Endo retired. Crossing my fingers I can train in the replacement Dr., EDIT: I partially did

Rant- and I need to universe to cross its fingers for me.

Finding a conventional Dr who'll flexibly manage a thyroid disorder is hard to find. They're so swift to make you hypo again without listening to you. I cannot function properly while hypo.

Took me years to find one, 12 years ago. My just -retired endo worked pretty well after a while - listened and learned from knowledgeable patients vs ignoring them. Then the soon-to-retire notice was made. Said his younger college could manage my thyroid condition just fine.

I had a bad gut feeling about this........

Well, this younger guy doesn't understand fine tuning desiccated thyroid dose. If I were to drop the dosage as he wants, I will be hypo. You don't make huge adjustments like that, as symptoms return. I communicated my concerns on the "e-portal" thing. Might need another appointment to get my point across. He doesn't seem to "ego" based, kind of the nerdy geeky type, but those types can sometimes be very strict going "by the book." Personality wise, based on one visit- we mix like water and oil.

This is ridiculous. He can see my whole thyroid roller-coaster history and that its been doing the best ever after going gluten free at my "target" thyroid levels, which are a little higher than most Drs prefer. . So why would anyone change that "target" level with good history attached to it?

This clinic is still privately owned and has their own lab which is nice - they did not "sell out" to the hospitals who now own every other clinic around the country. Same day lab info is priceless- but only with a Dr who understands. They understand nodules too, which is rare.

Will try to convince him in a professional and firm manner, if that doesn't work, and putting my foot down firmer still doesn't work, I will have to talk to the owner and/or leave to find another Dr who will listen.

So many Drs are afraid to dose natural thyroid and do not trust a patients educated judgement.

this is just a rant, but any ideas for convincing this dude to look at it from my thyroid history viewpoint would be welcome.

Post Edited (astroman) : 6/24/2021 1:42:52 PM (GMT-6)

Astro - if your labs are good on your current dose - what’s his reason to drop the dose?

Lucky for me, I am prepared for thyroid med shortage ( or an idiot Dr dose) and have extra months stocked up, the new bottle always gets dated and put behind the others. When you dont pay with med insurance, pharmas dont do to well keeping track of how much you had. Changing pharmas before your bottle is empty is another way to "stock up".

Ive heard of people doing that and not taking med 1.5 days before testing just to lower the test values, in order to feel functionally well. - cheating the system that keeps you hypo.

Thailand's "Thyroid S" desiccated was avail without a script for years, till it dissapeared from the market. People would treat themselves with it and pay for their own tests with online pay/local blood labs.

The new Dr and I landed at a "happy medium" for now, lowering the dose a little, but not as much as he suggested (which would result in me being to hypo to even drive).

Fact: TSH jumps around more than frees do. But, like most Drs, he's more concerned with the near hyper TSH (per range, not per "feel") than the free T3 and 4 which are just barely mid-range.

Ive been able to lower the dose ever so slightly the last few years after going glutan free too (good thing).

*** His reply to "I get hypo symptoms with a TSH great than 2.0" is : "there is no scientific evidence suggesting this, so it could be anything even though we hear this from patients". What,..hello? If you hear this from patients, this is "evidence". There are no tests that can measure how one "feels" other than asking the patient LOL!!!!!!!! ***

And he added: "There is also no scientific evidence that being gluten free helps thyroid management or thyroid health".

Again, patients world wide now report this. How much more evidence does one need? In my case- my ten year thyroid nodule dissolved per ultra sound and my past need to INCREASE thy meds every 6 months diminished. Need proof- there it is.

---------------------------------------------------------------------------------

From a scientific and engineering perspective, these "by the book" Drs have no understanding of how scientific discovery is made in the first place. Its a shame how many Drs simply follow the blind folded rules given to them.