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Help with devastating IV herx

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Posted 10/27/2022 8:54 PM (GMT 0)
Please offer any guidance or suggestions. After doing oral abx/supplements/herbs for 5 months and not making enough progress, LLMD had me do 4 weeks IV Ceftriaxone.

After the 4th week I became sicker than I've ever ever been: violent shaking, shooting nerve pain in my legs, violent dry heaving/wretching, panic attacks.

We stopped all abx for now and will try to focus on detox. My questions are:

1) Is this really a Herx, or did the IV hurt me so much that I am now sicker again?

2) Has anyone here had a violent herx like this, with panic attacks, shaking, dry-heaving? What helped?

Thank you for any support you can offer.
Posted 10/27/2022 10:44 PM (GMT 0)
Hi and welcome to the forum 🙂,

Did you have any of these symptoms on the oral antibiotics?

If not, then I think this might be some type of a reaction (ie. allergic reaction) to the ceftriaxone as opposed to a herx.
Posted 10/28/2022 1:30 AM (GMT 0)
That does sound like a violent herx. Are you being exposed to mold or do you have mold toxicity. Mold can really cause serious detox issues which can make treatment unbearable. Something to consider looking into if you haven’t already considering the violent response and the fact that the doc wanted to do IV because you weren’t improving on orals.
Posted 10/28/2022 4:59 AM (GMT 0)
My LLMD told me that week 4 of IV Rocephin would cause a major herx reaction. It didn't for me, and progress was very slow over 16 months. Hang in there and take a break if necessary. Maybe pulse 4 days on and 3 days off like I did. Might help.
Posted 10/28/2022 5:37 AM (GMT 0)

Helptoheal said...
Please offer any guidance or suggestions. After doing oral abx/supplements/herbs for 5 months and not making enough progress, LLMD had me do 4 weeks IV Ceftriaxone.

After the 4th week I became sicker than I've ever ever been: violent shaking, shooting nerve pain in my legs, violent dry heaving/wretching, panic attacks.

We stopped all abx for now and will try to focus on detox. My questions are:

1) Is this really a Herx, or did the IV hurt me so much that I am now sicker again?

2) Has anyone here had a violent herx like this, with panic attacks, shaking, dry-heaving? What helped?

Thank you for any support you can offer.

“ After the 4th week I became sicker than I've ever ever been: violent shaking, shooting nerve pain in my legs, violent dry heaving/wretching, panic attacks. “

When I started a new protocol (a very aggressive protocol to target Bartonella and Persisters) under the care of LLMD Dr J (Washington, DC) my first round I herxed badly.

I had the shaking, bad nerve pain, along with a high fever and nausea.
Pain off the charts.
My husband kept watch over me all night and he called in sick the next day - he was worried - ready to take me to the ER if needed.

But the herxing each round after wasn’t as bad.
If I’m recalling correctly - DrJ had me take some of the abx on M/WF instead of 5 days straight.

I am now in remission and back to the land of the living - and I even started working again after about 7 years off.
Posted 10/28/2022 8:22 PM (GMT 0)
when i couldn't afford 25g vitamin c or 2 gram glutithione infusions . i found the most relief from binders like chlorella and doing hot bentonite baths ...remember everything is temporary...keep us posted
Posted 10/28/2022 8:41 PM (GMT 0)
Many years ago, I had similar reaction to same IV medicine. Fever shot up to almost 106, was shaking so bad I couldn’t hold the phone to call anyone, stuttering talking when some happened to come by. First time lasted about 45 minutes before fever started going down and shaking improved.

Being new to Lyme, I didn’t know what a herx was so I tried again next day. Same thing happened, but fever only to 103 and less shaking. Lasted 30 minutes.

Had doctor change me over to Bicillin shots.
Posted 10/29/2022 3:22 AM (GMT 0)
When I'm herxing, epsom salts baths really help me. I fill up the tub with warm water. Hot water could give you the shakes. Bring a heater into the bathroom if you need it to keep warm, and keep it far from the tub so you won't forget and be tempted to adjust it while you're in the water. I usually use 2-4 cups of Epsom salts and 1-2 cups of baking soda. I'd suggest starting with a much smaller amount, see how you do, then go from there. If you're worried about safety, wear a swimsuit and have someone supervise or keep the water level in the tub very low and use less Epsom salts and baking soda. Alka-Seltzer Gold with lemon helps me with herxes and slows my heart rate. Magnesium supplements help me to feel calmer. Magnesium Calm is great but it hurts my stomach, so I take magnesium in pill form. Usually the pills are gigantic so I chop them up or crush them and put them into capsules. The Healing Lyme book might have some symptom-specific remedies for you as well in the treatments section.
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