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New Here, 1st post and need help! Thanks in advance! :)

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Migraine Headache
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Posted 4/15/2016 12:06 PM (GMT 0)
Hello! New here… Try to briefly explain… Back last end of June/July, I had a awful headache something I had never experienced before, it started out on the side of my head and then went to the back of my head, felt like constant tightening/burning, etc. I have tried a lot of different things but it seems like since I had that awful headache I have been left with random awful pains in the back of my head. One Neurologist told me Occipital Neuralgia – I did the nerve blocks and still had/have pain. Went to another Neurologist who has been doing this since 1974 – he told me it wasn’t that because I’m not sensitive back there at all. I have had a brain and cervical spine MRI – all fine. I’ve tried amitriptyline, gabapentin, Xanax, nothing makes this random pains quit!

Went back for a follow up and he has put me on methylprednisolone to ‘break this migraine cycle’ which is how he described this, also told me to quit Xanax and start Topamax 25mg at night.

This is all new to me, is it POSSIBLE that someone can have a headache almost a YEAR ago and still be left with daily random pains? It’s just hard for me to understand all this seems crazy to me!

Prior to this I’ve never had a history with headaches.

Like the last few days I feel pain a little past my hair line, like top of head.

Just asking for someone to please help and help me understand! I just want this to go away, this has been so stressful for a year now. : (
Posted 4/19/2016 3:41 PM (GMT 0)
Hi

I have neuralgia and am on topamax and 3 other drugs for pain maint. However, I have nerve damage from trauma.

If you don't already, I suggest you keep a pain journal on calender based form so it is easy to see your pain cycle. 0-10 10 being the highest level of pain.

This helps the doc know when to increase and/or add change meds.

I have been doing this since 2006. Your body changes often so triggers change and then meds need to change. Accept this and the frustration will not cause more pain.

I see a neuro at the Headache Center Jeff Univ in Phila PA.

I suggest you see a neuro in a major center. They are not warm and cozy like a small practice, however the pain is well managed.

But if you like the doc you have and the pain is managed to reason to leave.

Best of luck
Trina
Posted 4/21/2016 4:45 PM (GMT 0)
CGreen I'm new to this too. I don't have pain from Migraines, I get numbness. I just posted something kinda like your post. I've been going through this for 4 months. But if my docs right (and 3 nueros from different practices) have said the same thing, I've been having migraines since 1997. I didn't know I was having them, and for the past maybe 5 years I may have been having them as much as every day....or at least the aura everyday.....

I know this isn't the same as your case. I know that having the pain has to be horrible, and I don't mean to compare the two, but it's very frustrating not knowing or understanding and having the very real feeling that the doctors either don't care or don't know....but I think yes, you could have a migraine for a year.....it be ongoing....from everything I have come to understand in this short period of time....I was diagnosed with Status Migrainosus with aura without pain....
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