"under our skin" dvd

I haven't seen this video or heard of it but my neuro ran me thru those tests in my process. I did not test positive for it in any possible way and I am dx'd MS. So I'd be very skeptical of any blanket statements like "the dvd even stated that every patient that came to him with an MS diagnosis and parkinsons diagnosis tested posative for lyme disease."  I find these kind of info video's damaging in the long run. Ticks can't be blamed for all the ills of MS... that's a major discount about a major disease.

 

no , not really D'awesome. Testing for Lyme is like flipping a coin. The movie is great, alot of people that have MS, at one time had lyme.

Hello again!
If anyone has any questions please feel free to visit the lyme disease forum. I will be glad to help!

Hey Tory

Use u'r best judgement of course, but be aware that this is a battle already faught and no one is interested in reviving it. Having lyme and ms is prob very difficult (to say the least!) so of course u'r experiences are welcomed. The issue at hand here is the arguing back and forth as to whether or not people with ms REALLY have ms. No one here wants to be told they 'really have lyme and not ms and just aren't able to figure it out'. No, no one's literally said that, but in essence that is what comes across.

As far as where u belong...well u seem to belong in both places. For example....I have GERD and IBS....and i post in both places as i want. U don't have to have a dx for any of these diseases to post tho...just an interest and willingness to provide support if needed. No one is unwanted or going to be told to go someplace else...that's not what the ms board or Healing Well is about. We just want to eliminate or nix any fussing or bickering that arises. Ok?

Welcome and post as u want.

I don't deny that I have MS.

I do, however know NOW what caused it -- Lyme.  I am now in treatment and hopeful.

If I could have read messages such as these 8 eight years ago, I would perhaps be healthier than I am at present.  The unreliable tests for Lyme that I had (several, always negative) convinced those former docs of mine (and myself) that I was negative for Lyme when in fact the opposite was true.

Knowledge is power.  I believe it is wrong to hold this information back from others who may benefit from it.

Please note that you have been asked to NOT post again by a moderator.  If you have ever spent any time here, you would read that we have asked people to please check for lyme disease and we have asked them to read the lyme board as well.  I have spent a lot of time on the lyme board reading threads.  I am very supportive of anyone with chronic lyme as I have read the problems with CDC and subsequent problems that occur with insurance.  I realized that many of you have gotten MS from the problems caused by Lyme disease.  Many of us just have MS.  I have read with total horror and sympathy what you go through.  I feel very strongly that I just have MS.  I feel that MS is a disease that has many poorly understood causes.  I tested negative through igenex and I don't have many of the lyme symptoms of infection.  I have been very very stable in my MS for the last 15 months.  I have a full time job, I have two boys and a husband that I do many things with and for.  I have read how with Lyme, you can flare as often as once a month.  That is just not me.  So, when I hear that Lyme causes MS, it is very hurtful.  You just cannot generalize things like that.  Maybe you got MS from lyme, and maybe I got MS because my immune system just went haywire.  I happen to be responding quite well to the progression therapy I am on and when someone suggests that my disease is basically a symptom of another disease that I am too stupid to treat, that really is very offensive.

As a moderator, I am also asking, with the utmost respect, please don't post on this thread again.  Let this go.  You have made your invitation.  If we have members that have questions, they will go to the Lyme board with them.

Well said, Gretchen, thank you and Rhonda for your limitless patience. Ditto on Kitt's note.