Newbie Here

Hi,
I’ve been to so many doctors over the past two years to finally be told I have Lyme Disease. I was actually happy with a diagnosis. That was until I read all about it and that not a single doctor will help me and I can’t afford a LLMD. Soooo I’ve done a lot of reading and started taking oregano oil, Banderol, Samento and Cryptolepis. The crypto caused me to feel pretty rough at 5 drops so I’ve backed down to 1 drop a day. I take 5 drops a day of the other 2. Not really sure what I’m doing but any advice would be appreciated. Thank you Deborah

Welcome, Deborah!

Sorry you have Lyme disease - but glad you’re here!

Lots of support and knowledge on this site!

Thanks everyone. I should have been more specific. My doctor treated me for 28 days on Doxy which did nothing for my symptoms. She said she doesn’t know what else to do so she referred me to an Infectious Disease Doctor who wouldn’t even make an appointment to see me. I’ve called several doctors and hospitals only to be told they don’t treat Lyme.
The test was through LabCorp. I’ve had no other testing for bartonella or babesia She said she doesn’t have the capability to order these additional tests although she tried. She is very compassionate and really wants to help but that does me no good. So that is why I decided to self help.

Thank you all for the information. 💕

welcome Deborah

i don't know where you are in the world - but many of us find it is very difficult to get proper treatment from the conventional medical establishment in many / most countries. i have tried 3 separate highly regarded conventional infectious disease doctors myself with very little success

many of us are going the self treatment route as a result

however, it is a complex disease so if you are going to self treat i would encourage you to do a good deal of reading around the subject

Buhner's book - healing lyme second edition - mentioned above is excellent - and focusses on herbal treatments.

another highly recommended book is by a LLMD - Richard Horowitz " how can i get better" - which is also excellent - but focussed on more pharmaceutical approaches - antibiotics

there is also a very good grounding in diagnosis and treatment of lyme and coinfections in Dr Burrascano's ILADS treatment guidelines - which are available free to download here http://www.lymenet.org/burrguide200810.pdf

keep in mind that for many people it is not just a case of popping a bunch of pills or potions and being cured - things like
-diet
-lifestyle
-stress management
-sleep
can be equally important to help your body fight the infection and recover

its a lot to take in - but people here are knowledgeable and helpful so please do ask questions

Welcome Deborah, it's nice to have some type of diagnosis, even if doctors are unwilling (or have their hands tied) while they are at least trying to be as compassionate and helpful as possible... given their professional positions.

I have and many of us have experienced this, had to really try hard to get the IGenex test that showed at least one Lyme-specific antibody, which is a positive exposure, and along with all my symptoms should be clinically adequate for treatment.

I've tried abx, herbal and pharms, now I have treatment fatigue, PTSD from going through this...I continue to learn more about diet, stress, exercise and various herbs and medicines...we're all trying to do our best and that's tough when you find yourself debilitated like being too weak to lift yourself up out of bed or even hold a cup of coffee..

Some good news: There is much good advice on this forum, and many of your questions may be answered by searching the threads!