sorry to hear of your frustration Loski - but this is very common
there was a study done in the UK on the attitudes and reasoning of general practitioners in their approach to lyme disease diagnosis. it was interesting
the doctors were essentially worried about
litigation or adverse consequences IF THEY DID diagnose Lyme - AND - if they IF THEY DIDN'T - so the safest course of action was to not even mention it on the forms and thereby avoid the subject all together - or put CFS on the form / system ( which is exactly what they do in the UK )
its clear from the remarks that these GP's are still assuming the tests are accurate and that this is how they should be diagnosing Lyme - whereas all guidelines say tests should not be used to exclude lyme diagnosis
conventional ID doctors are typically the same but even more circumspect ( i have seen 4 of them - none were any use )
Daniel Cameron MD wrote a blog article about
it
https://danielcameronmd.com/diagnose-lyme-disease/The physicians cite several reasons for their reluctance in considering Lyme disease as a diagnosis.
“If I can’t diagnose, I will pick the main symptom to code. I will always do this unless I’m almost [100%] positive of the diagnosis. Sometimes, if I’m really not sure, I will write everything in free text and not code anything.”
“I would never write Lyme disease on a patient’s record until I had a positive lab diagnosis. I’m wary because of potential litigation, and I don’t want to cause problems for future doctors treating that patient.”
“I won’t code Lyme disease until they’d seen an NHS specialist. I’d be very suspicious if it [laboratory results] was a “high street” or “internet” lab, so I would arrange serology to be sent to a local lab.”