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strange numbness....

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Posted 3/6/2008 4:11 AM (GMT 0)
oh my.... i don't want to go back to the neuro I think he is sick of seeing me!! The life side of my chest from my belly button up to my neck is numb. It is such a strange area for numbness. I don't know if this is a flare. I seem to have issues crop up that go away pretty quickly but this has been for a week. (I know that is the definition of a flare and I am in total denial.) ok so has anyone had numbness here? what do you all think?
Posted 3/6/2008 4:46 AM (GMT 0)

I'm sorry, but that sounds like a flare to me, I've had numbness pretty much everywhere you can think of including my neck and torso.  It's not something I've received any treatments for, but I do report new stuff to my nurse at the MS clinic.

Rest is key :)

Take care,

Shar 

Posted 3/6/2008 2:57 PM (GMT 0)

Well, I've been numb (and tingling) from mid torso to toes for "forever"...so yes, that does happen.  I've also been numb around the neck, around the face, around the head...

most anywhere.  I'm sorry.

Posted 3/6/2008 7:13 PM (GMT 0)

I know you are right it is a flare.... I just hate admitting it! But I guess this is ok b/c my last MRI was with no new lesions, even though I had several flares.... So flares are ok. I often wonder about that- I thought flares meant that you were creating new lesions but I guess not. This disease is so baffling. I really don't want to call the doc though. I think I am going to call my GP and that way she can forward this on to my neuro...

Thanks!!!

Posted 3/7/2008 1:26 AM (GMT 0)
I'm really enjoying the posts here. I can relate and it feels really good to see now it was just me being weird about somehing weird with my body. TK, I've never had my torso go numb yet but most all my extremities regularly take turns or stay that way these days. For the longest time, I thought my neuro was "sick of me" too until this last visit when he finally handed me the dx and admitted how much he hates doing that. So it wasn't being sick of seeing me with the same old, same old baffling stuff, it was hating what he saw he knew was coming down the pike and he'd have to eventually admit he knew from the start over a year ago. (His beef isn't with the disease so much as it is with the ins companies refusing tests, canceling coverages etc. It ticks him off - he's got a sister with MS who can't get insured becos of the dx.)

So now I feel better knowing it wasn't a personal thing but his personal thing about MS and Ins co's. :)

In the meantime, I'm learning.

Posted 3/7/2008 1:37 AM (GMT 0)
I don't think ANY doctor likes to tell a patient that they have a disease or disorder that is not "fixable". And MS is one of those diseases that isn't "fixable". It's not like, "...take two of these pills every day for a week and you'll be cured". It's, "...inject this drug, deal with uncomfortable side effects, and maybe you won't be as bad off as you would have been had you not injected the drug."

Or, when I was diagnosed, 25 years ago, and found a musty old medical books that described MS as a "disorder of the central nervous system leading to severe disability and eventually death...."

So doctors prolong telling a patient as long as possible, until they are SURE they know what they're dealing with. It's better these days, when there are drugs and treatments available, but still tough, when it can't be cured.
Posted 3/7/2008 1:41 AM (GMT 0)
I totally hear you D'awesome.. I have been diagnosed for quite a while now and I think my neuro is annoyed with me b/c there is not much he can do. he can say "yes you are numb and have a nice day." I am on avonex there is not much more we can do meds wise unless I want to do a course of steroids for the flare but I am very anti steroids b/c I want to try to have another baby soon and I don't want to add any new meds to my system...... I feel like to be a responsible MS patient I should call the neuro but I made an appointment with the GP instead b/c I figure I can get a full checkup in at the same time!
Posted 3/7/2008 11:38 AM (GMT 0)
My GP and my neuro are working hand in hand like that too, TK. And you're wise to keep the steroids in mind like for what you're trying to accomplish with the future pregnancy. (I will be praying you are so blessed when the time comes!) Besides the neuro knows he's expensive and it must be frustrating to be feeling helpless... I know mine hates the "it's all part of MS" comment he's having to make again and again now... he kept digging for something else. There may still be a pituitary issue but it's hardly much of an issue compared to this now.

In the meantime, my GP can always alleviate the minor stuff, refill scripts, let me sound off... it takes weeks to get into the neuro sometimes, my GP keeps her door open and works me in nowadays. It's a good working partnership.
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