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Posted 3/2/2008 2:59 AM (GMT 0)

Kimberdawn said...

Hey everyone

New here, so I hope I'm doing this right. I just have a ? about Tysabri. Did you bring it up to your neuro or did they? I've had such a progression with sx that have not stopped since early part of last year. I also got new sx that have stayed. I did have a new lesion on my c-spine in Nov. 06 & also a flare in June 07. My neuro has just ordered another MRI of my C spine, but has said nothing about my sx. I was thinking about asking him about TY, they do it there.

Thanks

Posted 3/2/2008 3:32 AM (GMT 0)
Hey Kim

Welcome to the board! I'm so glad u've found us and hope u'll find the site informational and supportive. We have a great community of people here who are all willing to help where they can.

We have MS chat on Monday's at 6:00pm (cst) each week. I hope u'll be able to jin us. It's a great chance to get some real time answers to u'r questions as well as getting to know the members better. Hope to see u there! Again, welcome to the board!
Posted 3/2/2008 12:02 PM (GMT 0)

Gretchen1 said...

Kimberdawn said...

Hey everyone

New here, so I hope I'm doing this right. I just have a ? about Tysabri. Did you bring it up to your neuro or did they? I've had such a progression with sx that have not stopped since early part of last year. I also got new sx that have stayed. I did have a new lesion on my c-spine in Nov. 06 & also a flare in June 07. My neuro has just ordered another MRI of my C spine, but has said nothing about my sx. I was thinking about asking him about TY, they do it there.

Thanks

How long has it been since you've seen your doctor? Have you kept him informed about your increased symtoms, or worsening situation?  It seems like a long time between doctor visits for you.  Usually a doctor is the one who will make suggestions about going on one of the medications for MS, either Tysabri, one of the interferons, or Copaxone.
Posted 3/2/2008 3:58 PM (GMT 0)
Thanks for the Welcome

I have been to the site several times, but never join in. I'm glad I did it looks like a nice bunch of people. Lots of info.
I hope I can help in any way.

Thanks again
Posted 3/2/2008 5:19 PM (GMT 0)

Welcome to the board, Kimberdawn! I’m so glad you decided to post. I am a former lurker myself, and am really glad I finally joined. This really is a great group of people, and I hope you’ll feel comfortable and supported here. I hope everything goes well with your c-spine mri, and that your neuro is receptive to discussing tysabri with you. Let us know how things go.

 

Sunny

Posted 3/2/2008 6:22 PM (GMT 0)
Hi Kimberdawn,
Welcome to the board. You'll find alot of support here. Glad you posted. I will be starting Tysabri on march 24th. My neuro suggested it back in August with my last flair, but i couldn't decide. I wanted to give Rebif atleast a year like they say. It is not doing well for me. I have to try tysabri. I have been researching it for quite some time. I am ready now, and i hope it works for me. And good luck to you. I hope your neuro is open to it too.
Lynn
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