No Doubt When It's 3:00 PM

As I've mentioned for a number of years form time to time, something seems to cycle every few months and lasts for the same few months.

Without looking at a clock, I know when it is about 3:00 pm each day because my face will feel hot, fatigue hits and my body temperature goes up. I can ask my daughter if it is 3:00, and it is always right at it or close. That feeling remains until about 7:00 pm or 8:00 pm. Then the hot feeling fades, fatigue remains and body temperature goes down some. My usual temperature is around 98.2. It rises to 98.7 or 98.8 once past 3:00 pm. I know that is not technically a fever, but it is for me.

When I have that happening, anxiety and depression in morning is much worse, also.

I've never figured out if it is EBV, Sjogrens, TBRF, Bart or what. Really don't think I have had EBV for some time, so seems to be one of the others. This has gone on, from time to time, for at least three years. It takes me out.

No real point in that except to get out some frustration. But there is a definite pattern in how long it takes to relapse and the hours it hits. At least I don't need a clock in the afternoons.

Hey Rainy. Hope you are doing okay (or great would be better).

I've had cortisol tests, but only in mornings. Always normal. But I haven't had one at 8:00 am when the anxiety wakes me up or where it is tested throughout the day. Would it cause a rise in temperature? That iswhat really throws me.

Hilarious comment on the clock. I have noticed that I can tell when it is 9 pm. That is when I turn into a pumpkin. The closer the time to 9, the less energy I have. It is like I cannot tolerate another minute past 9.

It is amazing how accurate your symptom clock can be. Comes in handy at times.

You would think an experienced LLMD would know which infection is causing this pattern. I know you have seen Lyme docs before, have none of them recognized this symptom pattern and the cycle of timing?

LW, do you have more difficulty digesting protein? Protein requires more calories to metabolize even in the healthy person. I believe I struggle with certain protein which would make a keto diet tough for me. I have what conventional medicine calls an AI thyroid condition so my cellular energy is affected. So many are helped by a high protein diet but I don’t think I can benefit right now.

Salad with low histamine veggies while unsatisfying seems gentler on me.

Thanks in advance for your experience or thoughts

RW - i very often wake with a mild sweat / or at least hot and clammy at 7-45am
but at 7 am - not hot or sweaty - then its past again by 8-30

i don't know what that means either

i have read that chronic stage bartonella infection causes mild temperature fluctuations - usually away from a normally lower than average temperature the rest of the time - typically in the mornings - or early afternoons. its an odd infection as normally any infection in the blood would cause sky high temperatures - like for example malaria which is known for its high fevers - but bart has some tricks up its sleeve that keeps that immune reaction suppressed - and it may be that these little fluctuations are all we get instead

so perhaps that's what's doing it in both cases

very had to know - but i m not sure its particularly significant in terms of guiding treatment
if we think we have bartonella - then that needs treating regardless

The flushing is likely due to CYP3A4 attacking other hormones and not just cortisol. When I would get this, I would not only get anxiety, I would also have to pee afterwards.

Thank you all for input. As far as EBV, I agree that has been "put to rest." What I was referring to was I do believe I had it reactivated for a while a few years ago, as I did have one EBV DNA test that was positive. That indicates replication and active virus. My thought is that started the Sjogren's as, looking back, I had symptoms that were less severe as now. The neuropathy was there, but I always chalked it up to Bart. Maybe it is Bart, but it has now turned to large fiber, if it is small fiber also. Neurologist didn't check for small fiber, for unknown reasons.
Don't seem to have a problem with protein, except I should be eating less of it because of the kidneys. Then I lose weight, so it's a tough decision on eating. Last week, I had a comp panel done 2 hours after eating more cooked chicken than I should have, and my creatinine was higher than it has ever been. That, in turn, causes the low GFR. My hope is it was just the timing of eating as I usually fast before tests. I didn't know they were going to test any, hence the meal.

The timing of when I eat lunch seems to have no impact on the 3:00 pm start to all the fun. My guess is this is being caused by the Sjogrens or Bart. And WBF, no LLMD has had any idea of the cause, though I had not had the positive on Sjogrens last time I saw the one I go to.

Going to also push for a all day cortisol test. There has to be a way to find answers. I'm still looking hard into ARA 290 for neuropathy.