HealingWell
Search Close Search
☰

Cluster headaches

Support Forums
>
Migraine Headache
How to be rid of Cluster Headaches?
Medications? - 66.7% - 2 votes
Home remedies? - 33.3% - 1 votes
✚ New Topic ✚ Reply
❬ ❬ Previous Thread |Next Thread ❭ ❭
Posted 5/5/2009 8:11 PM (GMT 0)
Has anyone else suffered from Cluster Headaches?  I need some suggestions on how to be rid of them.  I am headed to the Neurologist tomorrow and hopefully, I will find someone who can understand what I am going through.

Please let me hear from you!

Linda

Posted 5/6/2009 3:01 AM (GMT 0)

Hello Linda,

I am experiencing cluster headaches for almost a week now.  I can certainly relate to the pain you have.  I plan to give it another week and then see the Doc. Please post what your Neurologist thinks may be the cause.  Hope you feel better.

Seaya

Posted 5/9/2009 12:41 PM (GMT 0)
I was DX with Custer Migraines many yrs ago and was put on Fiorinal C 1/2

I stopped taking them over 5 yrs ago and now take metoclop (sp) ( 3 at onset) and they seem to work for me ............

I know that they are very very debilitating for me so yes I can understand some of what you go thru

What did Doc have to say (Neuro)

..........lyn
Posted 5/11/2009 4:30 PM (GMT 0)

Hi Linda.

I was diagnosed with migraines over 1 1/2 years ago.....for the first time in my life at the age of 35 I was knocked to the floor with these headaches. Just recently my doc told me that he thought I was experiencing cluster headaches. My symptoms would feel like an "electric shock" in my head and last steadily for about 10 seconds. These would happen throughout the day. Are you experiencing something like this?? Have you seen the neurologist yet?

Looking forward to hearing from you!! Take care.

Krista

Posted 5/24/2009 2:56 AM (GMT 0)
I don't have cluster headaches, but a friend of mine did, so I have a little info to share.

But first, you might want to take a look at this:

http://www.headachedrugs.com/archives/preventivemeds.html

I understand that oxygen can be a abortive if taken at the first hint of the headache. The drug Indocin seemed to work for her too.

best regards,
Robert
Posted 5/26/2009 12:27 PM (GMT 0)
I work on a Cluster Headache Helpline here in the UK - there is a link on this site somewhere to the organisation I work for but for ease I will give it to you!

www.ouchuk.org.

The first line of abortive treatment for CH is Oxygen 7-15 litres per minute with a non-rebreather mask together with Imitrex injections.

Preventative treatments vary from Verapamil, Topiramate, Lithium, Methysergide etc. Indomethacin only works for Paroxysmal Hemicrania and Hemicrania Continua - NOT Cluster Headache.

For your information the term 'Cluster Migraines' is incorrect as Migraine and Cluster Headache are very different.

If anyone wishes to contact me via email please do so and I will help as best I can. Just click on the envelope under my name!
Posted 5/31/2009 5:56 AM (GMT 0)

good to see you around! I hope you have been well.

How would you feel about creating a separate post with information about CLUSTER HEADACHES, maybe a 101 and include the organization you work with and how to contact? tongue   I think it would get better "visibility" that way and maybe can reach a few people who wouldn't necessarily open this thread?

Posted 6/1/2009 11:03 AM (GMT 0)
Thank you Sara, I have not been to good of late as I can now no longer take Indomethacin for my Hemicrania Continua as it has damaged the lining of my gut - thankfully no ulcers!!!

I have recently been in hospital for a week for IV DHE for my Migraine, which helped while I was on the IV lol but oh boy has given me such a rough time since!!!

I am now trying Celecoxib, but my Consultant wants me to have the ONSI (Occipital Nerve Stimulator Implant) but has to have documented that I have tried absolutely everything first!

Right I will get on to putting some info together regarding Cluster Headache and maybe ask Peter if he can make it a sticky thread!! I apologise if this takes me a little while but things are a bit rough at the moment!

take care

Ann
Posted 6/2/2009 12:53 AM (GMT 0)
Ann & Sara, I had actual clusters as well, I say had, because the in-patient treatment at Chelsea with MHNI helped to break a portion of it. (Knock on formica), gone is the head banging, rolling on the floor, call the ambulance pain, but I still go into significant pain cycles at the winter and summer solstice...which, I know, I'm starting into a cycle as we speak; now I'm classified as "cluster features".

I will average 5 to 7 headaches a day, with the pain increasing as the headaches go on through the day, my ear hurts, eyes start tearing and my nose gets congested (I should say the left side), my pain is left side predominant.

Anyway, I with you with this idea!; I'm curious to hear what people are using for abortives now, my mainstay has been fioricet, but it is starting to lose its efficacy and that has me worried.
Janice
Posted 6/5/2009 5:42 AM (GMT 0)
Ann-
I think we need several "sticky" posts. Email me when you are feeling a little better and we'll work out the details! I have missed you! I am so sorry you are struggling so much, ug...I hate when a med that is working for one things causes a big problem elsewhere. I'm very interested to hear what they are saying about the ONSI- my doc and I have been discussing.

Well, I hope you get feeling better ASAP! Email and let me know how things are going.
Posted 6/5/2009 5:45 AM (GMT 0)
Oh Janice..I hope you find something that works! I was on fioricet for a while (many years ago) and it lost it's "umph" for me as well. I hate that you are still having that much pain but glad that it has been downgraded to cluster "features"
(((hugs))

finally heading to bed...Nite!
Posted 6/17/2009 9:47 AM (GMT 0)
ann if u need a hand with this gimme a shout!!!!

guys i'm also a helpliner along with Ann, if any one needs any info and Ann's not around please feel free to ask!!!!!


Sandra xx
Posted 6/20/2009 6:40 PM (GMT 0)
Thanks Sandra, I am liasing with Sara to see what we can set up as far as ready info is concerned!

take care

Ann
Posted 6/22/2009 2:28 AM (GMT 0)
Did you get my msg? I would definitely talk to admin.

You should go ahead and post a Cluster 101 type msg and we can keep it "bumped" before Sticky :-)
✚ New Topic ✚ Reply