Shaky and weak legs

Has anyone had experience with very weak and shaky legs? I am currently treating for Lyme, bartonella and babesia. My left arm is very weak and right arm has lost strength. I started with a limp back in July as the bottom of my left foot was very sore (Bart) and my left knee was swollen. Since then, walking has deteriorated. In the last couple of days, I have felt a bit stronger at times in my right hand and even talking seems less labored. I just need some hope that I will walk again and regain my strength eventually. I know it will not happen over night, but again, just need some hope.

Hi, Ran. I'm sorry you're dealing with this, and I know how scary it can be! My story isn't exactly like yours, but just in case it's helpful:

I had been sick with tick-borne diseases and miscellaneous assorted associated conditions for four years when I caught a transient virus from my child in 2018. Within three weeks, I developed weakness and shakiness in both arms and legs. (It was fully bilateral, for me.) I needed help to get to the bathroom and bathe for months. Various doctors diagnosed various things: ER and urgent care doctors said viral myositis, functional medicine and PCP said "post-viral syndrome," LLMD said reactivated Bartonella and EBV and cytokine storm. Most of them recommended CytoQuel, transfer factor, and liposomal glutathione. My LLMD also though I was experiencing an adrenal crash and recommended Dr. Wilson's Adrenal Support. (I did not take all of these things, just passing along their advice.) Because of not being able to move much, I developed lots of other issues, and pre-existing issues worsened. about five months into this time, I read Neil Nathan's book Toxic and realized I was dealing with mast cell activation issues that explained my high level of reactivity and many of my symptoms. I also found a dysautonomia specialist who helped me figure out how to manage my dysautonomia symptoms better. I don't know exactly why, or if it was a coincidence, but once I started treating MCAS and POTS concertedly (including a limbic system retraining program) I turned a corner very quickly, and the weakness vanished.

This brings back bad memories.......that was scary and why I initially though I was getting MS. My tooth brush and comb would fall out of my hands.

The info on your other thread is also directly helpful for these issues also. They are directly related.

Numbness , tingling,and shocks to the extremities can also happen - when your sleeping (because of..low circulation again!!!). Bad way to wake up.

Post Edited (astroman) : 1/16/2023 5:22:29 PM (GMT-8)