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Wake up from sleep in pain... Why?

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Posted 3/9/2022 3:36 PM (GMT 0)
Hello:

I have been diagnosed with Bartonella and EBV. Possibly Lyme too, although it appears to be fairly quiescent if it's still even hanging around (LOTS of treatment over the years). I have periods where I wake up super early in the morning because my back and sides hurt so much from where I have been lying that I literally can't sleep anymore, and the skin/muscles/whatever in those areas are tender and painful to the touch or rub all day long. I would call them pressure points, because they are so widespread that it would be more accurate to call them pressure polygons...I used to have this a lot more, but now I seem to have periodic bouts, and I can't tell what is causing this. I don't think it's my bed, because these bouts literally can recur overnight, and my bed hasn't changed this quickly. My bed is relatively new, and I have a cushy topper on it: I call myself, "The Princess and the Pea," because my back is so sensitive to hard beds and surfaces that I sometimes bring a topper if I stay elsewhere. One possible weird thing that I have noticed is that it seems that I remember more of these bouts recurring in the winter (or what passes for winter here in CA).

Anyone else have this? If so, any idea what is causing that for you? Is it some type of neuropathy? I feel like it might be related to Bartonella in the endothelium, but I have no idea and didn't get any solid leads when I tried Googling this. I also feel that my very persistent EBV contributes to primary symptoms, which are musculo-skeletal pain (it's just that lately most of the pain manifests more in the day....), so perhaps it's some reactivation of that? My only other weird theory is that perhaps it has something to do with Melatonin. My LLMD said that I also have a genetically linked hypothalmic dysregulation issue, which manifests in a chronically non-detect MSH (MARCONS has been addressed based on repeat testing). Is this some Melatonin deficiency? I know that Melatonin has been helpful for people with fibromyalgia.

Anyways, any feedback would be greatly appreciated, or I will have to change my forum name to SleeplessinCA...:-/
Posted 3/9/2022 4:27 PM (GMT 0)
This is absolutely me, 100%. It’s like someone dropped me from a moderately high distance during the night.
And cold weather makes it much more frequent and intense.

There’s a few things that cause it for me. I know those areas are more inflamed because of the Bart (I’m also not totally sure exactly how that all works).
1) the barometric pressure change of cold weather makes it much worse. I found either taking a super hot (as much as I could handle) shower or even just sitting on the side of the tub and running hot water on the legs.

2) I’ve heard cold weather makes infections “bloom” a lot more.

3) because I’m already susceptible to inflammation in those areas, eating anything that elevates inflammation for me makes it MUCH worse. For example, almonds, coffee, and tapioca currently are my biggest offenders. (I have been strictly adhering to low inflammatory diet for a few years, which I highly recommend).

Maybe you are having something earlier that day which is causing some of that increased inflammation.

What works for me for treating it:
1) the hot water, like I mentioned
2) activated charcoal foot baths
3) drinking activated charcoal (away from food and medicine)
4) having a tsp of baking soda first thing in the morning or during the night when I wake up (this actually helps a LOT more than I realized)
5) vitamin c all day (whether that’s capsules every few hours or lemon water all day)
6) rubbing the areas with oil and rosemary oil; include the bottom and sides of feet
7) hydrogen water capsules sometimes help; not all the time
8) I switched to sleeping in an egg crate pad on the floor. It helped my body lay flat instead of putting pressure on my hips or neck.
9) coffee enemas. They can be controversial but I’ve found a lot of relief from them.

I wish I knew more why these things flare up!
Posted 3/9/2022 8:54 PM (GMT 0)
Thanks! That is super interesting about the baking soda helping you. Neutralizing acidity?

It seems like it should be Bartonella, but it's hard to know, especially when someone has multiple issues. At the very least, I know that I am not alone in this! That is some comfort. I guess misery loves company...:-//
Posted 3/10/2022 5:16 PM (GMT 0)
Many or maybe all tick infections seem to also have an affect on body tissue circulation.

There is no way to test/measure this. Other than the fact that when you manually increase (force) tissue circulation, the pain gets more manageable.

Stretching will not do this. Nope.

Learning how to use a firmer fitness roller and other various "tools" like rolling on a La-Cross ball to get deeper into joints certainly helps. light circular motions along your spine with a TheraCane helps too. This pushes out old fluid and brings in new fluid with nutrients. All kinds of you tube vids on this info for those not familiar with it.
Posted 3/10/2022 7:07 PM (GMT 0)

SickofbeingsickinCA said...
Thanks! That is super interesting about the baking soda helping you. Neutralizing acidity?

It seems like it should be Bartonella, but it's hard to know, especially when someone has multiple issues. At the very least, I know that I am not alone in this! That is some comfort. I guess misery loves company...:-//

Yes, I think neutralizing that acidity is a big part of it. It’s recommended by some to take it every morning, regardless, as long as you don’t have major problems with low stomach acid.
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