If you have an LLMD or alternative health care provider who understands your situation, then I would ask them. They may know of someone or some agency. They may even have other patients who are more functional or recovered who would help you.
I am pretty sure there are mainstream agencies maybe at hospitals that say they are “patient advocates.” I don’t know what that really means. They may just be caseworkers filling out paperwork to get eligible people onto Medicaid or SSI. You could ask your primary care doctor for advice, too.
From what you stated in the initial post though, sounds like finding someone who is knowledgeable about
Lyme and alternative medicine and has been through this before sounds is what you need.
EDIT: If your doctor or you don’t come up with anything, you could email Better Health Guy. He’s been doing the rounds in the Lyme community for years and probably knows more people than anybody. He may have some ideas we don’t know about
.
Post Edited (WalkingbyFaith) : 5/15/2022 7:01:42 AM (GMT-6)