Cytokine Storms/Chronic Inflammation

Just offering you support Lymie24. I can very much relate to the inflammatory cycle that your system seems to be stuck in. I have stopped chasing it with supplements as I truly don’t think anything from a bottle is a remedy for this malfunction.

TUDCA was the first thing that really brought inflammation and sensitivities down for me. I have also found treating parasites to be helpful. So far, I have done rounds of Ivermectin, Alinia, and now Fenbendazole. I plan to do another round of Fenben this week of full moon.

For the cytokine storms created by the Lyme spirocette for it's food source: inflammatory tissue, One has to treat the underlying infection. Dr Rawls recommends using an OTC Claritin daily. But, the true key is using binders to mop up the die off, otherwise, we're stuck in a cycle of misery. We can overdue it on suppls and when trying to puzzle out what actually works, keeping a daily diary of symptoms helps a lot. MCAS is a very complex immune response to wrap ones head around and research, research is the only way to figure it out.
I've been living in endemic areas for my entire adult life and can completely relate to the misery of having and treating Lyme & cos. I've successfully treated with herbs, suppls and some abx, but am now dealing with Bart, again and probable Lyme.
There are some very helpful resources that may be of aid to you, living in mold with a tanked immune system. Dr. Ritchie Shoemaker has a pair of excellent books on mold and describes how to reopen the blocked cellular detox pathways that keep us stuck in mold illness. I follow Dr Klinghardt's methods and use many products he developed and uses in clinical practice; they work. He also has a book on Lyme, based on decades of treating and a sufferer of Lyme himself, he has tremendous insight and two websites that provide a plethora of free info. The others, I make myself - lipo tinctuters and etc. from herbs that I harvest. and process. Dr K promotes R Shoemakers books and methods and has other detox protocols for the other toxins like toxic metals, mold, parasites, endotoxins, and the list goes on.
For mold, my best suggestion is to find a local beekeeper and get ahold of some propolis (cheap) and research how to properly vaporize and inhale it - this requires specialized equipment to avoid inhaling the bee's wax that is part of its makeup - inhaling wax is no bueno. You can easily source propolis inhalers for sinus and throat, capsules to take (or make your own), tinctures from it, and you can clear your home environment of mold with the propolis vaporizer(s). Read up on Dr K and mold on The Better Health Guy's website and via a net search. Dr K recommends licorice root for Bab, an intra-cellular protozoal infection. Bart, I'm treating with a lipo combination of Calendula, propolis, Andrographis, and Dr K's K-Vita (an energetically enhanced mix of herbs, incl JK and a few others that we may not think of. That one I order from Ki Science in the UK. Can also use his Lyme Cocktail and add some JK tincture to the above. I make it liposomal by adding high quality phosphotylcholine and tapping the mix, while saying my own form of prayer to add intent, some 200 times against my palm to create a lipo mix of nano and larger particles to reach both intracellular and all the length of the bloodstream and gut.
Always keep binders on board and the best is chlorella (a sea veg) in doses of 3-7 grams 1-3 xs daily. It's nutrient-dense, mobilizes toxic metals, and in high doses, binds out endotoxins from bacterial die off and the metals that it frees from bound sites throughout the body.
Build yourself up with a good, food-sourced vitamin regimen and look into (kinda spendy, but worth every cent) Fiuvic/Humic mineral drops like Cellcore to replace depleted minerals. "Minerals are the elixir of Life."
At 65 and having lived with Lyme and co since childhood, I'm getting through another round of vector-borne illness, just having spent so many years already in self-treatment, incl some of Buhner's protocols. We learn what works and what does not.
I wish you all the best in your healing journey.

Post Edited (Luta2022) : 8/8/2022 7:45:59 PM (GMT-7)

MargaritaLyme -
I have to comment that I chuckle over your saying "my Lyme career" in your response. It well and truly is all-consuming and a full time job to deal with all of this!

Quercetin+vitamin C

Thank you Luda! Praying that you are able to come by that bio resonance scanner soon.

Vimzor,
The increase in stem cell production with water fasting is def notable and I know it increases energy. I do periodic fasting by simply consuming my calories during certain hours and find that fairly easy to stay with, but I lean more toward flexibility in most things and don't beat myself up when I veer off any healing course. It's been decades since I've done a water fast.

I was reading about your adrenal issues in Garzie's post about sleep and am saddened at the destruction you experienced from oral corticosteroids; I totally agree with you on their use, unless absolutely needed in treating specific diseases. Living the damage from them must be very hard and disheartening.

I think that there are always healing avenues to explore and that we should never cease all efforts in recovering health, although we can't recover the time that we've lost. I understand that having the APH axis off and possibly for life is debilitating, but there are so many things one could try and maybe you've exhausted them, but maybe not.

I may be singing to the choir here and perhaps you've already gone down every available avenue, tried every health hack, but I'd be looking for methods of healing imbalances and regaining lost energy, despite the HPA axis being off; it's off to some degree for all of us with these infections.

There are so many supplements and specific, targeted areas to work on to recover health and vitality. Homeopathy, acupuncture, auto-urine therapy, raw foods for enzymes, Fulvic acid/ Humic minerals to replenish deficiencies, vitamin therapies, DHEA balancing, using sea vegetables for nutritional deficiencies and detox, other green super foods, healing diets, Bee super foods, ATP suppls, and the the list goes on.

Thyroid detox and replenishing with iodine, pineal gland detox, hormone balancing with herbs like maca and pine pollen and specific animal-based glandular suppls, using MSM and other seemingly off-beat suppls to enhance metabolism, mitochondrial repair, balancing neurotransmitters with 5 HTP, Dopamine bean, taurine, tyryptophan, and other natural suppls, NADH and other energy hacks, bioresonance and the new energy enhanced suppls.

Maybe look into the KPU / HPU connection with these microbial invaders we host. There has to be a key, somewhere, some stone yet to overturn to regain balance and health. Detox is always key. Detoxing out the furin enzyme is an interesting area to research.

There are so many new advancements in cellular repair and detox that I can't stop researching and learning; this forum is a hopeful new source of info for me as a newbie here.

It seems that there are more areas of advancements in health than we can possibly research and so many biohacks to explore - and they needn't be out-of-reach costly.

Pls pardon any overstep, but I read some despair in your comments about adrenal insufficiency and we Lymies can't give up. For me, at 65 and battling the invaders again after having recovered to 90%, I'm again using the herbals and suppls that worked before and jumping down rabbit holes to find the way back to health, even if I have to claw my way back, again. I've another grandchild on the way and intend to hold my great grandchildren; I'll never willingly surrender to decline, this life is too way too sweet.

I wish you hope in your healing journey.

Post Edited (Luta2022) : 8/16/2022 7:52:56 PM (GMT-7)

Thank you kindly for the welcome!

I will try to make my comments easier to read per your advise; I know the brain and visual issues too well.

I'm heartened by the high level of knowledge and the commonality found here and am happy to have found this site. I hunger for knowledge and enjoy sharing mine, gained over time spent in illness, recovery, research and discussion.

Thank you again and best to you.