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Those On Rebif...need your input!

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Posted 1/29/2009 3:17 AM (GMT 0)
I was on Copaxone for nearly two years until I started having a bunch of IPIRs. My doctor took me off two months ago, and now feels we better go with a different treatment. I chose Copaxone because it had the least amount of side effects and I'm honestly scared to try anything else. My neuro is suggesting Rebif. I've read all the information she provided me and also read up online a bit. The side effects just sound like they'd be hard to cope with...flu like symptoms, depression, potential liver issues, etc.

So anyone out there on Rebif...what has your experience been? Are these side effects really as bad as they sound? Have you seen/felt improvement on this treatment?

Thanks for much for your input!!

~Niki
Posted 1/29/2009 6:18 PM (GMT 0)

Hi Niki,

I was on Rebif for about 3 months.  I had a lot of the side effects they talk about but they took me off because my liver enzymes went up.  I am getting ready to start Copaxone in the next couple of weeks.  The side effects can be kept under control with tylenol and advil, I am just super sensitive to all meds.  I have a client that is on rebif and she has no problems with it at all.  I think everyone is so different.  Good luck.  MS lifeline which is rebifs nurses line was wonderful.  You will get any question answered there.  Let us know how it goes.

Cindy

Posted 1/31/2009 12:27 AM (GMT 0)
Hi Niki,

I have been on Rebif since June and the first few months I had the flu like symptoms for a few weeks, i take my injection at night time maybe an hour or so before bed along with 2 painkillers (mild ones) that way I am sleeping most of the symptoms off. I was only dx with MS March time 2008, before I went on Rebif I had 2 relapses within 8 weeks, one a disabling one, constant numbness in my hands and constant fatigue.

since being on Rebif I have no numbness (although when i am sleepy it starts in my left hand) and I seem to be OK on it, everyone is different but so far it has helped control my symptoms, and taen the injection before bed along with the painkillers was my MS nurses idea and it worked. I get my blood checked every 3 mths to ensure liver is ok.

hope you get the right meds for you.

take care
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