“No evidence” does not mean that tick transmission of Bartonella to humans has been proven to be impossible or improbable. It simply means no research has validated direct transmission of Bartonella from ticks to humans.
This might help you understand more.
https://www.ncbi.nlm.nih.gov/pmc/articles/pmc3104967/?tool=pubmed“
It honestly bothers me that this forum goes against the CDC.That’s a little backwards. The CDC has and still goes against the totality of historical research regarding Lyme disease. If I am not mistaken, they did change some of the data on their website a couple years ago during the activity of the working group in DC, but not enough to fully and accurately reflect research and observations regarding tick borne diseases currently accepted by Lyme and tick borne disease specialists.
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. . . while doctors and scientists who have studied this disease have no evidence that this is true.The doctors and scientists who actually have spent years studying Bartonella spp are actually Dr B and Dr M. They don’t work at the CDC. There has not been definitive research establishing with conclusive evidence that ticks directly transmit Bartonella to humans, as far as I am aware. There has been other research that suggests that they do, in fact, transmit Bartonella. Read the article I linked.
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Even though the cdc may not know everything, they definitely know more than the people on this forum.. They “know” what they want to know and what fits their narrative. They are not looking to solve any mysteries or uncover the truth and reality about
bartonellosis.
Just because people on this forum believe they have Bartonella doesn't mean they actually have it. It could be something elseOkay, so what else in the world causes the various skin manifestations that many with Bartonella get only after becoming infected - red, purple, or white streaks or lines? Unexplained scratch marks that, in some cases, bleed? I know of nothing else that causes the skin presentations like Bartonella does. These are combined with many other symptoms. Read this article to learn more about
what Bartonella actually does:
https://www.lymedisease.org/bartonella-prevalent-lyme-disease/. (I just found a really good interview article with Dr M, and now I can’t find it. I can’t remember what I had typed in the search when it came up.)
I have read multiple peoples stories and I only heard about 2-3 people testing negative on the igenex tests. For Bartonella??? Most people don’t test for coinfections with Igenex. Most people only test for Lyme with Igenex. At least they used to. Recent patients may have doctors who order a wider panel, but historically, Igenex has not been a preferred lab for coinfections.
I feel like they almost always give everyone a positive test for one of the infections.I only tested for Lyme with them, and my test was considered negative. Band 41 was positive and 39 was Indeterminate. If 39 had been positive, then the result would have been positive. I then tested with DNA Connexions, which did include coinfections. I tested positive for Lyme and ehrlichia. That lab looks for the bacterial DNA in your lab sample (think it was urine) rather than testing for antibodies which may or may not be present and cannot determine active infection. However, a negative result for a DNA test means nothing except that the bacteria wasn’t seen in your sample. They did not find Bartonella or babesia. However, I have had classic signs of Bartonella and some signs of possible babesia since childhood.
SO many people go through multiple round of antibiotics and have been on this forum for 10+ years still complaining about the things they were complaining about 10 years ago.Yes. Many on this forum have been ill for many years and have treated for long periods of time. However, I believe most have not treated for years on end with no changes. Many have treated multiple times over a long period of time and may have taken breaks, changed doctors, changed treatment plans, etc They may have recovered to some degree but never reached total remission. They may stop treatment altogether for a period of time or stay on some maintenance type treatment. Some actually did get to total remission and then relapsed some years later. It’s sad but true. That said, my general impression from those was that treating relapses was easier and took less time.
And for those who did get better, they could have just gotten better over time as our body is always trying to heal itself.Frankly, I have heard of no one who experienced this. Most people who don’t get diagnosed and treated right away experience something similar to what I did. My initial symptoms improved over months, but my body never felt the same again. I then spent the next 6.5 years feeling inexplicable symptoms coming and going randomly, often one at a time. Then, bouts of symptoms starting staying longer with less time between bouts. New symptoms emerged every year. Then, after getting sick with a respiratory infection, it all hit the fan, and I became disabled. I couldn’t sit in silence watching and waiting anymore. It was at that point that I started to seek answers again after my initial efforts led to dead ends. That time I didn’t stop until I got answers.
I hope this helps. I think it took me an hour and a half to type this.