Heat intolerance

On antibiotics tje heat kills me, I'm in CT and it's nearly 90 already lol. When I was on buhner herbs I was oddly able to tolerate the heat and mugginess, just a thought. I swear I'd rather start abx when summer ends tbh, bt I dont want delay my treatment, bt the heat nearly kills me even with the ac it still feels hot, like does this happen to anyone else where the ac isnt even enough sometimes?

The heat has been killing me lately too. I keep having to change my sheets from sweating in my sleep. It's awful.

MedicalNerd - I posed that question incompletely. When the heat gets to you, do you feel other things like dizziness, fatigue, etc... I ask because the heat has done that to me before, and after being in heat or sun I often have to lay down I'm so tired. And sometimes I would get a little dizzy or off balance. Just wondering if it is more than feeling really hot.

I had bad heat intolerance for about 8 years, this is partly what led to my MS misdiagnosis. We had a heat wave in 2012 and my left arm went numb and stayed numb. I would slur my words, forget words, get spasms only on my left side, tingling, numbness, nerve pain all down my left side, couldn't walk in a straight line, severe fatigue, and I felt like I would lose 100 IQ points when I went outside. At the worst of it, right before I was diagnosed with Lyme and Bart, I left my apt to walk to Target 0.5 mile away and I could not remember how to get there. I had bad tremors in my legs at the end of the walk.

I currently live in NC and I am now fine in the heat, which I never would have imagined possible. All those symptoms are gone, since last summer.

When I could run in the heat in the past I would have to put ice in my sports bra and hat and even on my commute to work on the train I brought small ice packs to put in my bra. I thought it was something I would have to live with for the rest of my life. People with MS wear cooling vests and I was thinking about buying one. It was all from Bartonella, I believe.

I think once you kill enough of the bacteria it will go away. I do get some flu-like symptoms now if I just sit in the sun a lot (run down, achey), but that is sporadic and I think it's just from whatever Lyme bacteria I have left.

Meeical Nerd - As orbiting around mentioned, it could (should) go down treating Lyme, coinfections, etc.... It got better for me for a long time but has recently returned with other symptoms.

You've mentioned your long-term frustrations trying to find an answer to all this, so I don't mean to make it sound simple. We all know it's not. I get very, very frustrated, down about all this for so many years, but I know the only thing I can do is vent when needed then get back to trying to find an answer. There really is no "good" time to treat as it can cause you to feel so much worse while doing so. But I hope you keep trying and find an answer.

orbitingaround said...
I had bad heat intolerance for about 8 years, this is partly what led to my MS misdiagnosis. We had a heat wave in 2012 and my left arm went numb and stayed numb. I would slur my words, forget words, get spasms only on my left side, tingling, numbness, nerve pain all down my left side, couldn't walk in a straight line, severe fatigue, and I felt like I would lose 100 IQ points when I went outside. At the worst of it, right before I was diagnosed with Lyme and Bart, I left my apt to walk to Target 0.5 mile away and I could not remember how to get there. I had bad tremors in my legs at the end of the walk.

I currently live in NC and I am now fine in the heat, which I never would have imagined possible. All those symptoms are gone, since last summer.

When I could run in the heat in the past I would have to put ice in my sports bra and hat and even on my commute to work on the train I brought small ice packs to put in my bra. I thought it was something I would have to live with for the rest of my life. People with MS wear cooling vests and I was thinking about buying one. It was all from Bartonella, I believe.

I think once you kill enough of the bacteria it will go away. I do get some flu-like symptoms now if I just sit in the sun a lot (run down, achey), but that is sporadic and I think it's just from whatever Lyme bacteria I have left.

God bless u for taking the bus to work like that, I've been there done that and almost dropped so I know how that goes. I was sus8about bart doing this, as I read bart infections also make your veins bulge out which has been an issue also. In the sun Forget it, there my veins go bulging out even more, ppl literally asked if I did drugs because of my veins smh. Also with bart theres increase nuerapathy in the sun and makes me feel like its 100 degrees out even though it's only like 77

"my doctors were idiots as they checked my thyroid for 8 years straight with negative and normal results even though I had tons of hyperthyroidism symptoms, but they not once thought it could be lyme or bart babs etc."

A lot of us have (had in my case) thyroid issues along with tick infections. Its also a catch 22, as many with chronic conditions prob have some immune imperfections to begin with.

And the confusing part: Hashimoto which is hypO has hypEr symptoms in the beginning and even later on; they BOTH include general anziety and heat intolerance.

Many times treating the infection will correct the thyroid issues, but thats not always the case.

Any many thyroid symptoms are the same as tick infection symptoms, so besides lab work, its hard to know the cause till you start treating one or both.

And as far as lab work goes, infections can cause reverse T3 (hypo even with good TSH levels). Most conventional Drs dont know what RT3 is, and dont test it.