Complicated Migraine

I have complicated migraines, basically that means chronic and hard to treat. I am so sorry you have to deal with this. I'm still on the search for relief, as most of us are. I hope you find something that works for you. BEST to you.

Hi ladies,

I too am new to the boards and suffer from severe debilitating migraines, cluster headaches, and tension headaches.  I have suffered over the past decade with all 3 types of headaches and my doctor and I felt like we were out of options.  I hope you are able to find something that fits your needs and allows you to get back to your life.  I recently started taking a nutritional supplement called Cephpax and it has really helped, no migraines or headaches for 3 weeks.  I am only in the first month free trial, but for me it has been great.  I think like with anything in medicine, you have to find a doctor that is willing to work with your individual needs and allow you to decide what is best for you.  For me, I could not take Topamax and some of the other prescription drugs because of the side effects, just make sure that you & your doctor are on the same page as far as what you feel comfortable with.  Good luck!

I have had one migraine that produced stroke like symptoms. It was the scarriest thing. I could not talk, had numbness in my left side, and a stabbing pain in my head. it was crazy. Eventually my neuro. just said that it is a type of migraine, and that there isn't any "harm" going on, like if it were a stroke.
Luckly, i've only had one of this type. I bet it is very hard for you to deal with this on a regular basis. I don't know if treatment for this type is different from a classic migraine. i hope you find something soon to help you.

Hi AngMichelle,

Yes, it has been very scary--they have varied so much in symptoms just some weakness and numbness to paralysis. It took 6 months to get a diagnosis, because most doctors don't know what it is, so they just assumed I was having TIA's/stroke (or whatever else)since I do have high BP--but I'm still in my 20's. I was even skeptical of the diagnosis, because I have never heard of anyone having the symptoms until just reading your e-mail, that can be a typical one for me, and that is what the doctors tell me--I do have to take aspirin as a preventative for stroke and avoid any meds that increase your risk for stroke. Also, I take quite a few preventatives that I was just started on (4), so we will see if these work...I think I take the same types of medicine, maybe just a little more--that is what I gathered from the headache unit at hospital, but I could be wrong...Take Care!

HopefulMigrainer-Hi, it's got to be hard to catch a break when you have so many different headaches going on. Your neck also causes headaches? Is that from the way the head moves, and then it sends a radiating pain up the head, ouch...

Nicky-I never realized medications had so many severe side effects until I started recently on these new medications and have had a hard time with them. They really can take a hard toll on your body, and make it next to impossible for you to function. I hope you find a combination that works for you and gives you some relief from pain and side effects.

Thanks for all the replies!!

I am new to this site...this is my first posting.  I have had a continuous headache, every single day since 2/15. All my neurologist does is change my meds every month & so far no single drug & none of the combos he has prescribed have done the trick.  I have been going to the chiropractor every day for the past 3 wks and so far no change, but I am still praying for it to work.  I just received my free sample of 'cephpax' and I am now more hopeful because of the posting here from spass2006 expressing having good results from the supplement.   I have suffered from migraines since I was 12 & I am now 54.  I have been on numerous meds that work for a while, but then stop.  Imitrex injection seems to work the best, but my neurologist will not prescribe it for me anymore because he says I have been on it for too long already & the long term effects are not good.  He said it affects your liver & kidney.  Has anyone else heard of this?  Good luck to anyone who suffers with headaches.  People who do not get constant headaches have no clue what it is like.    Have a great Thanksgiving!  Keep the posts coming.

Brea,
As I said in my post, unless you are a migraine/headache sufferer, you have no clue as to what one goes through. I too have taken all of the meds you listed and then some. The only thing that has worked for me on a regular basis is Imitrex Injection, but as I said, my neurologist will no longer give it to me because he says I have been on it way too long already. He has been trying combo meds, but still to no avail. I too am at a point where I would try anything. I am hoping the cephpax is something that will work. Maybe you should try it out. You get 2 bottles of 60 pills in ea for the cost of S & H which was $5.05. As long as you cancel within 60 days, you will not be charged for any more shipments (unless of course they work & you want to order them). Here is the link for the free trial, just in case you are willing to give it a try. I just received my bottles, so I will be started them ASAP. 'spass2006' says he/she has started taking this & so far it is working. Give it a try. God Bless & good luck.

If you would like to know why I edited your post please feel free to email me.

Post Edited By Moderator (Annuk) : 11/23/2006 11:51:21 AM (GMT-7)

Hi Brea,

Welcome to Healing Well. I'm sorry you're having such a difficult time right now. Unfortunately there are many of us here who share your pain.

Like mommyto3 asked, have you been to see a headache specialist? a neurologist that specializes in migraines? These are the best people to help you.

If this is all knew to you, then you need to figure out what works and what doesn't, what triggers you and what helps you get over a migraine.

For example, I take an amerge at the start of a migraine, then 2 T3s, then 2 Ts, 2Toradols, 2 Gravol and an Ativan. That usually kills the migraine or at least knocks me out so I can sleep. I have cold packs for my brow and hot packs for the base of my spine - cranial sacro therapy. I have developed these plans with my doctor. I am on preventative medications in the day so I only deal with one or two migraines in a week.

I know what foods, weather and even odours trigger my headaches so I avoid those at all cost. Again in the event I do trigger one, I have my little plan.

I have never been to a hospital because of the horror stories I have heard. I am lucky my doctor is happy to prescribe all of the necessary drugs so that I can keep a headache at bay without visiting an ER.

I hope this helps and I hope you are able to find some relief.

Keep in touch. We're thinking of you.

my daughter was helped a lot with cephpax. google it.