Vestibular Migraine, Hydrops and Possible Superior Canal Dehiscence

I'm new here and have been dizzy and off balance for 5 years with ALL the symptoms.  Sensitive to light, noise, smells, alcohol (major bummer) fatigue brain fog, you name.  It all happended after I had my second child.  I'm a 38 year old femaile.  I recently suffered 2 debilitating attacks of violent vertigo 10 days appart from eachother and never fully recovered.  I finally found a neurotologist who was convinced I was suffereing from Vestibular Migraines until he ran all the vestibular tests and found high fluid pressure in my right ear (not Menieres) and what looks to be a Superior Canal Dehiscence(a hole in the semi-circular canal bone).  He decided since surgery is a big decision and I don't have really any of the symptoms of the deciscence we would try to treat all of this like Migraine and if I get relief from meds then its Migraine and not the dehiscence.  I also have to eat a reduced sodium diet for the hydrops which he also told me 1/3 of people with Migraine have hydrops as well.  My question for anyone out there is does anyone suffer from the vestibular migraines and have hydrops as well or any other inner ear problem?  I tried 4 days of Verapamil and it exausted me and made dizzier! I will never try Topomax.  I am extremelely sensitive to meds.  I was only on 40mg 2x a day of verapamil and couldn't handle that.  I also think doctors like to treat one problem with meds that were designed for another problem and I think it's stupid.  Some people get relief and that's great but I'm looking for a more natural solution.  I just went back to work after 6 weeks off because of the vertigo and feel like I'm going to have to file for disability or something!  The last 4 years of my life have been so depressing.  My kids don't think I'm fun.   I can't even jump on the trampoline with them let alone EVER ride a carnival ride.  I used to love doing all that and now everything makes me dizzy and causes major anxiety and panic attacks.  Is there anyone out there like me?

Emma,

Thanks for the reply.  I joined that support group but it didn't seem to fit for me.  Everyone was kind of either pre surgery or post surgery and I don't even really have any of the symptoms of SCD so I haven't really been on that site.  Maybe I will give it another shot.  Before I do I wanted to ask you what your symptoms were?  I don't have any of the hearing noises in my ear although when I am active or straining or doing heavy yard work I do get dizzy.  Last year I was sick a lot and if I went into a coughing fit it made me really dizzy.  My doctor said that he wanted to treat me for Vestibular Migraine first and didn't think I should have the surgery.  He said that 1/3 of people with Vestibular Migraine have hydrops and if I get relief from the Verapamil then it is definitely migraine which might also dry up the hydrops.   If I don't, then it is probably the SCD.  This is all so confusing to me.  I wish I had a cut and dry diagnosis.  My suspected SCD is so small that he is not sure if it is even really there even though I had a positive VEMP test and positive ECOG.  He also said that if it is there it could get larger at any time and I could start to experience symptoms.  What do you think?

Leslie