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Posted 10/28/2022 9:20 PM (GMT 0)
I'm in soooo much agony. Having Bart headaches and lyme is bad enough bt now this to top it off. Been having this issue for a while. So flank pain, bladder pain and urinating loads more frequently and it hurts so bad when I pee like if I'm peeing out a knife or sand paper. I've been checked for a uti 3 times and all negative. The thing is I'm still having this stuff come out my urine when it hits the toilet water. It falls right in. It's white in color and a misshapen tiny ball. Is it kidney stones??? The docs are so dumb and I'm extremely irritated that I have all symptoms of kidney stones. Doc says sounds like protein urine. Well if you Google protein in urine it says you can most definitely have kidney issues or stones. I have no kidney issues either. The new urologist they referred me to is booking all the way out until January 19th smh! While on my menstrual cycle this whole week the pain was so immense I could barely urinate. I also know endometriosis can cause this. I've had scar tissue removal from my previous c sections in the past and my doc also said he found "very little endometriosis " and also removed it. I can't imagine this pain being endometriosis and being progressed into like stage 3 or 4 although when you have this it does tend to get worse around menstrual cycle and makes you urinate much more frequently and also cause agonizing pain. The issue that still remains a mystery is what this white substance falling out of my urethra is while urinating. It literally feels as if I'm sitting on a knife and the pain is constant the past few days I could barely sleep at night. Also we know lyme and Bart can cause intercystial cystitis which hurts like hell. It doss feel bad like that and my bladder hurts and is so tender but the stuff falling out of my urethra is quite bothersome along with nausea and fast hear rate. Does this sound like oxalates or kidney stones?? I've also just read about bladder stones and how they're similar forming from kidney stones. This is a lengthy post with lots of questions but I have no choice and need a little insight. It's not yeast either because no itch? Only when urinating it comes out so maybe passing kidney stones in urine. If it's protein can the kidneys not be filtering well from lyme and detox, although my kidney tests are fine always? If it was protein in urine then it definitely wouldn't be causing any pain because I've had protein in my urine in the past , thanks in advance .
Posted 10/29/2022 3:12 AM (GMT 0)
Hello. I don't know about your specific issue, but Woodland Essence makes an excellent tincture called Bladder Support that is supposed to make it easier to use the bathroom. about the fast heart rate, I use Alka-Seltzer Gold (order online), sometimes with lemon. For nausea, I take ginger candy, like Prince of Peace brand. The lemon or orange flavors are good if you don't like straight ginger flavor. For general inflammation or for injury, headache, or bruising, I take Intenzyme Forte on an empty stomach, but not too much at once or it might cause a herx. For headaches at the front of the head, I use milk thistle. Of course, I'm not a doctor, so please do consult your medical professional before taking any advice. If you haven't already, sometimes it's good to see multiple doctors about your concern if the first one(s) won't listen and gently push them for answers if you have to. I hope you can find someone who will help you! Re. the urologist, sometimes doctors will have a cancellation list that can get you in sooner, but imho you need and deserve help right away. sad It sounds so painful. Maybe try urgent care? They may have a urologist on call--you can call and ask them before you go. Best of luck to you.
Posted 10/30/2022 6:26 PM (GMT 0)
I may have missed this, but have you had kidney numbers checked since treating? If it's protein, then, as you mentioned, kidneys make most sense. Maybe the kidneys are simply overwhelmed trying to rid the body of the waste from treating?

Also, with the headaches, does your neck get stiff?
Posted 10/30/2022 7:00 PM (GMT 0)
if it were me i think i would just pee into a strainer and inspect whatever the white substance is

if its a gooey mess - then is likely puss etc - and a sign of an infection ( there are some that dont culture well so do not tend to show up on standard tests)

if its hard and crystalline - then it cant really be anything but a kidney stone- these are made from crystalline substances such as oxalate, uric acid, etc - it would be unusual to be passing them every time you urinate though
Posted 10/30/2022 7:30 PM (GMT 0)

Garzie said...
if it were me i think i would just pee into a strainer and inspect whatever the white substance is

if its a gooey mess - then is likely puss etc - and a sign of an infection ( there are some that dont culture well so do not tend to show up on standard tests)

if its hard and crystalline - then it cant really be anything but a kidney stone- these are made from crystalline substances such as oxalate, uric acid, etc - it would be unusual to be passing them every time you urinate though

I did use the strainer. So it's white and mushy but not like a discharge. It's actually looks like yeast to best describe it. The doc called again and says no uti all clear they even sent it for a culture. They said no antibiotics needed and told me to hit the ER if I still have that much pain because it hurts when I urinate. It's an almost burning and stabbing pain while peeing like the urgency to go and feels extremely similar to cystitis. The stuff I was passing has slowed down a lot and barely can see it now. I've heard of people passing no stones but more oxalates which are like crystalozed poeces that come out in the urine. Do you know if oxalates look like yeast clumps? It looks loads like yeast clumps bt I'm guessing they would have told me that it was yeast if they ran a uti check. It did start up worse with my period I'd say.
Posted 10/30/2022 7:36 PM (GMT 0)

running wild said...
I may have missed this, but have you had kidney numbers checked since treating? If it's protein, then, as you mentioned, kidneys make most sense. Maybe the kidneys are simply overwhelmed trying to rid the body of the waste from treating?

