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novatrone therapy

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Posted 6/14/2008 8:24 PM (GMT 0)
Has anyone taken Novatrone therapy for MS treatment? I initially started on Avonex but had to discontinue after six weeks when my liver enzymes were five times over the normal limit. I am now deciding on my next course of action. I would like to hear from anyone that has experience with this treatment as far as success, failure, etc.

Thanks!

 

Posted 6/21/2008 2:40 PM (GMT 0)

Argh...I was so hoping that someone out there had taken this approach for treatment. I will start my first chemo (Novatrone) treatment on Monday. Guess I will be the lab rat! Ha! eyes My oncologist said that the best she could guarantee me is that my symptoms would not get any worse, she hasn't seen anyone's symptoms go away. Guess no progression is the best I can hope for...

Blessings

Posted 6/21/2008 2:57 PM (GMT 0)
Saturday a.m.

 

Very good morning:

 

 I finished my novatrone treatments @ 2 years ago.

 

I would have to get a blood test two weeks prior (and 2 & 4 weeks post) treatment.

 

And....as I was going to first blood test, I would lapse into a "...woa is me...I am  a MS patient " frame of mind.

 

Until I would go down for my day of treatment...and see actual cancer patients recieving chemo....buckled over in pain...crouched over to try dealwith treatment....

 

THEN I would think....MS big blankin'  deal.

 

John

 

Posted 6/21/2008 3:00 PM (GMT 0)

Hi there,

I am sorry you didn't get any response to this.  I don't know of anyone that has tried the novatrone.  I am afraid that you are going to be the HW healing well lab rat.  I am sorry about that!  This is a relatively quiet little board.  I wish you the absolutely best of luck with this.  Please come back and tell us how it went.  I look forward to hearing you post in the future for this as well.  You are in my thoughts a prayers.  I really hope this puts the breaks on for you as far as progression goes.

Posted 6/21/2008 5:45 PM (GMT 0)
John,
Thanks so much for the response. If you don't mind me asking how has the treatment worked out for you? Did you have any problems with it? Did the treatment make you ill at all? Improvement? Just wondering what to expect. Thanks for any information.

Gretchen,
I will be sure to let you know how it goes. Thanks for the response as well. :)

Blessings
Posted 6/21/2008 6:19 PM (GMT 0)
OOOH John!  We must have been typing at the same time!  I didn't see your post until much later after submitting mine.  My response sounds a bit insulting to you.  I am sorry!!!  John, thanks for responding to this thread.

Posted 6/25/2008 1:50 PM (GMT 0)
hi there i just had my 3rd novantrone on the 13th not having much trouble some nausea and very tired but that is about it as far as it working my neuro adv it wont stop what i have now but will slow new symp from starting up it is just toslow the progress how long will you be on it ?i wil be on it for a year every 4 weeks for 3 mos and then every 3 mos for a year and then he wants me to go on tysabri every 4 weeks sorry not much info good luck let us know how you make out ,,,take care VIEW IMAGE
Posted 6/25/2008 3:56 PM (GMT 0)
Well, I had my first treatment on Monday morning, felt OK for the better part of the day. Later in the evening got a pretty bad headache, blue urine (novatrone is literally "Tidy Bowl" blue  eyes  ) and a little nausea so on the advice of the oncology nurse took some anti-nausea meds before I went to bed, seemed to help. The nausea seems to want to linger on even today and I am super tired, pretty much I could sleep all day long if I didn't feel like such a bum!

lubylu, Thanks for your response, seems we have very similar symptoms afterward. The "tiredness" is kicking my rumpus right now but I'm sure it won't last forever. I will take the treatments once every three months for two years and my oncologist said the same thing about slowing the progression, it is not meant to reverse the symptoms. I am just hoping for the best.

Blessings!

 

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