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Benign Raised Intracranial Pressure Or Idiopathic Intracranial Hypertension

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Migraine Headache
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Posted 3/30/2012 11:03 AM (GMT 0)

Hi,

I have read through a couple of threads and thought I should tell my story. I am a 31 year old woman living in Zimbabwe. For the last 5 years I have suffered from incredible headaches. After being through litterally countless medications, Tramadol, Doxypol, Over the counter drugs aswell as diclofenac injections, I have finally found a Professor of Neurology who is actually taking me seriously. I am due to be admitted into hospital for Ketamine Treatment. I have been diagnosed with Benign Raised Intracranial Pressure Or also known as Idiopathic Intracranial Hypertension. Finally after so many years of unbelievable pain, we are getting somewhere. I read a thread written by Ben and found his post to be very encouraging. Which lets face it, anyone who has experienced this kind of chronic pain would do anything to just make it stop!! And so thank you to Ben / korbnep for giving me hope.

I sincerely hope we all at some point, rather sooner than later can hopefully live pain free and happy, active lives. Good luck and God Bless you all.

Kind regards,

Tammy.

Posted 6/18/2012 12:27 PM (GMT 0)
Hi Tammy

I am 35 and from the UK.I was diagnosed with intracranial hypertension in 2008.Over the years, headaches that I had, I just put down to normal every day headaches brought on by the stresses of every day life.It wasn't until my ears started whooshing continuously that I realised something was wrong.My eyes were very sore and I realised that I had lost some vision in my left eye.

I was admitted to hospital as an emergency and after ruling out a brain tumor I was told that I had this.I had a lumbar puncture with an opening pressure of 38 and was promptly diagnosed with intracranial hypertension.My left eye was in a bad way.I had lost vision which turned out to be permanent.

All these years on, I am still under the care of a neurologist and I take diamox which keeps my symptoms some what under control.It can be a misunderstood condition as it is rare and often difficult to find some one who understands the invisible pain we as sufferers got through.

Good luck to you Tammy.I would be interested to see how things are going for you now.If you are on FB we could connect as I run a very active support group for sufferers of this condition.

Take care xxxx
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