need HELP- uninterpretable results+wounds

My symptoms that have been going on for 2 years (loss of weight(49kg-166cm), fatigue, back and neck pain, muscle pain, brain fog, difficulty remembering the names of objects recently, depression, hair loss,sleep imbalance- waking up too early,mood swing,tingling in hands and feet
low pulse and blood pressure (70/40), constipation, occasional attacks of throat pain and sore throat followed by edema in my feet, amenorrhea, antibody negative thyroiditis, and occasional yellowing of my face and most importantly leukopenia. during this time ı had done IV Cs, ozone etc for immune support.
In the last 3 months, red-purple non-ulcer sores started to form on my feet with edema. usually half-moon shaped and without inflammation.https://ibb.co/sg6RMnx (Except for the last one, I think it was triggered by the ozone cream I used. No diagnosis other than antibody-free hashimoto (diagnosed by USG) has been made in this two-year period. All other antibody tests, rheumatological parameters are negative. The pathology result from the wounds on my foot is also incompatible for lupus vasculitis etc. previously ltt borellia Although it came back negative, I sent the test again to Armin lab and my results (elispot test
) are positive.
armin results:
(borrelia b osp-mix 2+ = weak positive)
t cells cd3+ 766 (ref:900-1000)
CD57+ NK cells 52 (ref:100-360)
mycoplasma pneumonia elispt positive also mycop. ıgg positive
the ebv ebna ıgg ab I had done before was >600. (ref:<5) and elispot/lytic positive also weak positive cmv, zoster, coxsackie,echo virus elispots.
The wounds on my feet heal and form again. edema-swelling continues. I have been on a gluten-free, dairy-free, refined sugar-free, soy-free diet for 2 years. Due to the dao enzyme defect, I have been on a low histamine diet lately, but I cannot gain weight. I am very confused about how to proceed. I looked at clinics in germany (st george) and mexico that do hyperthermia+IV Abx, but I'm worried about the side effects of Abx and apheresis, or more precisely, if I don't detox enough, I might get sicker. I looked at bvt but there is no one in my country, and as a medical student I don't know if I can do it 3-4 days a week. I think I need a chee to make my body recover faster right now. other than that, there is no llmd in the country I'm in so I'm not sure I can use herbal therapies and antibiotics alone. so I feel like I need an inpatient clinic abroad where I can be treated/take a big step towards recovery. I am researching stem cell(infusio), hyperthermia, sophia enst or hansa clinics. I would be very grateful if you could help me according to the experiences you have had or have learned from here. [url]https://ibb.co/4d8cF0G
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Post Edited (ily.dd) : 6/28/2021 3:06:26 AM (GMT-6)

Thanks for your return
1- The diagnosis of thyroiditis was made by ultrasound, antibodies were negative.
2- In the test I had done 1 year ago (in another laboratory), LTT borrelia was negative, I have updated the results of the test I had done in armin lab 1 month ago in the message above. I think that 1.5 months (2*per week) IV ozone-C therapy can trigger results. (I wanted to add a picture here but I couldn't)
3- borrelia elispot OSP-mix positive, cd3, cd57 were tested; low. borrelia dna pcr negative, leukopenia, bartonella babesia c.pne ricketsia I just had elispot done and it came back negative, there are high titers of antibodies for the tested viruses and positive elispot (ebv, cmv, vzv,echo,coxsakie) I have also updated the above post.
4- The wounds were found to be incompatible with rheumatological diseases such as lupus or vasculitis, and it was said that they may be due to infectious diseases.
5- I don't remember being bitten by a tick, but 2 years ago all my symptoms started suddenly. very rapid weight loss after an infection, constipation, numbness in hands and feet, unheated hands and feet, amenorrhea, muscle and sore throat, edema in my legs, fatigue, brain fog, sore throat in attacks etc. There were hundreds of cats on the school campus and in the lecture halls, I think I might have gotten them.
Everything was searched for the cause of my illness, nothing was found. Despite an anti-inflammatory diet, supplements, and IVs, I have made no progress. So I thought my symptoms and lab results were consistent with Lyme. St george clinic in Germany said that I was suitable for their treatment.
but I am quite confused. due to hyperthermia and side effects of IV antibiotics or inadequate detox. I also believe that the real problem is the toxic environment that feeds them rather than bacteria-viruses. also as a med school student s.lanka and thomas cowan's virus theory makes much more sense. but as a result i don't know what to do. I am not gaining weight (I am well below my critical weight) and sores continue to form on my feet, and I am at risk for a possible infection (leukopenia, neutropenia) so I have to do something. There are so many options; herbal protocols, antibiotics, bvt, hyperthermia. there is no llmd in my country; I really need advice.Do you think herbal protocols are enough, with whom can I apply them? What do you think about clinics in germany and mexico? I tried to contact Klinghardt; I could not reach sophia ens, they did not return to my e-mail. There were those who were satisfied with the treatment there as well as those who were not.ı dont know where can ı start.

Post Edited (ily.dd) : 6/26/2021 10:58:51 AM (GMT-6)

astroman said...
Just some info:

1)Thyroid-

"The diagnosis of thyroiditis was made by ultrasound, antibodies were negative".

"Thyroiditis" is swelling (inflammation) of the thyroid gland. It causes either unusually high or low levels of thyroid hormones in the blood.

