Uneducated llmd waisting $and time

The llmd nurse claims babesia wouldnt cause my burning scalp or brain fog, oh and claims in these words " you don't want to take mepron or babesia meds because they can cause severe depression and neuro effects, and u already have "enough" depression"!! Then says "I'm sure we'll cover babesia treatment sometime down the road in your treatment". She said shes basically waiting for my doctors info as in me setting up appts with mental health doc because anyone can have "neuro herx" which can cause depression and anxiety yeah tell me something I dnt know that I haven't been experiencing. I feel hopeless and I'm about to take matters into my own hands. Shes thinking bart rather babesia . I told her I wasnt paying for bart testing at all, it's all about money sheesh. I believe in the llmd treating based on clinical diagnosis and history rather than a blood test . I cant take the burning internally in my brain again right now or the "drunk brain feeling" (which by the way can be babs) ppl have told me some of their babs symptoms. The nurse was so quick to knock babs and the comment she made about not wanting to take meds cuz it can cause more depression was just irritating. I get that's shes saying there's side effects to mepron and quinine and clindamycin I do understand that. Bt at the same time am I suppose to not treat babs smh. And I know she doesnt think that I'm going to wait until Sept 7th when I have my 1st available mental health appt. To start treatment ? I cant wait that long and it doesnt seem right to make the patient wait that long .I'm suffering and am about to try herbals again.

Somebody said...

Post Edited (MedicalNerd) : 8/1/2021 11:58:50 AM (GMT-6)

Girlie said...

MedicalNerd said...
The llmd nurse claims babesia wouldnt cause my burning scalp or brain fog, oh and claims in these words " you don't want to take mepron or babesia meds because they can cause severe depression and neuro effects, and u already have "enough" depression"!! Then says "I'm sure we'll cover babesia treatment sometime down the road in your treatment". She said shes basically waiting for my doctors info as in me setting up appts with mental health doc because anyone can have "neuro herx" which can cause depression and anxiety yeah tell me something I dnt know that I haven't been experiencing. I feel hopeless and I'm about to take matters into my own hands. Shes thinking bart rather babesia . I told her I wasnt paying for bart testing at all, it's all about money sheesh. I believe in the llmd treating based on clinical diagnosis and history rather than a blood test . I cant take the burning internally in my brain again right now or the "drunk brain feeling" (which by the way can be babs) ppl have told me some of their babs symptoms. The nurse was so quick to knock babs and the comment she made about not wanting to take meds cuz it can cause more depression was just irritating. I get that's shes saying there's side effects to mepron and quinine and clindamycin I do understand that. Bt at the same time am I suppose to not treat babs smh. And I know she doesnt think that I'm going to wait until Sept 7th when I have my 1st available mental health appt. To start treatment ? I cant wait that long and it doesnt seem right to make the patient wait that long .I'm suffering and am about to try herbals again.

Somebody said...

My llmd says to treat babesia first.
Then do bart after.

I was on both mepron and Clindamycin and it didn’t cause mood issues for me.
I mean - you could try it? And if you had bad psych issues you could stop.

With the clyndamicin after 1 week is when all the anxiety, fear, ocd started, and the burning head and brain fog. Idk why the nurse claims she doesnt think I have babs or didnt want to mention babs because clindamycin is used to treat only babs, not bart or lyme which its not effective against. My panic and anxiety is more like fear. These are all babs symptoms and I feel like theres an ice cold spot or icy hot spot in my brain. I know bart can do it bt she needs to realize my body is reacting to the clinda. I'm thinking I should treat myself on babs as I also reacted bad to artemisia this time as well.

Supposedly high doses of mepron can cause neuro issues. I never had any problem with it. It does seem to 'stir up' bart a bit.

Clindamycin was really hard on my stomach.

dbwilco said...
as a patient of SP, he is a believer that bart is more of the problem then babs....dr J believes the opposite...who knows who is correct...they WILL treat babs (ive taken more mepron than i ever wanted to), but they follow SP's general protocol at the start...as for testing, they use galaxy for bart....as for detox/mold, i agree, other llmds seem to put more focus on that, but SP is one of the most knowledgable and i think longest serving llmds, and is treatment is a little more conservative than many (doesnt use disfulrim, methylene blue etc)...but ik in ct there are practices in bridgeport and ashford where you might prefer treatment...I still think hes one of the best llmds around

Disulfiram and meth blue have side effects lots that's why I'm guessing they dont use those ones. My llmd hasn't even responded back about starting treatment since july 24th. My.1st appt. Was in june and I still haven't been started on even doxycycline, like come on now, idk to me it just doesnt seem right? Doxy is light with really no side effects so I would think they'd at.least start me on something rather than let me suffer.