Lymph Issues abound again! - Updates Also :)

Hey All,

Hope you're all doing well. My husband and I are now seeing Dr. S in Provo for our issues and are excited. I started some LymphActiv and 5-MTHF, and at first, I was feeling great and like things were moving, but now my lymph is feisty. Dr. S looked over all my blood work and is concerned about my high Mycoplasma and Rickettsia. She wants me to do Cryptolepsis and Samento for them. She likes Red Root way more than Poke Root and wants me to use that. Do you have any advice also?

It swells a lot but does go down. We're first working on trying to level out my thyroid and hormones. Hormones seem to be fighting back. She is concerned about those as well. My NP thyroid 90mg seemed odd, too. Doesn't smell like a pig or taste like it. Hope it's the real deal. I got it from the local pharmacy with a script. Let me know what can help lymph and for any advice. The chest pain is nasty at times.

Thank you!

Nice list, Emma!

I just wanted to add for Savedbygrace that red root makes a lot of people's lymph nodes swell, so that might just be expected, and not an indicator that you are particularly stagnant in the lymph realm. And hooray for finding a new doctor that you like!

Yes the 5-MTHF is for 2 MTHFR genes that I have.

I have actually not been back on the red root for many months so I know the lymph is swelling for other reasons.

Yeah the new doctor is great. The biggest issues I’m having currently is the lymph issues and the vertigo. It comes on out of no where and freaks me out. My eye has nystagmus with it as well. I can be eating and all of a sudden feel as though I’ll pass out. Anyone else have experience with this?

No my doctor could actually see the nystagmus when she assessed me physically at the office. I am going to ask her at my appointment on the 29th if I need to make an appointment with my eye doctor.

Vertigo is the very sudden sensation that I am going to pass out and feel like I'm having a major anxiety episode. My jaw has been getting very tight for the last 6 months or so, and the vertigo starts up when that happens, so the motion of eating has brought it on and moved my head the wrong way. A doctor at the ER in October diagnosed it with nystagmus as Benign Paroxysmal Positional Vertigo (BPPV). The inside of my head feels like it's spinning, and my heart starts racing when it happens cause it scares me. Mine doesn't happen after I eat or before it's right as I start and when I'm chewing if my jaw is tight. I am much too young for postprandial hypotension, too, being only in my 30s. The dizziness with eating has happened 3 times in all. I will ask the doctor about it. They say postprandial hypotension virtually never happens outside of the geriatric population. However, I have heard MCAS and such can bring on these symptoms.

Yeah, my hormones are a mess, and when my thyroid levels out, that seems to be the only time lately when it's not a problem. I wonder about MCAS also, as this morning, I woke up with an asthma attack, and my immune system is down right now due to a UTI and taking Macrobid and a little Bactrim.

It's certainly all freaking me out right now. Thanks for your help with it!