Posted 10/10/2021 1:36 PM (GMT 0)
I'm seeing my old neurologist again because my new one was a jerk. It's been 3 yrs since I saw her, we caught up fee days ago and she tells me if I had a spinal tap and lyme didn't show up in my spinal fluid then I dnt have lyme. Then tells me because my MRI looked fine and it didn't show any white matter, then that means lyme Is not effecting me neurologically and it isn't effecting my CNS because it didn't cross over the blood brain barrier. I was pissed to say the least , bt have pretty much just learned to go along with it sadly. Also she said she knows very well what lyme and Bartonella are and asked if my bart test was also neg......yawn.....she is a great neurologist and is extremely thorough, dnt get me wrong. She thinks I should not take rounds of antibiotics telling me they can actually do more damage than the actual lyme and bart. She understands some are a clinical diagnosis as well. When she said she thinks I have subconscious anxiety induced symptoms I almost lost it, bt held my composure and spoke my mind, she was wrong about many things because we all know testing is so sensitive. She asked if if had a pre existing condition anxiety etc. Lol. I'm telling her I have a history of tick bites and she's like "well that doesn't mean u have lyme" . She tells me the depersonalization, anxiety and panic attacks , and the crazy feeling can just be a chemical imbalance, and I do agree with that part , bt lyme and bart make you feel like that as well which she didn't even acknowledge. You don't just wake up like this and have this happen to you one day and it's sure as hell not from anxiety or stress, we can all agree on that. She went on to say when your stuck in the fight or flight response for soooooo long then this is what happens which I agree with and understand , and I didn't argue about it. I can very well have a chemical imbalance but one things for sure , I also have lyme and bart. She asked me who's treating me for the supposed lyme and bart, because she wanted to speak to them and set them straight and let them know that rounds of antibiotics can harm me and my body even more. My neuro says she wants to test for some different things and also asked if I've ever had that type of therapy that helps you rewire your brain, lol I forgot what it's called exactly. I was also tested for all auto immune neurological things which came back as negative, so that's ruled out.