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Need help stopping nuerapathy in brain

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Posted 6/3/2021 5:40 PM (GMT 0)
Idk what else to do besides epson salt baths , and activated charcoal, and the bottle of burbur pinella I just gt that I havnt tried yet. I'm really scared and getting panicky and depressed over this. I only took clindo for 7 days and been off it 2 weeks and I'm still continuing to herx with the neuropathy like is that even possible?had anyone else had nuerapathy this long after pulsing or stopping the abx? How can I stop this burning
Posted 6/4/2021 12:49 AM (GMT 0)
Did you treat other infections/coinfections st the same time? Sometimes when you only hit one at a time another take the opportunity to flare. I think bartonella and babesia both feed on your oxygen so when one gets treated the other flares.
Posted 6/4/2021 12:55 AM (GMT 0)
What do you mean neuropathy in the brain? Where exactly is the burning?
Posted 6/5/2021 12:30 AM (GMT 0)

dcd2103 said...
What do you mean neuropathy in the brain? Where exactly is the burning?

My scalp brain and parts of my head feel its burning on fire also my chest is like a heavy pressure sensation and burning.
Posted 6/5/2021 12:43 AM (GMT 0)

Bailey said...
Did you treat other infections/coinfections st the same time? Sometimes when you only hit one at a time another take the opportunity to flare. I think bartonella and babesia both feed on your oxygen so when one gets treated the other flares.

I'm only treating babs as of right now bt all the burning sensations I'm thinking is more bart? The panic and heavy chest pressure I believe and the sweats and flushed feeling I believe is babs also the fear feeling is babs I beleive. I know I need to take care of bart and babs first before lyme . I honestly dont care about the lyme rn because progressed babs and bart make me feel 100 x worse. I took clindo for 1 week stopped for 2 weeks now and the burning persisted ever since until I took burbur pinella just 1 drop, how awesome. The panic attacks and sweats still come on suddenly. I have a question, so if I detox a d use the infrared sauna will I herx a lot less?
Posted 6/5/2021 1:22 AM (GMT 0)
“ I know I need to take care of bart and babs first before lyme .“

No you don’t.
When you treat bart and Babesia, you ARE treating Lyme.

When you treat babesia with an anti malarial - you also take at least one antibiotic with it. ( that will treat lyme)
Same with Bartonella - if you take Rifampin or Rifabutin or Levaquin - you will add a second antibiotic to it.
Posted 6/5/2021 2:14 AM (GMT 0)

Girlie said...
“ I know I need to take care of bart and babs first before lyme .“

No you don’t.
When you treat bart and Babesia, you ARE treating Lyme.

When you treat babesia with an anti malarial - you also take at least one antibiotic with it. ( that will treat lyme)
Same with Bartonella - if you take Rifampin or Rifabutin or Levaquin - you will add a second antibiotic to it.

I'm only on clindo which only treats babs. Doxy is used for lyme, and bart can be treated with doxy bt not as effective, I gt what ur saying about adding antibiotics in there, bt I'm starting to question whether it's making other infections flare up or if that's a possibility
Posted 6/5/2021 2:17 AM (GMT 0)

Girlie said...
“ I know I need to take care of bart and babs first before lyme .“

No you don’t.
When you treat bart and Babesia, you ARE treating Lyme.

When you treat babesia with an anti malarial - you also take at least one antibiotic with it. ( that will treat lyme)
Same with Bartonella - if you take Rifampin or Rifabutin or Levaquin - you will add a second antibiotic to it.

I just figured it would be easier to at least tame 1 or the infections and target it z eradicate it instead of going crazy with all the different antibiotics, I'm not a fan of antibiotics as my gut was destroyed over the years u know, I've been on doxy on and off though before I knew I had babs
Posted 6/5/2021 6:32 AM (GMT 0)
“ I'm only on clindo which only treats babs. Doxy is used for lyme, and bart can be treated with doxy bt not as effective, I gt what ur saying about adding antibiotics in there, bt I'm starting to question whether it's making other infections flare up or if that's a possibility“

An antibiotic should be paired with the antimalarial.

