Need a LLMD

I live in central Florida, I was diagnosed with stage3 heart failure and I’m on oxygen and it’s a hard time to walk longer that 15 minutes. I had to have a pacemaker put in back in 2019, I started going to the Mayo Clinic and they could not figure out why I’m in heart failure ( I also have a bad moral valve but they say is not severe enough to cause it) so I’m on my 5th cardiologist this year. He ordered a heart cath and says I see the valve but it shouldn’t be causing this, so he asked me questions and then said you have something attacking your system, so he referred me to a functional medicine dr, they tested me for everything, found Lyme and mold and alot of other things in July this year. I found an infectious disease dr and he ordered a picc line for 30 days of rocephin, during that time in the beginning I still felt like crap, and about my 3rd week in I started to feel good ( that lasted snot a week) then I started to feel like crap again. I called thinking that I got used to it and they needed to change it but I was told this is normal. I just finished the 30 days and I had an appointment with my ID yesterday, he told me that he treated the infection part and this is all he can do, he said it’s now post Lyme disease and need to find another dr cause he can longer help me. Needless to say I cried when I got to my car, I called my husband and cried to him and he said we will get through this we will find the right dr . I’m at a loss, I have been dealing with this for almost 3 years and I feel like I’m going backwards. Can anyone help me out put me in the right direction?

I’m hoping others will give more suggestions since I don’t live anywhere near Florida. I know there are llmds there but I don’t remember their names. I think there was an expensive famous clinic in FL but I don’t think you’re at a point where you need to consider dumping that much money into a famous overpriced clinic. With mold usually they tell you to get away from it buy air purifiers and take one or more binders (like activated charcoal, cholestyramine, chlorella, bentonite clay etc). Neil Nathan wrote a book toxic with more specifics on mold treatment.

Just know that your issues are commonly heard among Lyme patients. You might contact the global Lyme alliance for a list of local Lyme docs especially if no one here responds. https://www.globallymealliance.org/