Hashimoto is the most common form of thyroiditis but also with high levels of one of three autoimmune antibodies.

[url[https://www.thyroid.org/thyroiditis/

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2)Your slightly low CD-57-

is an average measurement of several combined immune cells. These Immune cells are both lymphocytes which are also part of the white blood cell count and globulins which are proteins and may lower your total (average of several) protien count. The muscle building protien is called albumin, its not an immune protien but is the other part of the total protien level blood test. Regular Drs get confused on this.

Have you tested lymphocyte and globulin (both simple blood draws)?

3)Edema-

There is also a link between low immune proteins and Edema. Edema is a non-technical term for fluid build up, which can be blood and/or "body water". Sometimes blood flow edema is from the one way vein valves in legs and arms not working correctly and this CAN be detected with ultra sound, but very few places do it. . Water retention is obviously different.

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It can be scary when everything you've got going on suddenly happens.

There will be others with ideas/questions. Weekends are slow here.

thanks for your comment. As both a patient and a medical student, I know what thyroiditis is; Antibody-free Hashimoto is not a rare condition, a diagnosis of Hashimoto's was made by ultrasound. thyroid gland damage/image and hormonal changes support this.
Doppler ultrasound was performed for edema, there does not appear to be a problem in that respect.
I have normal lymphocyte and low globulin levels.
Do you think these symptoms and elispot test results are insufficient for lyme and co's?

Having had and self-studied Hashi for 25 years, I could unfortunately prob teach it better than some professors (ha ha). Well,..... I have heard they spend minimal time on this subject and still dont mention gluten.

The definition of Hashimoto in the past (In the USA) was thyroid inflammation with one or more high antibodies.

The antibodies can make it a different animal. I improved one of two high antibodies by eliminating gluten.

"Antibody-free Hashimoto" is possibly some creative wording, I've never seen it in the literature, maybe a new non-technical term. The conventional term for that has always simply been Thyroiditis.

https://www.mayoclinic.org/diseases-conditions/hashimotos-disease/diagnosis-treatment/drc-20351860 - "An antibody test. Because Hashimoto's disease is an autoimmune disorder, the cause involves production of abnormal antibodies. A blood test may confirm the presence of antibodies....... Many people have TPO antibodies present, but don't have a goiter, hypothyroidism or other problems."

They fail to mention TgAb and TSI anti-bodies though.

Either way, the Ultra sound showed your thyroid gland to be inflamed. An inflamed gland "goiter" in the past was some times from lack of iodine, usually a non-issue in modern society. Maybe you had elevated thyroid antibodies in the past? Once a thyroid gland is deformed, it doesnt "heal" or self correct much at all.

That said, I have read about people here with "regular hypothyroidism" (no antibodies)who have complete thyroid hormone recovery after treating lyme.

Post Edited (astroman) : 6/26/2021 3:25:17 PM (GMT-6)

so the way i read your results is

you have a weak positive borrelia elispot from armin labs
together with a bunch of high viral antibody titres - esp EBV
and also several positive tests for mycoplasma

your symptom picture certainly could be caused by lyme
the low CG57+ count is also typical of lyme - but also present in some people in many chronic illnesses

the wounds / sores on your feet are unusual - not something i have come across in many accounts - but there are posts on here with people reporting very sore blisters on toes and even something like "COVID Toes" which is very sore swollen toes that can be caused by several viruses - including COVID and especially those in the herpes group - which includes EBV, CMV, etc - so its possible they could be the result of some kind of infection or mix of infections.

my sense of all of the accounts i have read over the years is that antibiotics or herbs are the things that most people seem to do best with ( that is not to say no one gets better from other things like rife, or BVT etc )- but the 2 things that seem to help most people are herbs and or antibiotics (together with lifestyle, diet changes and stress management).

if it were me i would try those first before moving on to more fringe therapies.

i have used both and both have helped me

given the very high EBV titre it may be worth trying to deal with that first
Stephen Buhner has a book on herbs specifically for viral infections - so that would be a good place to start. there are specific protocols for EBV infection there.

https://www.amazon.com/herbal-antivirals-remedies-resistant-infections/dp/1612121608


btw. you can upload pictures here

https://imgbb.com/

and post the link the site gives you into your posts in this forum

be sure to ask questions - we are here to help

as i said

from my research over 6 years now - i have formed the clear impression that most people who recover or improve do so from treatment by either antibiotics or herbs or a combination of those.

there are many countries where LLMD's are either in short supply or not available

as a result many people choose to learn how to treat themselves with these approaches combined with other important health improving modalities that help regardless of the cause of the illness - ie optimising diet, lifestyle, stress management, sleep improvements, exercise etc

logically i find it hard to justify starting with the less proven treatments first.

i am afraid i don't know anything about the clinics you mention - in general i have formed the impression that all of these places are first and foremost businesses whose primary goal is to make money. i personally do not feel confident that i would come away much better of in health terms but am certain my savings would be dramatically impacted - so for me the gamble is not worthwhile.

however, everyone is different in terms of their available funds, risk tolerance, ability to treat themselves etc so i fully understand why some choose this option.

due to limited funds and limited availability of reputable LLMD's in my country, my inability to travel without becoming even more ill and limited confidence in the specialised clinics i have elected to treat myself.

most LLMD's in other countries are doing telemedicine appointments due to the pandemic - so that may open up another option for you.