Also, with the headaches, does your neck get stiff?



I haven't had blood work done recently just the urine tests. The doc says it sounds like protein the way I explained the texture of it. Even if it was protein because my.bodies filtering out all these toxins which I agree with, it still wouldn't cause cystitis or be that painful I can urinate though is what I'm thinking. With my headaches, my base of my neck will get stuck when I tilt my head back then it's a loud snap or crack sound. You can hear it across the room so I'm guessing that means it's stiff or getting stuck. Wondering if Bart would do this because the migraines are usually back of the head and base of neck.nsonbad I need to lay down 3 days straight with no lights, noise, etc. Painkillers never even touched the migraines. Sometimes potassium and magnesium help.
Posted 10/30/2022 11:05 PM (GMT 0)
I never figured out what caused the white cloudy urine. I would get it with borrelia herx, and it has gone away with treatment.

I'm not surprised that you got endometriosis. Borrelia majorly messed with my hormone levels, including testosterone and estrogen. This has also improved with treatment.
Posted 10/31/2022 2:08 PM (GMT 0)
if not crystalline its not a kidney stone - sounds much more like some kind of infection discharge

not everything that can infect the urinary track will culture
to culture it they need to know what to look for and use suitable media
if its something that will not grow in the media they use - then they will report negative
biofilm based infections are notoriously hard to culture

chronic UTI's have recently been added to the list of infections that are now known to be caused by biofilm forming bacteria - but whilst this is known in the research world - clinical practice is operating approx. 20yearsbehind the current state of knowledge, because this is how old the knowledge in most of the text books are - so you will have trouble getting conventional doctors to recognise it as a potential infection

you may have better luck with a functional medicine doctor or naturopath - who are generally more progressive
Posted 10/31/2022 5:18 PM (GMT 0)

Quin said...
I never figured out what caused the white cloudy urine. I would get it with borrelia herx, and it has gone away with treatment.

I'm not surprised that you got endometriosis. Borrelia majorly messed with my hormone levels, including testosterone and estrogen. This has also improved with treatment.

I was diagnosed in my early 20's with very little endometriosis but I had scar tissue. It's funny you mention hormones. I've head intercystial cystitis many times and I just read somewhere that when it's time for our menstrual cycle some of us are more prone to getting IC because of the drop in estrogen levels.
Posted 10/31/2022 5:22 PM (GMT 0)

Garzie said...
if not crystalline its not a kidney stone - sounds much more like some kind of infection discharge

not everything that can infect the urinary track will culture
to culture it they need to know what to look for and use suitable media
if its something that will not grow in the media they use - then they will report negative
biofilm based infections are notoriously hard to culture

chronic UTI's have recently been added to the list of infections that are now known to be caused by biofilm forming bacteria - but whilst this is known in the research world - clinical practice is operating approx. 20yearsbehind the current state of knowledge, because this is how old the knowledge in most of the text books are - so you will have trouble getting conventional doctors to recognise it as a potential infection

you may have better luck with a functional medicine doctor or naturopath - who are generally more progressive

This is immediately what I thought that it was some type of discharge and infection from the urethra. But the white discharge is more watery and frothy and is only coming out upon urinating ,not throughout the day. I have no stds or stis, no uti. However I've had intercystial cystitis in the past and it's hurts like a xxxxx. Feels like I'm peeing glass out plus flank pain. Either crystallized stuff or intercystial cystitis . I'll mention this did just start up while on my monthly cycle which is wierd.
Posted 10/31/2022 5:27 PM (GMT 0)
Im assuming we are all women on this post. Don't want to give TMI here but when I had started taking bile salts it made me go to the bathroom more obviously. From constipation and hard stools they then turned the opposite a little too soft. Long story short , when I went to wipe and clean myself, It must have transferred some stuff to the front area if you know what I mean first thing I though was e. coli because I've had this happen in the past. I was given bactrim but didn't feel better until a day or 2 later even though they said I had no uti. I think its a matter of what and how things are cultured. Also believe it or not, I've had too much lactobacillus down there and apparently it caused a lactobacillus infection which is very similar to BV or cyclical vaginitis. Do kindey stones feel like you're peeing out glass pieces or a very painful like stabbin?

Post Edited (MedicalNerd) : 10/31/2022 10:30:02 AM (GMT-7)

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