HealingWell
Search Close Search
☰

Biofilm and heparin help

Support Forums
>
Lyme Disease
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 3/22/2023 9:25 PM (GMT 0)
I have a factor 5 deficiency, not Leiden factor 5. My blood takes forever to clot becausenIm low on clotting proteins. Is it okay for me to take nattokinase, serrapeptase, or lumbrokinase? I'm scared im going to herx of course smdh bt I'm more concerned about how it can effect my bleeding. I believe I need to address biofilm regardless of what the llmd says. Why take abx if you have all that biofilm stuck and fibrins? What would be the use? I don't want to take abx longer than needed. Years seem ridiculous to me and I just want to address the biofilms and it seems it would make a bigger difference.
Posted 3/23/2023 12:13 AM (GMT 0)
oh you mean thrombocytopenia....it was low platelets from bart in the marrow for me . do you bruise easily or have reynauds or livedo? any claudation that would point you to biofilms ? i used lumbro on a empty to clean up fibrin mess that was making my blood thick while having low platelets . with better blood flow herxes seemed less impactful.

fwiw the only substance tested and found to decimate borrelia biofilms is bee venom ( eva sapi) + i did like the way cinnamon kept them from quorum sensing . keep us posted on what you choose to do .

also its equates to about 1 month of hd treatment for every year you have been sick no matter the protocol you choose . something you should be aware of is if you release biofilms while not on a sufficient enough "killer" then one will have an uptick in symptoms and inflammation.

Post Edited (bluelyme) : 3/22/2023 4:16:18 PM (GMT-8)

Posted 3/23/2023 12:46 AM (GMT 0)

bluelyme said...
oh you mean thrombocytopenia....it was low platelets from bart in the marrow for me . do you bruise easily or have reynauds or livedo? any claudation that would point you to biofilms ? i used lumbro on a empty to clean up fibrin mess that was making my blood thick while having low platelets . with better blood flow herxes seemed less impactful.

fwiw the only substance tested and found to decimate borrelia biofilms is bee venom ( eva sapi) + i did like the way cinnamon kept them from quorum sensing . keep us posted on what you choose to do .

also its equates to about 1 month of hd treatment for every year you have been sick no matter the protocol you choose . something you should be aware of is if you release biofilms while not on a sufficient enough "killer" then one will have an uptick in symptoms and inflammation.

Not exactly, so I have the exact opposite of thrombocytopenia I think. When I get cut I bleed excessively because my blood doesn't make the clotting protein that's needed to stop us from bleeding. I have thin blood basically. Yes I bruise so very easily, cuts don't heal, and bleed lots. That being said, does that mean I don't have thick blood or fibrins, since I already had a blood thinning disorder?? Any claudation that would point me to biofilms??!! Well I've been sick for over 25 yrs so it's safe to say I have biofilms .of course most of us have biofilms because these infections have been in us long enough, not to mention yeast, bacteria, virus etc to add on to making biofilms.
Posted 3/23/2023 12:51 AM (GMT 0)

bluelyme said...
oh you mean thrombocytopenia....it was low platelets from bart in the marrow for me . do you bruise easily or have reynauds or livedo? any claudation that would point you to biofilms ? i used lumbro on a empty to clean up fibrin mess that was making my blood thick while having low platelets . with better blood flow herxes seemed less impactful.

fwiw the only substance tested and found to decimate borrelia biofilms is bee venom ( eva sapi) + i did like the way cinnamon kept them from quorum sensing . keep us posted on what you choose to do .

also its equates to about 1 month of hd treatment for every year you have been sick no matter the protocol you choose . something you should be aware of is if you release biofilms while not on a sufficient enough "killer" then one will have an uptick in symptoms and inflammation.

Cinnamon huh?? I've been herxing off Cinnamon and I thought it was just my imagination! I was thinking to try ceylon cinnamon which is the strongest.cinnamon has been making me bust a sweat lately, I space out a little, and I'm thinking that it must be making me herx or breaking up biofilms?
Posted 3/23/2023 7:20 PM (GMT 0)
the human clotting system is super complex

most explanations cover around 20 enzymes and co factors - but don't even mention Factor V

it is on a separate branch of the coagulation cascade that is not often described

https://en.wikipedia.org/wiki/coagulation#/media/file:coagulation_in_vivo.png

i mention this only to help explain that no one here - not even the most well read of us is in a position to advise what will happen to someone who has a deficiency in this factor - if they take things that affect other parts of the coagulation system

fibrinolytic are generally safe for most people at reasonable doses - but you are in a differed group than the general population and therefore - if it were me - i would be wary of simply rolling the dice
as - although the probability of an uncontrolled bleed may be small - the consequences can be large.

other non anti-coagulant biofilm agents would be a safer bet - avoiding this issue - eg xylitol
or at the very least do some thorough research on how fibrinolytics might interact in someone with Factor V issues - which i expect will be a pretty deep subject with some gaps in our knowledge.

