21 y/o F, constant 22 month headache

Everyday. For 22 months. Soon it will be 2 years. I'm not in school, I can hardly leave my house. I'm crippled by the constant 5-8 pressure in the front of my head, and the depression and anxiety that comes with it. I've tried every medication. Had every scan and test. No help, no answers. Seen over a dozen top doctors in Los Angeles. I've been diagnosed with dysautonomia/POTS but don't believe this is the cause for my headache. I attribute it to teenage trauma, and trying a birth control pill (headaches started once I tried the awful pill for a month).

I really really want to die. No one understands the sufferig Im enduring. I'm almost 22, since I was 19 I've had this pain. I spent my 21st bday in the ER. A good day for me happens once a month when I leave my house for ice cream. Please help me. Give me advice. I'm on all kinds of supplements. Changed my diet. No help. I want to die.

If I were in shoes, I would get a genetic profile done with 23andme.com and have the results interpreted by geneticgenie.org or another of the sites that interpret raw DNA data. I would see where my genetic mutations were and supplement appropriately. Aluminum can block the methylation pathway but it can also block estrogen excretion. This could be your problem.

Many people with POTS have Lyme Disease and go undiagnosed as traditional medicine fails most Lyme patients. I would read as much as I could in the Lyme forum and do what they do to reduce their metal load and detox.

Georgia- I have already done the 23 & me test, just waiting for the results which should be in any day now. I know a lot about Lyme but don't believe I have it even though I have a few symptoms.

Bnotafraid- I'll look into it. Thanks.


I'm strongly considering leeches therapy. First they're placed on your liver to detox your body, then the next sessions they are placed around the areas of concern. I'm very afraid to do it but desperate. I believe I hae a lot of toxicity in my body from trauma and medication.

Trust me I've changed my lifestyle and diet 50 times over, for long periods of time. I also don't believe j have a "migraine". It's been 22 months......... And no migraine treatment including botox or Triptans have helped even .1%

I look at food differently than most. I see it as nutrition and macronutrient composition. I see food as a drug that either helps or hurts. Does your daily intake of nutrients meet your daily needs? I would say it does not and I don't even know what you eat. With our typical American food, there are huge nutritional deficiencies that show up even when eating healthy. Post what you ate yesterday and I'll use that as an example.

Reading this, I can relate so well. I don't typically post on here much, but reading this I can't not reply to share a bit of my story to try and help because it sounds very similar to me.

I'm almost 22 as well, and when I was 19, I started to get a daily headache. That just started one day and got worse till I was in miserable daily pain, I had to drop out of school, and I couldn't do anything. I was constantly seeing doctor after doctor. They tried every test they could, they tried so many different medications. With no luck at all, it started to seem hopeless. I had doctor after doctor say I was a mystery and then give up on me. I got really depressed about it as well as I lost my life.

I live in upstate New York, and one of my doctors referred me to the Jefferson Headache Clinic in Philadelphia. It was there that the doctor was able to diagnose me right away, and figure out how to treat me and continue my treatment.

As for my diagnoses, I had a atypical migraine. I actually had something called Status Migrainosus. Which actually means a migraine that lasts over 72 hours, and what happens is that your brain gets stuck in a pain cycle and the usual thing that stops the pain cycle, isn't there to stop it so it just continues. The only treatment for it, is to be hospitalized and given a medication called DHE, which pretty much stops the migraine and makes things reset. And once you are out of the cycle that you are stuck in, they are able to treat it like a regular migraine. But when in a cycle, regular migraine medication doesn't work. Its a weird thing. I am lucky enough to have one of the doctors who knows a lot about it, who was able to realize what was going on with me and treat it. And I know I'm not a doctor, but I can't help but wonder if it the same for you. It might be worth looking into.

One thing I will highly suggest if you haven't looked into already, is going to a headache clinic, I don't know much about what is in the LA area. But they know much more about what is going on with headaches then other doctors, I spent a year and a half going through my primary doctor and a neurologist. Who were trying the right things, they ruled a lot of things out. But my neurologist at the headache clinic really knew a lot more about headaches and just all the more different types.

I know how it feels to just feel hopeless, but don't lose that hope. Just keep searching for that answer to get better. There is someone out there who has it, you just have to find them. And if you have anymore questions about what I went through, feel free to ask.