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Pain with MS

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Posted 7/27/2008 5:52 PM (GMT 0)
I have been reading the posts on this forum and it seems like pain is normal with MS.  Since I have not been officially diagnosed with MS, is it possible to still have it without any pain.  The only pain I get is in my hip after sleeping.  My legs although stiff and numb have no actual pain - certainly not enough to even take even an aspirin.  On my last visit to the MS clinic my doctor as well as her colleague felt that it may not be MS because of my symptons regarding walking (getting worse and worse the more I walk).  Even with this stiffness and numbness getting worse, I don't actually have any pain.  This has really got me down and I have started seeing a counsellor to deal with this.  I did not really know that I was depressed until I went for my 6-month breast cancer followup appointment with my oncologist (which went extremely well).  One of the forms to complete asked about depression and I realized that I was not feeling normal but it had nothing to do with the cancer - just the MS.
Posted 7/27/2008 9:02 PM (GMT 0)
Hey Barbarann

Yes, it's possible to have pain without ms. Remember, u'r in the dx process. U may or may not have ms, but u'r symptoms are u'r symptoms. Many with ms do have pain, but many do not. That's the thing with ms...it's a disease that makes it's own path per each person. U may have some of the same symptoms of several people, but likely u will not have the same exact set of symptoms of all those people...or even one other person.

Hang on friend. I'm glad to see u've had a good appt with the oncologist!! I'm even more happy to see u were able to recognize a prob starting with depression. Depression can cause all sorts of probs for u and u'd want to give as much attention to caring for that part of u'r body as u do the rest. Take good care friend and try to take it easy. Enjoy the 'no pain' and don't worry if that maybe seems to mask the ms while trying to dx. Remember, if it's ms, it WILL show up eventually.
Posted 7/29/2008 12:50 AM (GMT 0)
Thank you for your kind thoughts. It is hard to deal with this, but I am extremely busy at work so it does not give me time to think about it. I went all day today with starting to cry and I guess that is a good sign. I will continue to see our counsellor since it seems to help just talking with someone about it. I also read this forum every day. The only thing that bothers me is that I hear of people going for many years without needing a cane. I needed a cane after about 1 1/2 years and a walker after 2 1/2 years. I am now looking into getting a scooter. I did not hesitate in using my cane since I had fallen a few times including at work.
Since I live in a cold climate, the walkways can be very icy and I did not want to take a chance.
Posted 7/31/2008 3:07 AM (GMT 0)
What a lovely thought it would be to have MS without pain... but yes, I've heard of folks with it without the pain, their symptoms run in other directions, not so much in the mobility pain modes. So Barb, it could be or might not be, you gotta be patient, there's a whole gamut of stuff that your doctor's probably trying to rule out and figure out, eventually he won't have anything to rule out and he'll have to conclude... that's how mine did it... along with the symptoms that kept coming.

The counseling is a great idea. It does help to talk about it, to express yourself. The books that have been recommended here are wonderful too (MS and your feelings in particular)... and a couple others that I'd have to look up... it's good to be validated as not being crazy for feeling like a basket-case while going thru all this. At least that's how I've felt. Hope you feel better too!

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