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Multiple Sclerosis
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Posted 7/31/2008 12:10 AM (GMT 0)
 Well, today I am really tired.  My muscles ache and dont want to move.  I am really struggling today.  I laid in bed from 1pm -5pm and don't feel any better.  I feel kind of like a rag doll because my arms and leggs do not want to move.  Does this sound familiar to anyone?

When a person has MS and they get upset about something ( for instance I became really upset and worried when my father needed emergency open heart surgery and when I found out my mom had severe osteoporosis and they might not be able to fix her broken arm because of it)  I got really upset.  My whole body shook and trembled and it was noticable to others.  Is this common amongst MS ?

My husband said if things do not improve in one week we are going to go in and demand to see a neurologist.  We are afraid it is going to interfere with my job soon.

PLEASE let me know what you think.

AmandaMoo

Posted 7/31/2008 1:44 AM (GMT 0)
Hey Amanda

Well many things are possible when u'r talking about the nervous system. A reaction to extreme fear such as trembling/shaking can be part of any normal reaction to emotional trauma or can be part of a bigger prob maybe with anxiety. I'm not so sure it's a possible direct result of ms tho. The extreme fatigue CAN be part of ms or other neurological failure/illness tho. Most often the doc will want to first rule out things like B12 deficeincy or others of the many things that can mimic ms. A good idea may be to google "ms mimics' or 'differential diagnosis'. That can give u a broader understanding of the many things u'r doc may be looking for or looking to eliminate at exam or from testing, be it blood or other tests.

I'd definitely go ahead a try to set an appt with a neuro. Many times u will have a long wait for that type of appt so getting the ball rolling is a good idea. Take care of u'rself and keep posting any questions u may have.
Posted 7/31/2008 2:39 AM (GMT 0)
Hey Amanda, welcome to the board. You'll find great support around here and lots of good information.

It sounds like you're having a really rough time of things emotionally which can cause alot of extra stress on your body. Your reactions don't sound so unusual to me as it's obvious your folks mean a great deal to you.  

I get the feeling from your post that you may not have an MS diagnosis yet or that you haven't yet been to a neurologist? Have you been to your regular doctor? Usually that's where you start. Your PCP will start with the full physical, run all your labs to determine if anything is out of kilter and its even wise to see your gyn and get that physical order too. A neurologist is highly specialized and I know for me, he was the very last doctor and only after definitive symptoms occured that would warrant his services. They're fairly expensive too.

So I would say start at square one and go thru the process... let it unfold so you get the right answerss  the right way. MS is tough diagnosis, it usually takes a long time and lot of patience to get to the conclusion. I actually hope you find out it's not this. Believe me you'll be so much better for it.

Posted 7/31/2008 3:06 AM (GMT 0)
Hey Amanda,

You may want to look into Upper Cervical Specific Care.  This is a specialized form of Chiropractic that helps to locate and correct Nervous System Interference mainly at the Brainstem area.  It is worth a try to see if they can help you because they are both very conservative yet effective at possibly correcting the cause of your problem. There is a great study that was done on 81 patients with MS and Parkinsons that yielded terrific results.  I think that you could google Multiple Sclerosis and Upper Cervical Care to find the study.

Best of luck to you,

James

James, please read our rules before posting again.  If you are truly here to help then add a link so the site does not get in trouble for copyright infringement.

Post Edited By Moderator (Gretchen1) : 7/31/2008 10:34:23 PM (GMT-6)

Posted 8/1/2008 4:08 AM (GMT 0)
That's weird James but neuro has specifically told me chiro is out of the question for me anymore unless I want to intensify my pain, which is what I was doing with the treatments I was getting. So since not doing anymore, it's better for me... guess it all depends on the individual, just like the disease.
Posted 8/1/2008 1:50 PM (GMT 0)
Friday a.m.

 

Hello Miss Amanda:

 

The MS fatigue is the worst symtom of our disease.

 

BY  FAR!!!

 

And no one can understand the depths of our fqatigue, unless they are another MS patient.

 

I take the drug Provigil twice a day.  It does not take me back  to pre-MS days, but it REALLY helps.

 

Great Luck.  John

Posted 8/2/2008 3:59 AM (GMT 0)
I know this sounds silly but since discovering Provigil, and I believe it came from y'all's suggestions... I feel like a Provigil cheerleader!  :-)
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