Has anyone done double dapsone from horowitz? the 8 week protocol

bro123 said...
Has anyone done double dapsone from horowitz? the 8 week protocol. What was your experience? Also, is dapsone that great of a drug? Ive heard good things about it and if so im definitely looking forward to taking it. Does it treat confections?

Dapsone was one of several abx I took to get into remission.
I can’t say for sure how much the dapsone played into my remission.
I was taking several abx on a 4 week schedule (pulsing)

I tried it through my local LLMD. I was in a weak place both physical illness wise and mental health wise (for what it's worth I think those two aspects are connected) and the protocol was too aggressive for me at the time. I made it almost a month into the protocol. Ended up in the ER cause I felt like I was dying and then stopped the protocol.

Lymie:

“ Ended up in the ER cause I felt like I was dying and then stopped the protocol.”

My husband almost took me to the ER when I was on the dapsone protocol.
Very high fever - body pain and I had tremors.
My husband called in sick to stay home and take care of me.
I was scared - I felt so awful.

Girlie can you elaborate on the Persister protocol? Im currently reading Horowitzs book now and I think hes talking about a similar protocol?
Weve been sick for years and have only really tried a few weird protocols. Im currently also reading the Buhner protocol. Im not sure which one to try next. Were waiting for symptoms to improve via iv therapy and ozone therapy. While we wait to start those therapies im learning about the two protocols and then will try to find a doc to do one of them. Its hard because there are few lyme doctors that I have found in OC California. Having a protocol I want to try will help me find a new doctor. Should I ensure the new doc is aware of the dapsone protocol? Our current lyme doc seems to only do herbal but every time we try herbals the herxing is too intense

Girlie said...

bro123 said...
Was around the time you took dapsone the turning point for you girlie? When did you notice that turning point?

Previously I had improved a lot with a LLND - that was 2014 to 2016… but plateaued.
He wasn’t authorized to prescribe Mepron for Babesia.
2017 I was without a Lyme doc.
I was concerned that I needed to treat Babs - got some Malarone from ADC and self treated for a year.

Still not feeling good enough, I decided to go to Dr J.

He had me on Mepron plus abx for approx 5 months.

Then the Bart/Persisters protocol approx 6-7 months.
That was when I took the Dapsone.
After that was when I felt that life was returning to more “normal”
Then I went on maintenance - and many months on it - I felt like I was ready to consider going back to work.

I would say the Persisters protocol (that included dapsone) was the turning point.