Direction Needed for Stomach Issues

Once again, I am dealing with bad stomach issues that seem to cause severe emotional state.

It doesn't seem to be a coincidence every time the stomach goes my overall metal health goes with it. It has never been worse than it is right now, actually meaning stomach and emotions (tremendous anxiety in morning and depression for most of day). Also, I get dizzy after exercise, which I haven't done in a long time. Pee continually at night again (every hour or 1 1/2 hours.

Because of kidneys, I am limited on what I can take to help. I've cut back on food intake, which I cannot really afford to do as I'm 20 pounds under a pre-Lyme healthy weight already and now have dropped another two pounds in a couple days.

A new issues is how easy I bruise and one bruise that just magically appeared on the side of my foot without any trauma. Doctors are not worried about cancer, but something is really screwy.

As mentioned, I've been through this a few times in the last 5 years, but not to this extent. Cannot see LLMD until August 25.

My mind is really is a bad place, and each new symptom just adds to near paranoid thoughts. I'm sorry to post such a negative. Don't want to call my kids about it nor friends here. This is really the only place that gets it. Next week I finally will see a good infectious disease doctor about the EBV test results other doctors seem unsure of.

I've recommended Mary R before, and I believe in her even more so now. She will know exactly what diet you need to be on. Just freaking trust me. She actually was in kidney failure when she was sick, so she gets kidney issues. I've seen so many people heal on her diets. You have to completely rid yourself of inflammatory foods and provide your body healing nutrients, which will calm the nervous system and immune system. Once that happens, the body will start fighting off any infections you have.

Most of us with autoimmunity have a screwed up microbiome and leaky gut. You can take every killing things herb you want, all the probiotics you want, the slippery, etc. And the issues will come right back. The problem is that bad gut bacteria can go dormant for up to 6m. This is shown in the literature. That means it takes 6m to change the microbiome, minimum. You need to go on a ketogenic diet and cut out all of the inflammatory food (lectins, oxalates, gluten, phytic acid), so the gut lining and biome heal. At the same time, you need to provide it prebiotics shown to be specific for good bacteria. She prefers inulin. You also provide high levels of fat and cholesterol, which is healing for the nervous system. So youre starving bad bacteria, feeding good bacteria, resting the gut lining, and providing nutrients.

My gut is totally healing after 2.5y, my neuropathy is literally disappearing and my WBC is rising. I cant pound the table on this hard enough!

https://www.enableyourhealing.com/schedule

The only problem is that she's become so popular she doesnt do one on one consultations anymore. She works by zoom conference now. The calls are all people like us with weird diseases, almost everyone has digestive issues, and you can see how others are healing and what theyre doing. Unfortunately the secretary takes a few says to respond, but if you email them theyll tell you want group to join and what to do.

I hate to say this, but western medicine drs arent goin to help this. These guys just dont get it. Try something different, what do you have to lose?

Post Edited (dcd2103) : 8/4/2021 4:08:15 PM (GMT-6)

Girlie - Thank you for such nice words and help. I usually hide when my mind goes south and did for a couple of weeks. Just got to me today.

dcd - I looked at the link for Mary R and options. Thank you for that. Everything you write, I agree with. There is no doubt everything gets much worse when gut is at its worst. I do not doubt that. A person who understands the kidney aspect is needed, and I would hope she or those with her could be that person. The kidneys really irritate me and no explanation for why they are as they are has ever been given, even after a biopsy. It makes no sense to doctors, which leads me to believe Lyme is the cause, as rare as they claim that can be.

As far as western medicine doctors and pursuing the EBV, I just want to know the difference between the antibody test and the EBV DNA. I've had two years of being given mixed signals, and the doctor I am going to see is much more open minded, Lyme wise. And it is awesome you have seen much improvement through diet.

Notime - Have you had Babesia?

dcd2103 - thanks for the link to Mary's page. I think more and more about trying keto again. I did do it for 3 months about a year ago. I didnt notice any changes in my symptoms (muscular pain and stiffness). Ironically it may have saved my life as it caused me to be constipated despite my best efforts. Eventually I ended up with appendicitis and they found my tumor in my appendix, that may have happened anyways Ill never know.

I have trouble with large amounts of fat in my diet now it causes stuff to move way to fast despite a lot of fiber. I still consume a lot of fat I would guess my net carb intake is still only 75g or so. Low but not keto. Having a short colon the challenge becomes keeping things in me. As sometimes my transit times are 12 hours or slightly less for some meals other meals its 12-18 hours.

keto for me is really simple
its best thought of as a fat and fibre diet - with some protein thrown in ( but not the dominant part)

so non-starchy vegetables make up the bulk of most meals by volume - these are not calorific but provide essential fibre to bulk up the stool, carry the fat and feed the good bacteria in the gut
things like salad leaves, celery, steamed green beans, olives etc - whatever you like

then i add whatever my protein allocation is for that meal - yours may be lower - but basically a single portion of meat or eggs - i tend to use fatty cuts as that's less expensive because our culture is all about lean meat - but also because it tastes better and fits with the fat for fuel approach.

then the calorific part is the fat - here again its really simple
i just add organic extra virgin coconut oil or organic extra virgin olive oil as needed to maintain my weight - or organic grass fed butter ( i don't seem to have an issue with dairy - clarified butter is another option for those that do)
other non processed seed oils are also options - eg avocado oil

i am 83kgs and its not huge amounts - probably 1-2 tables spoons per meal - pure fat is very energy dense and good fats like these are well absorbed in the gut.