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Posted 4/21/2022 8:39 PM (GMT 0)
Hi I'm new here, with a couple of questions.

Igenex tests just came back.
TBRF positive
Bartonella positive (3 strains+).
Bb IFA >80, but not enough positive bands for Lyme positive.
Bands:
IGM (23+, 41 ind)
IGG (23 ind, 41++, 58+,93 ind)

Primary symptoms: debilitating musculoskeletal pain, worse with activity, pain in soles of both feet, brain fog, trouble falling to sleep, and sometimes blurred vision. Have been to a zillion doctors, PTs etc, with no results. Painkillers make no difference. Doctors suggested Fibromyalgia after other rheumatological problems were ruled out. Thrilled to have finally found a diagnosis. No idea when I got the tick-bite....

Starting on a herbal protocol. Do herbs really do the trick??? Without antibiotics??? I mean I'm happy to not destroy my gut, but am also a bit skeptical....

What is TBRF?? How is it different from Lyme Disease? I have never even heard of it.

Thanks!
Posted 4/21/2022 8:49 PM (GMT 0)
No idea what tbrf is either.
As for herbs- I was terrified of antibiotics due to my mom still having issues from her short round of doxy for acute Lyme causing ongoing problems. So I started with herbs only. It was working, but not as quickly as I wanted so I decided to try abx. Unfortunately I couldn’t talk the doctor into minocycline, so tried doxy. It was the worst 5 days of my life. I could not function. So I quit.
I’m currently doing the Buhner protocol using tinctures sine I can’t swallow pills. It is helping, but it’s slow. I’m not cured. Just function better. But it’s only been 9 months, so I may eventually be cured. I also believe I have bartonella, although only tested for Lyme.
Posted 4/21/2022 8:55 PM (GMT 0)
TBRF is short for "Tick Born Relapsing Fever"

Apparently another form of Borrelia that I've never heard of...

We'll give the herbs-only protocol a shot. Fingers crossed....
Posted 4/22/2022 10:49 AM (GMT 0)
yep - TBRF being found more often now - as test have only become available more recently and previous lyme tests would not detect it

though it might cause a few bands to show up on a lyme western blot as is a v similar organism

its associated with relapsing fevers - but these are just the stereotypical cases in the early stages - in chronic cases relapsing fevers may or may not be present and symptoms can overlap with Lyme to a very large degree and may be indistinguishable.

treatments are similar to lyme - but being a more recently discovered organism - it is not well researched at this point.
Posted 4/22/2022 4:30 PM (GMT 0)

LymeBart Exterminator said...
Hi I'm new here, with a couple of questions.

Igenex tests just came back.
TBRF positive
Bartonella positive (3 strains+).
Bb IFA >80, but not enough positive bands for Lyme positive.
Bands:
IGM (23+, 41 ind)
IGG (23 ind, 41++, 58+,93 ind)

Primary symptoms: debilitating musculoskeletal pain, worse with activity, pain in soles of both feet, brain fog, trouble falling to sleep, and sometimes blurred vision. Have been to a zillion doctors, PTs etc, with no results. Painkillers make no difference. Doctors suggested Fibromyalgia after other rheumatological problems were ruled out. Thrilled to have finally found a diagnosis. No idea when I got the tick-bite....

Starting on a herbal protocol. Do herbs really do the trick??? Without antibiotics??? I mean I'm happy to not destroy my gut, but am also a bit skeptical....

What is TBRF?? How is it different from Lyme Disease? I have never even heard of it.

Thanks!

Welcome to the community!

Either my current LLMD or my previous LLND told me to count the IND as a positive on the WB tests.
Also Band 23 is positive - that is a Lyme “specific “ band - meaning only Lyme will produce that band.

Plus TBRF is positive - and it’s a coinfection.

With those results - you can be comfortable that treating Lyme is the right thing to do.
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