending that you take abx after the vax - they are saying that it could cause an uptick in Lyme symptoms....

Ugh

Thanks Alxander

Haru15 said...
Is Dr J healing forum act JDB15... Is that who you are referring to ?

I don’t know what you mean?

“Forum act JFB15”

What is that?

Dr J is an Infectious Disease Dr who has a Lyme Treatment clinic

Bailey said...
I spoke with my dr J in February and he was very against me getting the vaccine. He instead prescribed me a prophylactic drug to prevent COVID.

Which one? I'm not aware of any approved substances that "prevent" COVID. Then again, I'm not a healthcare provider. So, I'm interested to learn more. Is your doctor an M.D.?

Ivermectin hasn't been approved for the prevention or treatment of COVID-19, just so you know. That doesn't mean it can't or won't work. Maybe it does. I have no experience using it. However, I'm adding this comment, in case people think there's an approved drug to "prevent" COVID-19 -- there isn't.

Dude: “ Ivermectin hasn't been approved for the prevention or treatment of COVID-19, just so you know. “


FWIW - many of the abx “we” take for Lyme are not approved for chronic Lyme either.

The Dude Abides said...

Girlie said...
FWIW - many of the abx “we” take for Lyme are not approved either.

I was trying to be factually accurate, which is why I worded my comment -- my full comment -- as I did. Did I violate a forum rule or state something incorrect?

No - you didn’t - sorry if my post made you feel that way.
Was just pointing out that many LLMD’s and LLNDs have protocols that aren’t approved / following the CDC guidelines.. etc and they are effective.
So could be the same for covid -

Dmitry said...
btw, not only iver(hype kind attention) is active against covid, but zith, lactoferin, bactrim, doxy, zinc too

Good to know.

I wonder why/how antibiotics work on a virus?
Do some abx reduce inflammation and this helps the immune system take care of it?

Girlie,

I just saw your post on tickbite’s thread where you said that after 6 years of treatment, you’re fed up.

I wasn’t going to voice my opinion, because I don’t want to come across the wrong way, but I decided to go ahead and say it. Please know that I say this in love.

Disclaimer:
Treatment or not is a very personal thing that involves far more nuances than can ever be gleaned by others no matter how well we think we know someone else. So what follows is just my personal impression.

When you started talking months ago about skipping your abx to see what would happen, I knew you weren’t talking to Dr. J about it. I had a feeling that was not a good idea. I just really hate to see you come this far and lose anything.

Maybe you should ask yourself am I willing to stay on a maintenance protocol indefinitely if that’s what it takes? I’m not saying you will need that, but my impression from what you say about Dr J is that he knows what he’s doing. There’s a reason he didn’t have you stop treatment yet. My unsolicited advice is to get back in the saddle, get back on the last treatment instructions he gave you, and fess up to everything when you talk to him again.

I had a doctor years ago who told me to do something I thought was crazy and unreasonable. It was obvious to him that I was stubborn and didn’t want to follow his orders. He got in my face, pointed his finger at me, and firmly but with genuine concern told me “walk the line.” I caved and verbally told him, “okay,” and I did what I was told. It turned out to be life changing for me, and I am forever grateful.

Final disclaimer:
This post is coming from a very stubborn and opinionated person who has not followed doctors orders since the incident I just told about.

Girlie, It took me a real long time to clear the brain fog and cognition issues. I can't put a finger on what treatment final resolved my brain inflammation sx, or it was just the cumulation of treatment that finally worked.

Have faith.... it will get better.

Girlie said...
I called for an appt as I haven had one since October .

The receptionist said it is an in person one this time - I said “um.. NO”
I’m not vaccinated plus there are strict rules crossing the border. I believe I’d have to quarantine in a Toronto hotel for a week or two before flying back to BC.

Dr J’s stance on the vax was not to get one - he may have a different stance now that it’s been 3-4 months of vaxing and there haven’t been significant adverse events...

But I want to know if he thinks it will affect my immune system and cause an uptick in Lyme symptoms

She ended up booking me for a phone appt in a few weeks.

I posted the following in a different place this morning and now here because it may help with the decision about vaccination. Maybe it does not matter as much as we think. Everyone is getting vaccinated because we have been told we will be safe from Covid and the unvaccinated are at risk. There is no way to evaluate what we are being told especially now that the CDC has announced they will no longer be reporting the number of breakthrough cases other than people who die or who are hospitalized after full vaccination. I was encouraged by a recently completed detailed large study that compares the vaccinated breakthroughs to Covid cases in the unvaccinated in a given population (280 nursing homes across 21 states). Since there were fewer unvaccinated people, the comparison will make more sense if you only compare the percentages (in parentheses to the right of the number). The elderly are the most vulnerable so it would be expected that the the number of unvaccinated elderly who become infected would dwarf the number of vaccinated elderly who become infected. That is not the case.

Link: https://www.nejm.org/doi/full/10.1056/NEJMc2104849?query=recirc_mostViewed_railB_article

Link to the supplementary appendix which includes a comparison of the vaccinated/unvaccinated healthcare employees to the residents:
https://www.nejm.org/doi/suppl/10.1056/NEJMc2104849/suppl_file/nejmc2104849_appendix.pdf

I got covid. I took mepron and it went away.

The problem was that when I stopped the mepron it would come back or I would get re-infected. It took repeated reinfections before I really built immunity to it. I'm unsurprised that there are "breakthrough" infections after vaccination.