On-going Hemiplegic migraines.

You and your Dad are not alone.  I have been going through these headaches for the past 4 weeks.  Daily.  However, I got some relief on this past Saturday after going to a healing service at my church.  I know, it sounds silly, but it was amazing.  I fainted during the healing of hands and when I came to, the pain was gone!  The pressure was there but the pain was gone and even my crooked mouth was better.  Then Tuesday evening I went to the chiropractor and after he did the popping of my back and neck and shoulders, the pressure was gone too!  I was so happy.  I actually slept 8 hours last night - a first in weeks!  However, after today's session, I developed a slight headache, but that is all it has been for the past 4 hours.  I have not taken any pills.  I will take my usual pill before bed and pray the pain does not return.  Truly, I trust in God, and feel he is working in me now and that is why the pain has subsided.  Call it what you will - I found relief in Him.  But, you need to do what feels right for you.  Always have contact with your doctors and take your meds.  Things will get better for your Dad and you.  Take it one day at a time. 

Hi Stop Think Feel!!!
I too have FHM, i have had them since June 2006 and that first 7 month before they new what was wrong with me i had attacks almost every day really bad onces
Often they could bee ongoing in 2 weeks without a day of relife and then 1 day off and the next day attack again, when they dignosed me i got Lamictal 200 mg
epilepsy med and that have done wonders for me, I only have some smaller one attacks per month now, ok well i can have really bad once too but not every month.
I no that we can have many weeks long attacks without any break, so...They just have too find the right kind of med that he responds at, sometimes that can take time
to, but beacuse we run a big risk to actually get a Stroke when we have the attacks, it is really important that we find something that can help minimize the attacks to a
lower level.

I really hope that they find one really soon that´s suitable for him!!!

Sweden

HI SouthernWoman,

I'm sorry to hear about your situation. I can understand what you are going through. As I stated earlier in this thread I have had Right-sided hemiplegic migraines for 3 years ago now. My migraines I believe are genetic although I've never had any testing. When I first starting having symptoms I had every diagnosis in the book thrown at me: Multiple Sclerosis, some weird tropical diseases (I was in a foreign country for a short stay), seizure disorders etc. My symptoms range from eye twitching, facial pulling, tongue and mouth numbness, pins and needles of extremities, right sided body weakness or paralysis (when my headaches are severe), & a whole host of other symptoms. I have had combo of over 50 or more of these symptoms in a day when my migraines were really bad. I believe (not sure) I may have experienced some symptoms of numbness and burning on both sides of my body, but never weakness or paralysis. So it seems anything under the sun can be possible with these headaches, but you still have to check with a doctor to make sure nothing serious is going on.

I like you find most of my info through on-line articles and websites and those are pretty scarce. First I think you really should try to find a good migraine specialist if you don't have one already, they are more specialized than a general neurologist. You can research and find doctors who are migraine specialist by your state and city who may be covered by your health plan. They have the links on this site. I found my neurologist through the links in this website . He is a good physician and he is confident in his ability to treat me (We'll see ). He knows about the disease, and has treated another patient before me successfully.

Also rely on as many people as you can, it's great you have a support system in your husband. But, don't feel guilty to rely on other people too much. That's something I'm dealing with right now. Hemiplegic migraines and the difficulty they bring can be very hard to deal with on your own or as a couple.

Wishing you the best,

HemiL

Post Edited (HemiL) : 8/2/2010 5:09:02 PM (GMT-6)