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Posted 5/29/2021 8:43 PM (GMT 0)
You know it seems to me the ppl who catch lyme disease/co infections early enough are lucky enough to be treated and completely go bk to normal and are fine. Them it seems some of us who never even knew we had lyme or etc had it for many years and arent so lucky, seems like it never stops despite treatment and detox. Like am I right? Do u guys think we are damaged from the infections because we've had it so long untreated and that's why it takes us so long?
Posted 5/29/2021 8:52 PM (GMT 0)
Just curious to know how long anyone was on antibiotics/or buhner herbs before they were actually able to work again, get back to going out in the sun and walk , lead a normal life without too many symptoms? Did anyone relapse after treatment and how long after the treatment did u relapse?

Post Edited (MedicalNerd) : 5/29/2021 2:55:11 PM (GMT-6)

Posted 5/30/2021 2:37 PM (GMT 0)
I suspect you have not gotten many replies just because this is such a hard question to answer. Everyone's story is so different, which makes it frustratingly hard to know what to expect. For me, the question is complicated because antimicrobial treatment only ever made me feel worse, so I feel about 85% better now, 5.5 years after being diagnosed and starting herbal treatment, and there are many types of work I could do now reliably, but I got to this point years after stopping direct antimicrobial treatment. (I got diagnosed in 2016, did six months of Byron White, then over a year of Buhner core, then a brutal DesBio series kit, then one rife treatment.) I had Lyme for about 14 years before being diagnosed and treated, most of which I was perfectly healthy. I've probably had Bartonella in my system my whole life because I had lots of rescue cats as a child. Yesterday in a normal conversation, I said "when I was sick" in the past tense, for the first time, as though maybe I no longer identify as sick? I don't know. I still have stuff wrong, but so does everyone else I know, so it's hard to say to what degree I'm more sick that the average human my age.
Posted 5/30/2021 2:48 PM (GMT 0)

saraeli said...
I suspect you have not gotten many replies just because this is such a hard question to answer. Everyone's story is so different, which makes it frustratingly hard to know what to expect. For me, the question is complicated because antimicrobial treatment only ever made me feel worse, so I feel about 85% better now, 5.5 years after being diagnosed and starting herbal treatment, and there are many types of work I could do now reliably, but I got to this point years after stopping direct antimicrobial treatment. (I got diagnosed in 2016, did six months of Byron White, then over a year of Buhner core, then a brutal DesBio series kit, then one rife treatment.) I had Lyme for about 14 years before being diagnosed and treated, most of which I was perfectly healthy. I've probably had Bartonella in my system my whole life because I had lots of rescue cats as a child. Yesterday in a normal conversation, I said "when I was sick" in the past tense, for the first time, as though maybe I no longer identify as sick? I don't know. I still have stuff wrong, but so does everyone else I know, so it's hard to say to what degree I'm more sick that the average human my age.


Thanks lots for replying, as it's kind of a hard question. Its given me some insight though and some hope,as my main concern is being able to work again and getting back my life and being half way normal at least. Antimicrobial made u feel worse? Sida acuta is the one herb that made me feel I was dying, it was too potent. In your opinion was the byron white formula effective for u?
Posted 5/30/2021 3:59 PM (GMT 0)
I think Byron White was helpful in that it stopped a process of decline. I took A-L Complex and NT Detox. I liked its simplicity, and being able to increase dosages slowly because it's a liquid. It's also rare that I'm able to tolerate every ingredient in a multi-ingredient formula, so that was lucky. It was the first thing I tried with my first LLMD who diagnosed me. At the same time, he put me on herbs for gut dysbiosis (berberine, artemisinin, olive leaf, black walnut, wormwood), magnesium, daily Epsom salt baths, probiotics, and glutathione, which I'm mentioning because those might have had an effect as well. I stopped the Byron White Formulas after six months and switched LLMDs because I was impatient to make more progress, but it's possible that more time, higher doses, and/or additional formulas added for coinfections might have been helpful.
Posted 5/30/2021 4:40 PM (GMT 0)
I felt well enough to finally go back to work after 5 1/2 years of treatment.
Posted 5/30/2021 5:59 PM (GMT 0)
In early 2015, I got back to about 85% and was coaching full-time (college) under with pressure of recruiting, performances, travel, long hours, etc... What seemed to get me there was Bicillin. That lasted 18 months before heart surgery, which was not Lyme related.

This all started in 2002, and I I didn't get diagnosed until 2013. But after a few real bad years, in 2005 I started feeling better, still not knowing what it was. After a lot of stress in 2011, it all came back and took about 3.5 years to get better again. It just felt different then - like something new has gotten in the mix.

But I have gotten better but since the surgery it has never been the same. It just seems like seeing some people get better after many years of this means it can be done. Finding exactly what to treat, getting through the treatment and be able to use what is needed is the hard part. Again, we can see on this site it can be done.

As mentioned in another post, it's the wearing down over the years that makes it a battle - mentally and physically.
Posted 5/30/2021 6:52 PM (GMT 0)

saraeli said...
I think Byron White was helpful in that it stopped a process of decline. I took A-L Complex and NT Detox. I liked its simplicity, and being able to increase dosages slowly because it's a liquid. It's also rare that I'm able to tolerate every ingredient in a multi-ingredient formula, so that was lucky. It was the first thing I tried with my first LLMD who diagnosed me. At the same time, he put me on herbs for gut dysbiosis (berberine, artemisinin, olive leaf, black walnut, wormwood), magnesium, daily Epsom salt baths, probiotics, and glutathione, which I'm mentioning because those might have had an effect as well. I stopped the Byron White Formulas after six months and switched LLMDs because I was impatient to make more progress, but it's possible that more time, higher doses, and/or additional formulas added for coinfections might have been helpful.

thanks again lots of hope here,I'm gonna go ahead and give the byron white formula a try. I also wanted to try black walnut bt am allergic to nuts big time as well as any fruits veggies because of pollen allergy or (birch tree pollen) and our bodies mistake it as an antibody for these allergens even though it's not so I never know what's going to send me into anaphylaxis shock lol I been having gut issues for a few years and honestly I've never been the same since, my stomach is always bloated , gallbladder pancreas issues, and I've never been able to really gain weight since.im honestly going to try all the things u mentioned and will know how it goes, I have a feeling it's just what I need.
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