Provigil rules! huhhuh uhhhuh huhhuh

This stuff is great!  Regained all my energy again, and it helps me think more clear and precise.  I definately needed it as i was horribly fatigued again, especially during the day.  I definately dont need depression meds on this.

Anybody else on this?  I want some feedback from others.

Absolutely agree, Casinokid! Provigil is my personal godsend! I wouldn't and couldn't go without it without feeling like molasses on a freezing day! Awful slow, Provigil makes up for all of the exhaustion MS robs me of!

Ah, Kid, run from the steroids while you can because eventually the steroids will rob your ability to run (I know the MS already did that probably at least for running per se) but Steroids will change moods, make you feel good when you don't because they mask and they're wonderful for those crisis times... but they rob muscles of their strength and mass...they are the double edged swords of the medication world.

Just had to do a super dose myself to avoid pneumonia and so hated it but man, it's the only thing that would give me my lungs back!

But, provigil, now that's the best! Energy... created for the military for fighter pilots on long missions and later found to be the medical fields best friend for third shift drs and nurses who had to keep working! Now it's my best friend!

Wow! Kid,

This is great to hear.  I would avoid the steroids as well.  When you think about the fact that the solumedrol is like 1200 mg per infusion, that is a crazy-high dose.  It just has to be doing other rough things to your body.  I am so glad to hear that the provigil is helping.

Hey Tertle, I'm at 200mg daily right now in the morning and some of the fatigue still sets in late in the day, but that's ok, because then I can sleep and wind down at night. But I understand some folks can be up to 400mg daily.

With headaches, I'd ask about topomax help for that... low dose (50-100mg) daily sometimes helps maintain them. The provigil may have amplified them just because it heightens the bodies energy. I have atypical migraines due to a pituitary issue (daily without the T-max) so it's my saviour on that front. That's something you and your neuro may need to discuss.

Sometimes the radiologists will mention it in the report but becos it's not a major issue, the neuro doesn't mention it to you til something shows up symptom wise... ask just out of curiosity how your Pituitary looked on your bran scan if you've had one... and then ask abut your labs for Cortisol etc that are affected by the pituitary function. My indicators a little askew which match the Thyroid issues and the suspicious spot on the pituitary that we're monitoring.

And those run separately of rest of the MS symptoms he's monitored