Doxy alone is not standard for Bartonella.
Posted 6/5/2021 6:36 AM (GMT 0)
“ I just figured it would be easier to at least tame 1 or the infections and target it z eradicate it instead of going crazy with all the different antibiotics, I'm not a fan of antibiotics as my gut was destroyed over the years u know, I've been on doxy on and off though before I knew I had babs “

Maybe you should try herbals instead - if you can’t take antibiotics
Posted 6/5/2021 9:50 AM (GMT 0)

MedicalNerd said...

dcd2103 said...
What do you mean neuropathy in the brain? Where exactly is the burning?

My scalp brain and parts of my head feel its burning on fire also my chest is like a heavy pressure sensation and burning.

My GP sent me to a cardiologist for my heavy pressure and burning sensation in my chest. That began my Lyme journey. When I mentioned to the cardiologist that I have Lyme...she sent me to a LLMD. Thank God the cardiologist had heard about Lyme impact on the heart...which I think negated an unnecessary "chest exploration"

The "issues" I was having with my chest are gone...BUT....BUT....they have moved to my head. The feeling you described was intense at first...but it has lessened over time. When I sneeze or cough hard...I get this "feeling" in my head. When I bend all the way over to pick something up...I get this "feeling" in my head. I guess coughing/sneezing/bending over...is like a change in barometric pressure...which causes this? Anybody else want to chime in?
Posted 6/5/2021 11:34 AM (GMT 0)
If I were in your situation, in addition to your treatment, I would take 300mg of Vitamin B1 (thiamine) daily for 2 days, then increase to 500mg for 2 days, then 700 for 2 days, and continue to increase until relief or I got to 1.6 grams.

It seems like no one has enough thiamine, especially us.
Posted 6/8/2021 12:47 PM (GMT 0)

Georgia Hunter said...
If I were in your situation, in addition to your treatment, I would take 300mg of Vitamin B1 (thiamine) daily for 2 days, then increase to 500mg for 2 days, then 700 for 2 days, and continue to increase until relief or I got to 1.6 grams.

It seems like no one has enough thiamine, especially us.

thanks, what exactly does thiamine do for us, I've heard of it bt not exactly sure of what it does for us. And right many ppl are low on thiamine it seems.
Posted 6/8/2021 1:17 PM (GMT 0)

MedicalNerd said...

Georgia Hunter said...
If I were in your situation, in addition to your treatment, I would take 300mg of Vitamin B1 (thiamine) daily for 2 days, then increase to 500mg for 2 days, then 700 for 2 days, and continue to increase until relief or I got to 1.6 grams.


It is one of the many things many of us are deficient of. It helps increase bacterial and viral turnover and for me, it increases the number of times I urinate per day. IMO, it alters GI flora. It's been very promising for fibromyalgia patients but only in doses of 1.6 grams per day which is huge. I've taken that much, no issues for me at all and briefly improved sleep. Almost everything briefly improves my sleep though.
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0013616

Thiamine levels are directly related to tryptophan/niacin levels. Many of us have tryptophan availability issues.
https://pubmed.ncbi.nlm.nih.gov/25253514/

Neuropathy is caused by increased oxidative stress. If you want to decrease oxidative stress, you can increase antioxidant levels OR decrease foods that are causing you oxidative stress. For most of us, the food we are eating is increasing oxidative stress. I use ears ringing as an indication of my oxidative stress levels. Some foods cause my ears to ring, others don't. Sometimes any food does it. Hydration and physical activity play a role too. The food we eat increases the permeability of our intestinal lining which allows cellular debris, ammonia, and/or pathogens to penetrate to our blood stream. Our immune system starts cleaning them up but is overwhelmed and this causes oxidative stress. Different foods cause larger openings in our GI tract for absorption.
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