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Die off bladder pain?

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Posted 6/15/2022 12:14 PM (GMT 0)
I've been having really bad bladder pain for the past several days. I had a urine test done and showed high Ph but no sign of an infection.
There's no urgency or cloudy or strong-smelling urine. It's just a constant aching pain that's starting to radiate down the legs.

My doctor was not concerned, given the test results. But it's starting to disrupt my sleep and I'm not sure what to do.

I've been taking Ornithine with DMSO to lower ammonia and wondering if that's putting a strain on my body.

I've also been doing acupuncture and wondering if this could be a die off symptom.

I've been drinking plenty of water, taking mannose, and detoxing.
Posted 6/15/2022 2:13 PM (GMT 0)
Interstitial cystitis can be a symptom of MCAS, which flares often when people are herxing, inflamed, or generally in a bad patch. MCAS is something to consider when you have any UTI symptoms with a negative urine culture. If you have bladder symptoms with any regularity, I'd recommend buying urine test strips to keep at home and save yourself trips to the doctor and copays. Hope this resolves soon for you!
Posted 6/15/2022 2:42 PM (GMT 0)

saraeli said...
Interstitial cystitis can be a symptom of MCAS, which flares often when people are herxing, inflamed, or generally in a bad patch. MCAS is something to consider when you have any UTI symptoms with a negative urine culture. If you have bladder symptoms with any regularity, I'd recommend buying urine test strips to keep at home and save yourself trips to the doctor and copays. Hope this resolves soon for you!

I definitely have a problem with MCAS; I had been really strict with my diet, but wondering if I'm overlooking something. Thanks so much for that tip, I appreciate it.
Posted 6/16/2022 12:33 AM (GMT 0)
For what it is worth I have also had this symptom but not to where it was keeping me up at night. I noticed the pain kicking up after a treatment. I figured it was a die off response.knowing that pathogens reside in both kidneys and bladder, it is logical to assume die off is the culprit.
Posted 6/16/2022 1:33 AM (GMT 0)
I had symptoms similar that were repeatedly culture negative. D-mannose had no effect on me. I believe I read it’s only effective on E. coli. The one thing that did help was a supplement recommended by my Lyme/mold doctor - Cystistatin. It has uva ursi in it.

I had some pain with urination, but not the whole time. I also had difficulty urinating at the very beginning. The worst part was I had a soreness in my pelvic area and my lower abdomen.

I did find that a number of foods were triggers - coffee, possibly tea, nuts, chocolate. Those foods are also histamine triggers. I am not sensitive to them all the time, but I had repeat bouts with the UTI symptoms. Every time, I would cut out trigger foods and take Cystistatin for days to weeks.

Post Edited (WalkingbyFaith) : 6/15/2022 7:38:02 PM (GMT-6)

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