vertigo

      I was wondering if those of you that suffer from vertigo could describe what kind of vertigo they have. My form of vertigo is the feeling of being on a ship. It's a rocking/swaying kinda feeling. Once in a while I get a bobbing feeling. I fell this all the time, it never stops. The only relief I get is when I am in motion. Does anyone else here have this?

                             Sincerely, Nicaribbean

Hi Nicaribbean,

Vertigo was my first symptom as well. I have CIS (one “ms attack”). I woke up dizzy one morning. Over the following weeks it went through different stages. In addition to constant dizziness, I went through intense spinning, and then the world began tipping down to the left. The left side of my face and my left arm became involved in numerous daily attacks of uncontrolled movement, which coincided with intense dizzy head rush sensations (neuros called it ataxia).

Like Gretchen, I have a lesion on my cerebellum that nueros say is the cause of all of this. I have residual issues with balance, dizziness, and also the left side of my face and my left arm. When I get fatigued, my eyes often still feel like they briefly “jerk,” the world spins a bit, my left arm and the side of my face go “weird,” and then I will have a period of heightened vertigo.

I find moving increases my vertigo. When I had intense spins I didn’t know where I was in space, and at one point felt like I literally couldn’t move. The only time I’ve ever had moving help like you describe, was after a plan ride. I felt like the floor was moving, and walking along with it made it less noticeable. Is this what you are feeling? I hope you find some answers and relief soon! Vertigo is certainly a big drag.

Sunny

Hi,

     I was on Serc (something like antivert) for a while but it did not help. I tried Ventigoheel a homeopathic med and that did nothing either. After all of that I had physiotherapy and acupuncture with no luck. I am presently waiting to see a neurotologist. My ENT is sending me to see one. Until then I'll keep on rocking! I am lucky though because I never have nausea.

                     Sincerely, Nicaribbean

  I think he's into the my space thing,young people share their MS stories...there also.Thats certainly out of my relm.I have received some peace knowing that I'm not alone..dealing with his illness.This may become my own private world.I probably won't ever go to group meeting for MS families or any thing like that, I help him keep his home up,cook, laundry, chores etc.That takes most of my time,He can rest without worry about the small stuff.When he gets  home from work he's spent.What I do is small pototoes, what he does every day to get through...is remarkable.

My son suffers from Nystagmus..eye movements which beats downward.There area lot of different types around 78 the Professor @ U of M tells us.In the severe part of his relaspe he could not move off the sofa for 3 months.when he opened  his eyes the vision was like a TV screen rolling downward... days of vomiting.But the symptoms he gets from the eye movemts (which are constant)are vertigo symptoms.He uses a cane,for security blanket,,Hes strong body wise,he has used valuim  which helped alot ..now he takes klonopin for the nystagmus.Bottom line he has had similar episodes the first years he was dx.his were milder in form but lasted, longer.He said afterwards the episodes made him feel like he was severely hung over.If your eye are jittering side to side.Their are meds that can help..make you more stable.Good idea to have your eyes check out. Sincerely..1MOM

Quack said...
I don't know if this is Vertigo? My spells have been happening for a few years now...but did happen about 10 years ago and went away after 6 months...the Room will all the sudden move back and forth...sometimes my eyes will move as well. I cannot stay up..I fall over or hold on to the chair..My head and body fall like dead weight. It last for about 10 - 30 min. I'm nauseated and tired afterwards. I will be offbalance for the next few days or so.
quack

Vertigo is "dizziness", like the room spinning, the sensation you get if you step off a carnival ride, for example.