what else can i do?

My name is Hollie and I'm 22 yrs. old.

After being diagnosed with almost 20 ear infections in 2 yrs. I was sent to an ENT doctor...

who told me that my ears are perfect except for some scar tissue on my ear drums.

Hard to tell how many times my family doctor misdiagnosed what she was seeing.

Then about 6 mos. ago I started getting horrible headaches.

-numbness and tingling in my face

-sharp pains

-pain behind my eyes

-my ears still hurt like they are full of fluid

when the headaches come on, it almost feels like a seizure and as it persists i can hardly move or speak clearly.

A couple of weeks ago I had an MRI done and it came back fine.

Now my ENT specialist is sending me to a neurologist and as soon as my new insurance takes effect I am going to see an optamologist.

is there anything else I should do?

is a similar situation driving anyone as crazy as it is me.

Hollie, hopefully these aren't migraines. As jewishmother said, migraines are a "rule out" diagnosis. If what you are describing IS coming from migraines, get ready for a long, expensive process before a good neurologist reaches that conclusion. You said, "when the headaches come on, it almost feels like a seizure and as it persists i can hardly move or speak clearly." Is this due to the pain or does it feel like the motor and speech centers of your brain are actually being affected?

Hope you get some answers/relief soon!

Maintain a diary of headaches. This will help the neurologist to figure out a few things. Write as much as in detail as possible. Search for headache diary on google and you will find plenty of examples.

I maintained such diary for last 2.5 years and it pretty much helped my neuro to figure out my migraine and to me to see if the medication prescribed was working in any way. Some of the medications are very expensive (e.g. Topamax) and the insurance companies are ***** so you also need to make sure that everything works out in a way that you get your headache resolved and you are not dumped by insurance companies in any way.

Are you taking any abortive (like Advil or Alleve) at the onset of headache? If yes, does it work?

I got my MRI done. The neurologist wasn't positive about CT scan. MRI didn't show anything (as he already expected)

Inflammation is my theory too but apart from the fact that NSAIDs work on my migraine, there is no other evidence that I have proves it to be an inflammation. I talked to my neurologist about it and his answer was same, its a theory but no proof. I asked him to look it in that way and give me medications accordingly. He wasn't positive and told me that it doesn't work that way.. So my goal was, give me any darn thing to get the migraine episodes under control. I am happy that they have reduced now but I don't have an abortive yet.

BTW, what kind of muscle relaxant are you using? Does it work as an abortive?

Advil is good but long term use is not recommended, else you may want to look into PepZinGI supplement that you could use with Advil. Meanwhile, my recommendation is, talk to the neuro. May be something else will be more helpful and Advil stays as an abortive.