Wikipedia has a good basic article on the role of the various factors - with references - which is where the diagram came from
https://en.wikipedia.org/wiki/coagulation
Posted 3/23/2023 9:28 PM (GMT 0)

Garzie said...
the human clotting system is super complex

most explanations cover around 20 enzymes and co factors - but don't even mention Factor V

it is on a separate branch of the coagulation cascade that is not often described

https://en.wikipedia.org/wiki/coagulation#/media/file:coagulation_in_vivo.png

i mention this only to help explain that no one here - not even the most well read of us is in a position to advise what will happen to someone who has a deficiency in this factor - if they take things that affect other parts of the coagulation system

fibrinolytic are generally safe for most people at reasonable doses - but you are in a differed group than the general population and therefore - if it were me - i would be wary of simply rolling the dice
as - although the probability of an uncontrolled bleed may be small - the consequences can be large.

other non anti-coagulant biofilm agents would be a safer bet - avoiding this issue - eg xylitol
or at the very least do some thorough research on how fibrinolytics might interact in someone with Factor V issues - which i expect will be a pretty deep subject with some gaps in our knowledge.

Wikipedia has a good basic article on the role of the various factors - with references - which is where the diagram came from
https://en.wikipedia.org/wiki/coagulation

Thanks Garzie, will look into the xylitol. Also I will read up more. There's also things like Garlic, ginger, red root amd Hawthorne can also thin the blood I beleive.
Posted 3/23/2023 11:18 PM (GMT 0)
Dr J who Girlie sees uses Xylitol + lactoferrin for biofilm - he took the idea from doctors using these on wound infection biofilms

many things that people say "thin the blood" don't really do that - its a kind of common parlance to avoid having to get into the weeds of what is really going on - often what they are actually doing is making platelets less reactive - as you can see from the diagram above - one whole pathway in the diagram of coagulation cascades above - is driven by platelet activation - so we are not really changing the viscosity of the blood - so much as calming down platelets - so they are less likely to trigger clots
garlic is one of these platelet activation inhibitors - maybe ginger too
hawthorn might be - not sure - Buhner says its aids with microcirculation - especially in the heart - but i don't think he was ever specific about the mechanism
red root i am not sure about - is generally used by herbalists ( eg Buhner) to encourage lymph flow and protect the spleen - but its another very astringent herb and these often inhibit platelets
others like this are dark chocolate, pine bark extract etc
Posted 3/24/2023 5:45 AM (GMT 0)
“Thanks Garzie, will look into the xylitol. Also I will read up more.”

Just be aware that the xylitol can cause diarrhea.
I would take the xylitol and soon after - I’m running to the bathroom.
Took it for a few days in a row - and “things “ didn’t normalize for a week.
Posted 3/25/2023 6:45 PM (GMT 0)
Good point about xylitol, Girlie. It's a high-FODMAP substance, so folks with IBS or other gut issues might especially react poorly to it.
Posted 3/26/2023 3:12 AM (GMT 0)
Lumbrokinase does not change the Ptt time like serrapeptase and Natto so it is why safer and works better also. So it would be safe in my opinion but I am not a dr I just read about the ptt time and how they affect the clotting time so you do not bleed to death. Look into it and ask a pro please.
Posted 3/26/2023 3:33 AM (GMT 0)

Donjr said...
Lumbrokinase does not change the Ptt time like serrapeptase and Natto so it is why safer and works better also. So it would be safe in my opinion but I am not a dr I just read about the ptt time and how they affect the clotting time so you do not bleed to death. Look into it and ask a pro please.

Hey Donjr!
Haven’t “seen” you on for awhile.
How are you doing?
Posted 3/26/2023 2:42 PM (GMT 0)
Still bad i have been struggling a lot. I had to stop abx and now just on herbs and trying to get to some better place. I can not stop for a day or i get worse. I have been here everday watching and learning but decided i can not give any advice because i am not making progress i was i thought at first. Thank you for asking and thanks for all the help you ALL give. Love you all.
Posted 3/26/2023 4:03 PM (GMT 0)

Donjr said...
Still bad i have been struggling a lot. I had to stop abx and now just on herbs and trying to get to some better place. I can not stop for a day or i get worse. I have been here everday watching and learning but decided i can not give any advice because i am not making progress i was i thought at first. Thank you for asking and thanks for all the help you ALL give. Love you all.

Sorry to hear that.
You don’t need to give advice - it’s fine to come on here for support!!
Posted 3/28/2023 11:24 PM (GMT 0)

Girlie said...
“Thanks Garzie, will look into the xylitol. Also I will read up more.”

Just be aware that the xylitol can cause diarrhea.
I would take the xylitol and soon after - I’m running to the bathroom.
Took it for a few days in a row - and “things “ didn’t normalize for a week.

I have this issue after eating gluten and already have fat malabsorption so it's a 50/50 change for me, but thanks for the heads up Girlie lol.
✚ New Topic ✚ Reply