Have you had these symptoms???...

Hey Kate,

It is way way past time to call your doctor!!!!  Have you reported this?  I had this the last time I flared and I was near completely numb from the knees down.  Oddly I could still walk but I could not feel the ground and it was really really hard to walk without tripping.  I had to constantly check my feet for cuts, blisters and stuff because there was just no feeling.  I do know that you can have some pretty serious sensory stuff and remain mobile.  I truly hope that is what is going on with you.  I still have quite numb feet but nowhere near like I had.  I have two toes you could probably cut off and I would not feel it.  I can still move them. Weird huh?

Good luck and let us know.

Agreeing as usual with Gretchen- check in with your doctor- as this sounds like a big change from your previous 'norm'. I have developed really poor circulation in my feet, cold and kind of numb most of the time, Reynauds in my hands, and more recently Lividio Retic....something or other (a weird red lacey pattern that appears on my legs when they get hot). I suspected interferons causing these things, but more recently had a dermatologist (?) say that maybe my MS is causing vascular instability. I don't like that phrase. But she didn't seem concerned. I"ll see my neuro on the 6th of Oct. but if I have total numbness before then I"ll be bugging him sooner. Good luck and keep asking questions- Willow

Well having a unsympathetic doctor is certainly the worst!!!  I am totally so not liking your doctor or at least his witchy receptionist with her "deal with it".  That is riduculous.  The worst part is, your doctor has NO power to stop this in its tracks.  Unfortunately not even the best doctor has that power with this disesae.  When you progress, there is nothing your doc can do but treat symptoms.  I wish you the very best of luck.  Do get another doctor.  We all deserve the best treatment with the most dignity.  Keep us posted.

Kate,

Hang in there.  I am assuming you are on the 5 day solumedrol IV infusion.  I was disappointed in how slowly that works.  I had a big flare and that soluemedrol I am sure helped but it was not a quick fix nor did I find relief from the nerve pain or the spasticity pain I was having.  I did not feel better for several weeks and I did not feel like was at my new baseline for 3 months or so.  It can take a long time depending upon the severity of the flare.

I feel for you.  Keep us posted as to how you are doing.

I have finished my IV infusions and I am on the last day of the methylpredisolone pack. Still no change and no relief. I am seeing a new doctor tomorrow but he is through the same clinic. I am going to give him a chance though.

It just wouldn't be so bad if the pain would go away. And on top of it all I get very irritable when I am in pain so I am not pleasing to be around on top of everything else. I am trying really hard to pretend this isn't bothering me because people don't know what to say. And to be honest I don't know what I want them to say either. I never thought that I would really have to deal with this. I was blindsided....

I am in this state of powerlessness and I feel I have no where to turn. I never expected to feel like this or be in this much pain. And on top of it all I feel guilty as sin for taking my life up until this point for granted. And then I feel guilty for having to have all these people help me. I just feel like a huge freakin burden and its only been 3 weeks. I still have 2 more to go where doc has bed ridden me and after that mobility is limited unless the flare goes away (pray to God)

I just want you all to know whoever is reading this I don't need a response unless you want to. I am just glad I have somewhere to go where I can get out my feelings and have people understand how I may be feeling, or at least have a really good idea. I know we all cope with things differently.

I will update with news from the doctor 2mrw afternoon. Again thanks to all for your patience with me....

Hey all...

So I saw the new doctor. He has only been with the clinic for less than 2 weeks and I swear to you he treated me as if I were faking as if I had a choice in what was happening to me. My step mom came with me and she was so upset with what she was hearing come from his mouth. I just got very upset and defensive. Its like these doctors have no idea what is going on...

But for the good news my flare has tamed a lot!!! I can feel most of my legs and I am not in as much pain. Still in pain when being mobile and trying to do daily chores but its not constant anymore... Its still frustrating because I have more energy than I have had in years and I can't do anything so that really sux but I am just sooo glad that the pain is gone. Apparently my state of mind is a bit altered when I am in pain. I am a wimp when it comes to pain, I admit it. But I promise you this... the pain was comparable to child birth...

I am having an MRI on Monday. Brain MRI with and without contrast and then a cervical and thoracic MRI. After I get my result I am switching to the MS clinic in Milwaukee. I heard they have some wonderful doctors there.. I am excited about seeing a doctor that only deals with MS.

I saw a physical therapist today. He was great and very concerned that my flares are so severe at such a young age. I told him I was diagnosed at 19 and my first flare was when I was 17. I had gotten vertigo for no reason but they treated me like a drug addict, even though all the tests came back negative for any type of drugs. They told my mom it was ideopathic.... after going to school to be an RN I learned that means they don't have a clue why it happens..

I will keep you updated on the results of the MRI. I should know by the end of next week.

Thank you all for your concern. I was really scared this time. Reality of the disease finally hit me all at once and I kinda had a melt down.

Again Thank you all